#50359 08-26-2007 09:56 PM | Joined: Jan 2007 Posts: 735 "Above & Beyond" Member (500+ posts) | OP "Above & Beyond" Member (500+ posts) Joined: Jan 2007 Posts: 735 | FINALLY I am done wiht the power point presentation ..i dont know if this link will take you there I am hoping it will. I don't think you guys will hear all the music I put to it though ..PLus I did a presentation board and I have to be there today at 11am to set up so I am gonna try to get some sleep ! The 6 year ol twins I watch are coming at 8 am ..so a should be able to get a few hours LOL ...well here is trying to give you all a link ..
mhtml:file://C:\Documents%20and%20Settings\Shar\Temporary%20Internet%20Files\Content.MSO\PowerPointWebPagePreview\6C7BB524.mht!6C7BB524_files/frame.htm
shar
Sharlee 35 year old Female Non smoker, very occasional alcohol ..Scc T1N0M0,partial glossectomy and left neck disection ,2/9/07 No rad deemed ness. 4/16 tonsillectomy ..Trimengenial Neuralga due to surgery
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#50360 08-27-2007 08:05 AM | Joined: Apr 2005 Posts: 2,219 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Apr 2005 Posts: 2,219 | Shar,
I'm not a computer expert by any means, but this seems like a link to a file on your computer and I doubt that this will work.
If you could, I would like to see the power point, so maybe you could attach it to an email to me. Is this part of the fair booth that you're doing? If so, how will you show it at the fair? When is the fair?
5 kids aren't enough. You actually baby sit 2 six year olds besides caring for your own?
Don't know how you do it, escpecailly with all that you have on your plate. You are superwoman, in my eyes!!!!
Jerry
Jerry
Retired Dentist, 59 years old at diagnosis. SCC of the left lateral border of the tongue (Stage I). Partial glossectomy and 30 nodes removed, 4/6/05. Nodes all clear. No chemo no radiation 18 year survivor.
"Whatever doesn't kill me, makes me stronger"
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#50361 08-27-2007 08:47 AM | Joined: Feb 2007 Posts: 1,940 "OCF across the pond" Patient Advocate (1000+ posts) | "OCF across the pond" Patient Advocate (1000+ posts) Joined: Feb 2007 Posts: 1,940 | The presentation was brill shar well done and good luck at the fair.
Liz in the UK
Husband Robin aged 44 years Dx 8th Dec 2006 poorly differentiated SCC tongue with met to neck T1N2cM0 Surgery and Radiation.Finished TX April 2007 Recurrence June/07 died July 29th/07.
Never take your eye off the ball, it may just smack you in the mouth.
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#50362 08-27-2007 08:56 AM | Joined: May 2007 Posts: 632 "Above & Beyond" Member (300+ posts) | "Above & Beyond" Member (300+ posts) Joined: May 2007 Posts: 632 | AAAAAAAAAAGGGGGGGGGGHHHHHHHHHHHH---my own twins were more than I could handle at 6!!!
Well done Sharlee for all you're doing, especially with the turmoil and health worries!
Congratulations and Good Luck!
Brenda
Brenda in UK--Diagnosis 30/5/07--undifferentiated carcinoma in right jawbone and muscles. Stage 4 6/7/07--new diagnosis primary is in lung. Finished 4cycles of palliative carboplatin/gemcitabine therapy September 07 Now dying to live!
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#50363 08-27-2007 10:40 AM | Joined: May 2002 Posts: 2,152 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: May 2002 Posts: 2,152 | Sharlee, That post was at 4:56a.m. I do hope your profile is running on Pacific time cuz if not, you really are superwoman.
Liz, What do we have to do to get to the presentation
Take care, Eileen
---------------------- Aug 1997 unknown primary, Stage III mets to 1 lymph node in neck; rt ND, 36 XRT rad Aug 2001 tiny tumor on larynx, Stage I total laryngectomy; left ND June 5, 2010 dx early stage breast cancer June 9, 2011 SCC 1.5 cm hypo pharynx, 70% P-16 positive, no mets, Stage I
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#50364 08-27-2007 12:44 PM | Joined: Jan 2007 Posts: 735 "Above & Beyond" Member (500+ posts) | OP "Above & Beyond" Member (500+ posts) Joined: Jan 2007 Posts: 735 | NO that is AM LOL. But it is all done and I think it looks good or atleast I hope it does ..that has got me through the past few days..kept me busy ..Not that 7 kids arent enough .
The Fair starts tomorrow ..and I am bringing my Laptop. I set up everything else today , with the group reality check . They are sponsoring Laser Tag so hopefully that will bring a crowd our way. I hope to take lots of Pics so I can show you all. I did a presentation board with alot of facts ..some GRAHIC photos...Info on the OCF and photos of all who sent to me .
I can email anyone who wants to see the presentaion ..the only thing that makes me sad is I dont know if you all can hear the music.. There is a special song with each persons story . and I wish you all could hear that because it makes it more heartfelt to me anyhow.
