#50767 06-21-2004 11:02 AM | Joined: Oct 2016 Posts: 284 Gold Member (200+ posts) | OP  Gold Member (200+ posts)
Joined: Oct 2016 Posts: 284 | Hi everybody,
My mom just got her first PET/CT scan Friday since she completed her radiation the first week in March. She will see her doctor for the reading on Wednesday so I'm a little nervous for that. She had a scan the second week into radiation so they will compare the scan's. She said the experience this time was terrible her appointment was at 12:15pm and they didn't finish until 6:30pm because the machine kept breaking down. She is really exhausted from going back to work (she works a 9/80 so her days are pretty long). I'm praying that everything is ok. I just hate all this waiting........
Thanks for letting me vent.
Dani
Originally joined OCF on 12/12/03 as DaniO or Danijams
Dani-Mom SCC BOT & floor of mouth surgery-recur then surgery/rads & chemo completed 3/04
surgery 11/06 to remove dead bone & replace jaw w/ leg bone & titanium plate
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#50768 06-21-2004 02:49 PM | Joined: Feb 2004 Posts: 372 "Above & Beyond" Member (300+ posts) | | "Above & Beyond" Member (300+ posts)
Joined: Feb 2004 Posts: 372 | Hang in there Danielle...I sure know all about the waiting. It can really eat you up! I will keep you and your mom in my prayers that the scans are clear!!
Deb
Debbie - Caregiver for husband, Dan, diagnosed with tongue cancer 7/03. Partial gloss., mod. neck dissections, graft. Recurrence neck tumor 12/03. Radical left neck dissection 12/24/03-unable to get all the tumor. 8 weeks chemo/rad beginning 1/12/04.
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#50769 06-21-2004 03:54 PM | Joined: Aug 2003 Posts: 1,627 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Aug 2003 Posts: 1,627 | Hi Dani,
I will keep my fingers crossed and be thinking of you and your mom on Wednesday.
Love,
Minnie
SCC Left Mandible. Jaw replaced with bone from leg. Neck disection, 37 radiation treatments. Recurrence 8-28-07, stage 2, tongue. One third of tongue removed 10-4-07. 5-23-08 chemo started for tumor behind swallowing passage, Our good friend and much loved OCF member Minnie has been lost to the disease (RIP 10-29-08). We will all miss her greatly.
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#50770 06-21-2004 09:07 PM | Joined: Mar 2004 Posts: 164 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: Mar 2004 Posts: 164 | Dani,
I know the waiting game is the worst! I can't believe your mom's back to work. Tell he to be gentle with herself. She is really fortunate to have you for a daughter who cares so much about getting good information. I hoping for only good news!!
Lynn
Stage 3, N0, M0 oral tongue cancer survivor, 85-90% of tongue removed, neck disection, left tonsil removed, chemo/radiation treatments, surgery 11/03, raditation ended 1/04, lung mets discovered 4/04,
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#50771 06-22-2004 10:30 AM | Joined: Oct 2016 Posts: 284 Gold Member (200+ posts) | | OP Gold Member (200+ posts)
Joined: Oct 2016 Posts: 284 | Thank you Debbie, Minnie and Lynn, Sometimes I think my mom doesn't tell me stuff so that I don't worry too much about her. I am sooo worried about the scan results. My sister got more information and filled me in on what is going on. Apparently when she was at the dentist last Wednesday her dentist noticed that the bone was exposed where she had a skin graph so he called her ENT. Originally she was not supposed to see him again for 2 months but now he wants to go over the scan with her in person tommorrow. He was just going to call her with the scan results but since apparently the bone is exposed he needs to check it out. My mom has been in a lot pain lately and since the bone is exposed it makes sense that she would be in pain. This really has me freaked out. I will know more tommorrow and I will keep you all posted as to what is going on. Thanks for your support. Dani 
Originally joined OCF on 12/12/03 as DaniO or Danijams
Dani-Mom SCC BOT & floor of mouth surgery-recur then surgery/rads & chemo completed 3/04
surgery 11/06 to remove dead bone & replace jaw w/ leg bone & titanium plate
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#50772 06-22-2004 02:44 PM | Joined: May 2003 Posts: 928 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: May 2003 Posts: 928 | Dani ..your mum is one tough lady..she is trying to protect you as much as she can. Just keep on doing what you are doing , loving her and being there when she needs you.
Good wishes coming your way.
Take care
Marica
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Caregiver to husband Pete Stage IV Scc last treatment July 2003 and doing great.
Caregiver to husband Pete, Dx 4/03 SCC Base of Tongue Stage IV. Chemo /Rad no surgery. Treatment finished 8/03. Doing great!
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#50773 06-22-2004 03:49 PM | Joined: Jul 2003 Posts: 1,163 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jul 2003 Posts: 1,163 | Hoping for the best news in the world Dani!!!
Your mom deserves it. So do you!!!
Best of wishes,
Dan
Daniel Bogan DX 7/16/03 Right tonsil,SCC T4NOMO. right side neck disection, IMRT Radiation x 33.
Recurrance in June 05 in right tonsil area. Now receiving palliative chemo (Erbitux) starting 3/9/06
Our good friend and loved member of the forum has passed away RIP Dannyboy 7-16-2006
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#50774 06-22-2004 08:13 PM | Joined: Sep 2003 Posts: 1,244 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Sep 2003 Posts: 1,244 | Hi Dani
I'm trying to protect my Mom from to much.. so I suppose she can do it to.. your love will be the best help to her
sunshine... love and Hugs
Helen
SCC Base of tongue, (TISN0M0) laser surgery, 10/01 and 05/03 no clear margins. Radial free flap graft to tonsil pillar, partial glossectomy, left neck dissection 08/04
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#50775 06-23-2004 02:42 AM | Joined: Dec 2003 Posts: 2,606 Likes: 2 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | Dani,
Sorry for the late reply but I am hoping and praying for nothing but the best for your mother (and you, too, of course!).
With Love,
Ed
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
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#50776 06-23-2004 01:06 PM | Joined: Oct 2016 Posts: 284 Gold Member (200+ posts) | | OP Gold Member (200+ posts)
Joined: Oct 2016 Posts: 284 | YEAH!!!!!!!
I am soooooo relieved her PET/CT scan came back clean no cancer!!!! There is only small area where her surgery was that was showing up on the scan that was also on her last PET/CT scan 2 weeks into radiation which is probably nothing of concern.
The only concern now is where the bone is exposed that is somewhat infected so her ENT prescribed really strong antibiotics and on her next visit will shave down the bone because it is irratated and infected right now so he wants to wait to shave it down to make sure the infection heals up. What a relief!
Thank you for all the well wishes. You guys are the BEST!
Love,
Dani
Originally joined OCF on 12/12/03 as DaniO or Danijams
Dani-Mom SCC BOT & floor of mouth surgery-recur then surgery/rads & chemo completed 3/04
surgery 11/06 to remove dead bone & replace jaw w/ leg bone & titanium plate
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