#50155 01-16-2007 02:38 AM | Joined: Apr 2005 Posts: 2,219 Patient Advocate (old timer, 2000 posts) | OP  Patient Advocate (old timer, 2000 posts)
Joined: Apr 2005 Posts: 2,219 | Hi all, The second annual NYC Cancer Walk will be taking place in Harlem again this year on April 14, 2007. Last year this event raised $20,000 for the OCF. Money which is desperately needed to help keep this foundation afloat. Last year 3 OCF members, attended and it was a very rewarding day. It was great to personally meet Sheldon Sax (SSAX) and his wife there. For those of you that don't know Shel, he lives in Middlebury Vermont and he is the one that keeps the "Oral Cancer In The News" section of this site up to date, to the minute. Barbara Boland (BOBB131), always the biggest fund raiser for OCF, was also there with her family entourage. Marilyn & I enjoyed the day and look forward to a repeat this year. I'm hoping that more members can make it this year. It's a great opportunity to help raise money and to put a face with those screen names that we see everyday. Brian, could you get the new flyer on the website? Until that's done, you can see last years flyer by clicking here: http://www.oralcancerfoundation.org/events/current_events.htm If you can't make it to the event, but you want to help out with fund raising or just to make a personal donation for the event, checks can be mailed to me and I will get them to the event. Last year I received checks from many members that couldn't make it and helped to support me in this walk. Checks should be made out to the Oral Cancer Foundation and can be mailed to: Dr. Jerold B. Wilck 680 Middletown Blvd. Suite 201 Langhorne, PA 19047 PS Brian told me that there will also be another walk this year in June, in Chicago. The goal is to add walks each year all over the country. Thanks. Jerry
Jerry
Retired Dentist, 59 years old at diagnosis. SCC of the left lateral border of the tongue (Stage I). Partial glossectomy and 30 nodes removed, 4/6/05. Nodes all clear. No chemo no radiation 18 year survivor.
"Whatever doesn't kill me, makes me stronger"
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#50156 01-16-2007 11:02 AM | Joined: Jan 2004 Posts: 1,116 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jan 2004 Posts: 1,116 | Jerry, I am really hoping to attend the NY Walk this year AND have many people sponsor me, but if I cannot, I will send you the checks and sponsor you....Thanks, Carol
Diagnosed May 2002 with Stage IV tongue cancer, two lymph nodes positive. Surgery to remove 1/2 tongue, neck dissection, 35 radiation treatments. 11/2007, diagnosed with cancer of soft palate, surgery 12/14/07, jaw split. 3/24/10, cancer on tongue behind flap, need petscan, surgery scheduled 4/16/10
---update passed away 8-27-11---
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#50157 01-17-2007 03:22 AM | Joined: Apr 2005 Posts: 2,219 Patient Advocate (old timer, 2000 posts) | | OP Patient Advocate (old timer, 2000 posts)
Joined: Apr 2005 Posts: 2,219 | Carol,
Hope you can make it. It would great to meet you. If not, I will certainly pass on the checks.
Jerry
Jerry
Retired Dentist, 59 years old at diagnosis. SCC of the left lateral border of the tongue (Stage I). Partial glossectomy and 30 nodes removed, 4/6/05. Nodes all clear. No chemo no radiation 18 year survivor.
"Whatever doesn't kill me, makes me stronger"
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#50158 01-17-2007 11:28 AM | Joined: Jan 2004 Posts: 1,116 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jan 2004 Posts: 1,116 | Awesome!!!!!!!!!!!!I am looking forward to it! Carol
Diagnosed May 2002 with Stage IV tongue cancer, two lymph nodes positive. Surgery to remove 1/2 tongue, neck dissection, 35 radiation treatments. 11/2007, diagnosed with cancer of soft palate, surgery 12/14/07, jaw split. 3/24/10, cancer on tongue behind flap, need petscan, surgery scheduled 4/16/10
---update passed away 8-27-11---
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#50159 01-17-2007 12:13 PM | Joined: Mar 2002 Posts: 4,912 Likes: 52 OCF Founder Patient Advocate (old timer, 2000 posts) | | OCF Founder Patient Advocate (old timer, 2000 posts)
Joined: Mar 2002 Posts: 4,912 Likes: 52 | Waiting for artwork from NYU to update the site. But after that Chester will have the current events page updated. Also please note that we are having a walk/run and screening event in Chicago in June with UI@Chicago College of Dentistry - date still to be set. It will take place along the shoreline. I hope that we can also pick up some OCF members for that event as it is their first, and having survivors there to speak is a big deal. As to money, please note that Barb Boland and family, through their fundraising efforts with friends, family, customers of thier companies, and co-workers raised 75% of all the NYU funds last year. At the Chicago event we will be splitting the donations/proceedes of the walk with the University's head and neck department 50/50.
Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
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#50160 01-17-2007 05:17 PM | Joined: Apr 2005 Posts: 2,219 Patient Advocate (old timer, 2000 posts) | | OP Patient Advocate (old timer, 2000 posts)
Joined: Apr 2005 Posts: 2,219 | Brian,
Was wondering if there was any way that you could make the NY walk this year.
Would be great to finally get together.
Jerry
Jerry
Retired Dentist, 59 years old at diagnosis. SCC of the left lateral border of the tongue (Stage I). Partial glossectomy and 30 nodes removed, 4/6/05. Nodes all clear. No chemo no radiation 18 year survivor.
"Whatever doesn't kill me, makes me stronger"
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#50161 01-17-2007 07:25 PM | Joined: May 2003 Posts: 102 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: May 2003 Posts: 102 | Hi Dr. Jerry and Carol,
My husband and I are going to try to make it to the NYC walk this year too. We'll try to get as many checks as possible prior to us attending.
Carol, I look forward to meeting you in person after all this time. It will be great if more than just a couple of us can make it!!
How far do we walk? I have to seriously work on getting my lousey knees in shape.
Hugs,
Lisa
Niece to Aunt Ro- Dx: 4/03. SCC Stg 4 BOT with mets to fl of mth & crvcl lymph node. AdenoC 1 sal gland. Two add. reconstrc. surgeries for adhesions. Recurrence 7/06- Sub-Mand AdenoC. Mets to both lungs. Lost her battle 5/4/07.
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#50162 01-18-2007 02:35 AM | Joined: Jan 2004 Posts: 1,116 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jan 2004 Posts: 1,116 | Lisa, I would really enjoy meeting you, too. Hope to see you there! Will send you a PM. Love, Carol
Diagnosed May 2002 with Stage IV tongue cancer, two lymph nodes positive. Surgery to remove 1/2 tongue, neck dissection, 35 radiation treatments. 11/2007, diagnosed with cancer of soft palate, surgery 12/14/07, jaw split. 3/24/10, cancer on tongue behind flap, need petscan, surgery scheduled 4/16/10
---update passed away 8-27-11---
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#50163 01-18-2007 10:24 AM | Joined: Dec 2006 Posts: 77 Senior Member (75+ posts) | | Senior Member (75+ posts)
Joined: Dec 2006 Posts: 77 | Any idea when the date will be set for Chicago in June? I am coming for sure, but I have a little team of people that want to walk in support of me. They are all pestering for details.
Amy
Dx 11/30/2006 Stage I SCC of gum/surgery 01/12/07 resection of the right posterior mandible with a right buccal transpositional flap 3 teeth removed/reconstruction to come in 9-12 months
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#50164 01-18-2007 10:39 AM | Joined: Mar 2002 Posts: 4,912 Likes: 52 OCF Founder Patient Advocate (old timer, 2000 posts) | | OCF Founder Patient Advocate (old timer, 2000 posts)
Joined: Mar 2002 Posts: 4,912 Likes: 52 | The Chicago students are pulling permits as we speak, so I should know in the next week what dates they were able to get from the city. Will post them here and on the events page as soon as they are available.
Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
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#50165 01-18-2007 04:08 PM | Joined: Apr 2006 Posts: 378 "Above & Beyond" Member (300+ posts) | | "Above & Beyond" Member (300+ posts)
Joined: Apr 2006 Posts: 378 | Hi Jerry,
Jack and I have marked the date and will try to walk this year.
It really would be nice to meet people in person.
Regards JoAnne
JoAnne - Caregiver to husband, cancer rt. tonsil, mets to soft palate, BOT, 7 lymph nodes - T3N2BM0, stage 4. Robotic assisted surgery, radical neck dissection 2/06; 30 IMTX treatments and 4 cycles of cisplatin completed June 06.
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#50166 01-19-2007 01:06 AM | Joined: Apr 2005 Posts: 2,219 Patient Advocate (old timer, 2000 posts) | | OP Patient Advocate (old timer, 2000 posts)
Joined: Apr 2005 Posts: 2,219 | Lisa and JoAnne, that's great that you guys and your husbands are planning to go this year, too.
The route is approximately 4 miles and is at whatever pace you are comfortable with.
We will have to pick a meeting place. Maybe a poster on a pole will help us get together. I'll think of something.
Jerry
Jerry
Retired Dentist, 59 years old at diagnosis. SCC of the left lateral border of the tongue (Stage I). Partial glossectomy and 30 nodes removed, 4/6/05. Nodes all clear. No chemo no radiation 18 year survivor.
