#50292 06-06-2007 12:30 PM | Joined: Mar 2007 Posts: 525 "Above & Beyond" Member (300+ posts) | OP  "Above & Beyond" Member (300+ posts)
Joined: Mar 2007 Posts: 525 | Hello Everyone The TV station did most likely my last segment and it will be on the 11:00 EST news. It should be on their website vidio by midnight EST and will stay on for 24 hours. They promissed to air my mention of the OCF. And my plug for www.oralcancer.org Their web address is: www.wptv.com Check it out. I'm just doing my part to help get the word out. Best Wishes. Petey 
DX 3-21-07 L tongue,SCC Stage IV (T3N2MO) TX Slash/Burn/Poison Method.
***Rapid Aggressive Recurrence 8-4-07 with same DX/TX. Life does not cease to be funny when people die any more than it ceases to be serious when people laugh. Never Give Up! ****UPDATE**** Our dear friend Petey passed away, RIP 9-2-07
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#50293 06-06-2007 04:13 PM | Joined: Apr 2005 Posts: 2,219 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Apr 2005 Posts: 2,219 | Well the story was on the website by 11 PM. No sign of the video, yet. There are 2 links to the OCF website. Good job, Petey. Here is a link to the story: http://www.wptv.com/news/local/story.aspx?content_id=01dd0503-11aa-4d4b-93e5-d5ac5c0c5086 This was the last sentence in the story. Any idea what it is supposed to say? "He has become the spokesman about an insidious cancer the hospital hoped he would be." Jerry
Jerry
Retired Dentist, 59 years old at diagnosis. SCC of the left lateral border of the tongue (Stage I). Partial glossectomy and 30 nodes removed, 4/6/05. Nodes all clear. No chemo no radiation 18 year survivor.
"Whatever doesn't kill me, makes me stronger"
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#50294 06-06-2007 05:14 PM | Joined: May 2006 Posts: 720 Likes: 1 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: May 2006 Posts: 720 Likes: 1 | [quote] This was the last sentence in the story. Any idea what it is supposed to say?
"He has become the spokesman about an insidious cancer the hospital hoped he would be." [/quote]It's awkwardly phrased -- stick a "that" between "cancer" and "the hospital," and that may clarify the sentence for you (He has become the spokesman .... that the hospital hoped he would be).
(Good work in spreading the word, Petey!)
-- Leslie
Leslie
April 2006: Husband dx by dentist with leukoplakia on tongue. Oral surgeon's biopsy 4/28/06: Moderate dysplasia; pathology report warned of possible "skip effect." ENT's excisional biopsy (got it all) 5/31/06: SCC in situ/small bit superficially invasive. Early detection saves lives.
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#50295 06-06-2007 10:58 PM | Joined: Apr 2005 Posts: 2,219 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Apr 2005 Posts: 2,219 | Thanks, Leslie...sure is great having an editor on the forum.
I still don't see a link to the video. Does anyone see one?
Jerry
Jerry
Retired Dentist, 59 years old at diagnosis. SCC of the left lateral border of the tongue (Stage I). Partial glossectomy and 30 nodes removed, 4/6/05. Nodes all clear. No chemo no radiation 18 year survivor.
"Whatever doesn't kill me, makes me stronger"
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#50296 06-07-2007 02:03 AM | Joined: Mar 2007 Posts: 525 "Above & Beyond" Member (300+ posts) | | OP "Above & Beyond" Member (300+ posts)
Joined: Mar 2007 Posts: 525 | Hello Everyone
No, they did not put the video link on as they said they were.
I also have learned from these experiences that they NEVER do exactly what they say. And also that (as previously stated by Davidcpa or wilcksdds) you have no control as to what they use or do not use.
They cut from the aired segment my thanks to "all involved
DX 3-21-07 L tongue,SCC Stage IV (T3N2MO) TX Slash/Burn/Poison Method.
***Rapid Aggressive Recurrence 8-4-07 with same DX/TX. Life does not cease to be funny when people die any more than it ceases to be serious when people laugh. Never Give Up! ****UPDATE**** Our dear friend Petey passed away, RIP 9-2-07
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#50297 06-07-2007 04:21 AM | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Petey,
I know your frustration all to well but we must continue to talk and hope someone will put us out in the publics' eye.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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#50298 06-07-2007 06:37 AM | Joined: Jan 2004 Posts: 1,116 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jan 2004 Posts: 1,116 | Good Job Petey, I am proud of you! Keep up the good work in getting the message out there! Carol
Diagnosed May 2002 with Stage IV tongue cancer, two lymph nodes positive. Surgery to remove 1/2 tongue, neck dissection, 35 radiation treatments. 11/2007, diagnosed with cancer of soft palate, surgery 12/14/07, jaw split. 3/24/10, cancer on tongue behind flap, need petscan, surgery scheduled 4/16/10
---update passed away 8-27-11---
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#50299 06-07-2007 09:28 AM | Joined: May 2006 Posts: 720 Likes: 1 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: May 2006 Posts: 720 Likes: 1 | The video is now posted on the site Jerry linked to above. And the reporter specifically mentions www.oralcancer.org -- well done! -- Leslie
Leslie
April 2006: Husband dx by dentist with leukoplakia on tongue. Oral surgeon's biopsy 4/28/06: Moderate dysplasia; pathology report warned of possible "skip effect." ENT's excisional biopsy (got it all) 5/31/06: SCC in situ/small bit superficially invasive. Early detection saves lives.
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#50300 06-07-2007 01:12 PM | Joined: Apr 2005 Posts: 2,219 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Apr 2005 Posts: 2,219 | Thanks, Leslie, for checking and letting us know. I gave up looking after trying many times.
Hey Petey, bald is beautiful!
You got in the web site and "early detection". Couldn't really ask for anything more.
Jerry
Jerry
Retired Dentist, 59 years old at diagnosis. SCC of the left lateral border of the tongue (Stage I). Partial glossectomy and 30 nodes removed, 4/6/05. Nodes all clear. No chemo no radiation 18 year survivor.
"Whatever doesn't kill me, makes me stronger"
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#50301 06-07-2007 02:39 PM | Joined: Jul 2006 Posts: 388 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Jul 2006 Posts: 388 | You need to go to the right side of the WPTV website page and scroll down in that rectangular window under "video" until you come to the title "From stage four cancer to....." then click on it and the video should play, OCF mention and all. Keep moving forward, Petey Warmly, JaneP
Husband: 3 SCC gum and cheek cancers 2002, 2005, 2006: surgery only. Scans clear after removal of small, well differentiated, non-invasive cancers. No radiation. 4th SCC lip diagnosed 4/13/07 - in situ, removed in biopsy. More lip removed 2/8/08 - dysplasia. 2 Biopsies 3/17/09 no cancer (lichenoids)
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