Liz.... I hope you liked it and I hope I did ROb Justice and Would have made him Proud....I am honored to be able to tell your story and even more humbled that you were willing to share and let me tell it .....IT has brought MAny of tears....But they need to know the reality ....And I have many many well wishes and thoughts sent to you ..for being so strong and compassionate ..... The song I chose for him was Angels amoung us by Alabama ..I don't know if you know the song , but it is a very touching song..when you add it to his story ..it hits home to people and that is whaT my intention is !!! PLease know that by sharing this with me and allowing me to show this ..Rob and yourself are making a difference in someone else life ...
The Agency I am with is impressed so far and may have me go to all the local schoold in Feb for the big NO chew and SMoking ..they have offered to pay me to do it..They have asked me to do an event with them next July and are going to go to other Community agencies and Try to get them to have me show OUR stories and tell them about the importance of early detection !!! So This IS ALL FOR SOMTHING ....That is what I keep telling myself..This was mY reason !!
Again anyone who wants to see it I can email it OR if someone knows how to put it on a site ..please let me know Or I can send it to you !!
Shar
Sharlee 35 year old Female Non smoker, very occasional alcohol ..Scc T1N0M0,partial glossectomy and left neck disection ,2/9/07 No rad deemed ness. 4/16 tonsillectomy ..Trimengenial Neuralga due to surgery
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#50365 08-27-2007 12:46 PM | Joined: Jan 2007 Posts: 735 "Above & Beyond" Member (500+ posts) | OP "Above & Beyond" Member (500+ posts) Joined: Jan 2007 Posts: 735 | P.S. Tonight I promise to try to sleep !!! I only got 1/2 hour last night !
Sharlee 35 year old Female Non smoker, very occasional alcohol ..Scc T1N0M0,partial glossectomy and left neck disection ,2/9/07 No rad deemed ness. 4/16 tonsillectomy ..Trimengenial Neuralga due to surgery
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#50366 08-27-2007 04:09 PM | Joined: Apr 2005 Posts: 2,219 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Apr 2005 Posts: 2,219 | Shar,
It was great, even without the music. I had tears in my eyes all over again reading Liz's story about Rob. You have captured their story so well.
Good luck tomorrow and as many days that the fair runs.
You have become not only a superwoman, but an amazing advocate for early detection. I hope that you will get some time to relax soon and are able to get some stability back in your life. You deserve this and so much more!!!
Jerry
Jerry
Retired Dentist, 59 years old at diagnosis. SCC of the left lateral border of the tongue (Stage I). Partial glossectomy and 30 nodes removed, 4/6/05. Nodes all clear. No chemo no radiation 18 year survivor.
"Whatever doesn't kill me, makes me stronger"
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#50367 08-27-2007 04:42 PM | Joined: Jun 2007 Posts: 718 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Jun 2007 Posts: 718 | Shar,
I think I could post the powerpoint on my company web site...I would just dedicate a space for it that would be seperate from my work site. I have to ask my sister, who is my webmaster. She's does a lot with graphics and music on the web. Can you send me a copy?
I got a bounced message back (your busy mailbox was full) so I don't know if you got Dan's info...either way, I would love to help you get this online so many can see the fruits of your labor.
And, it's been said before but I'll say it again...you have so much on your plate, I don't know how you do it...you are a true superwoman!
Good luck!!!!!!! Margaret ---------- C/G: Husband, 48 (at time of dx) Dx 5/18/07 SCC, BOT, lymph node involvement. T1N2BM0. (Stage 4a, G2/3) Tx 6/18 - 8/3/07, IMRT x 33 Cisplatin x3 (stopped after 1st dose due to hearing issues). Weekly Erbitux started 6/27/07 completed 8/6/07.
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#50368 08-27-2007 05:17 PM | Joined: Jan 2007 Posts: 735 "Above & Beyond" Member (500+ posts) | OP "Above & Beyond" Member (500+ posts) Joined: Jan 2007 Posts: 735 | No it is not super ..it is just me and how I am gettin me back ,I am used to being in control and doing for others,,that is all I have done my whole life since I was little i wanted to help and do for others,
So for me to be the needy one,,throws me for a loop, I go crazy and then to have Joe be an ass on top of it, Systems overdrive. This was a way for me to gain control and Help so it made sense to me and it was Fun and frustrating at times as I hadn't really used it before .,But I decided I really like it !! ANd for future If anyone wants to add their story .. I would LOVE to !! I really really really just wish you could hear the music too !!
By the way when I say in control..I dont mean in charge..I mean together and organized and just in control ..not as in being the boss.
Sharlee 35 year old Female Non smoker, very occasional alcohol ..Scc T1N0M0,partial glossectomy and left neck disection ,2/9/07 No rad deemed ness. 4/16 tonsillectomy ..Trimengenial Neuralga due to surgery
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#50369 08-28-2007 04:13 PM | Joined: Jun 2007 Posts: 718 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Jun 2007 Posts: 718 | My sister is looking at it to see what she can do..will let you know over the next couple of days.
Hope the fair went well. Margaret ---------- C/G: Husband, 48 (at time of dx) Dx 5/18/07 SCC, BOT, lymph node involvement. T1N2BM0. (Stage 4a, G2/3) Tx 6/18 - 8/3/07, IMRT x 33 Cisplatin x3 (stopped after 1st dose due to hearing issues). Weekly Erbitux started 6/27/07 completed 8/6/07.
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