"Whatever doesn't kill me, makes me stronger"
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#50167 02-23-2007 07:38 PM | Joined: May 2006 Posts: 11 Member | | Member
Joined: May 2006 Posts: 11 | hello all, can someone tell me where in harlem this cancer walk will be this year? it's not like harlem is two block's long. i was born and raised in manhattan, inwood is what my neighborhood was called, a little north of harlem. is there any merchandise for sale; t-shirts, hats, stuff like that? how do i sign up, i didn't know there was one last year, wasn't a larry yet, i dont need a voice box to walk a few miles to raise money. now i can bitch about it all the way, and nobody can hear me, in a way , this is pretty cool. please, can somebody type to me, thank's [email protected] is where i can be found. god bless all of us. when i was a kid, i'd walk a mile for a camel, now i'll walk a life time to find a cure.now that i look at it, that's a good t-shirt. good night all | | |
#50168 02-24-2007 09:14 AM | Joined: Mar 2002 Posts: 4,912 Likes: 52 OCF Founder Patient Advocate (old timer, 2000 posts) | | OCF Founder Patient Advocate (old timer, 2000 posts)
Joined: Mar 2002 Posts: 4,912 Likes: 52 | upstate - go to the main site of the foundation ( link to it at the bottom of the page you are reading). Find the link that says events on the left, when the next page comes up click on current events. What NYU sends us gets up there as things get more formalized. T shirts will be given to the first 500 walkers at the event and have not even been screened yet as they have sponsors logos on them and they are still working to get sponsors. From that page you can also pay for your registration or to sponsor another walker etc. through a link to the NYU event part of our store. Other T shirts like our survior TV show knock off, our mascot dog shirt (survivor) etc., are for sale in the OCF store. Again from the first page go to the link that says store and you will find these things.
Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
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#50169 03-04-2007 03:04 PM | Joined: Apr 2005 Posts: 2,219 Patient Advocate (old timer, 2000 posts) | | OP Patient Advocate (old timer, 2000 posts)
Joined: Apr 2005 Posts: 2,219 | For upstatesteve and anyone else that may be having trouble finding the link, here it is: http://www.oralcancerfoundation.org/events/current_events.htm Hope to meet many members there. Jerry
Jerry
Retired Dentist, 59 years old at diagnosis. SCC of the left lateral border of the tongue (Stage I). Partial glossectomy and 30 nodes removed, 4/6/05. Nodes all clear. No chemo no radiation 18 year survivor.
"Whatever doesn't kill me, makes me stronger"
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#50170 03-04-2007 04:58 PM | Joined: Apr 2006 Posts: 794 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Apr 2006 Posts: 794 | Jerry.....the check is in the mail for my donation through you for the NYC walk. Amy....Your check is in the mail too....sorry to be so tardy, but I haven't forgotten. When is the Chicago walk?
Colleen--T-2N0M0 SCC dx'd 12/28/05...Hemi-maxillectomy, partial palatectomy, neck dissection 1/4/06....clear margins, neg. nodes....no radiation, no chemo....Cancer-free at 4 years!
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#50171 03-04-2007 07:48 PM | Joined: Mar 2002 Posts: 4,912 Likes: 52 OCF Founder Patient Advocate (old timer, 2000 posts) | | OCF Founder Patient Advocate (old timer, 2000 posts)
Joined: Mar 2002 Posts: 4,912 Likes: 52 | You can also sponsor someone, register to walk, or donate on the OCF web site here. http://www.wireplanet.com/ecom/stor...e_id=17&categ_id=10&parent_ids=0
Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
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#50172 03-25-2007 05:59 AM | Joined: Mar 2007 Posts: 525 "Above & Beyond" Member (300+ posts) | | "Above & Beyond" Member (300+ posts)
Joined: Mar 2007 Posts: 525 | I will be sending two (2) checks to Jerry and Amy.
I wish it could be much more.
I also want to get a walk for here. I know it will be hard, but with some input, I think I NEED to do this. They have walks here all the time.
I have "VERY POOR" neighbors, since I'm 2 miles from Palm Beach. I drive by Donald Trumps Mara Largo almost daily on my beach drive.
If a 5 mile radius can be considered "my neighborhood". I have 8 BILLIONAIRES, and about 4,500 MILLIONAIRES for neighbors.
I just may kick up some dust here.I'll talk with Brian and see what we can do.
"IT IS BETTER TO HAVE TRIED SOMETHING AND FAILED, THAN TO HAVE DONE NOTHING, AND SUCCEEDED!
I owe this website. Bigtime!
PeteyB from Just Over The Tracks (and the intercoastal)
DX 3-21-07 L tongue,SCC Stage IV (T3N2MO) TX Slash/Burn/Poison Method.
***Rapid Aggressive Recurrence 8-4-07 with same DX/TX. Life does not cease to be funny when people die any more than it ceases to be serious when people laugh. Never Give Up! ****UPDATE**** Our dear friend Petey passed away, RIP 9-2-07
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#50173 03-25-2007 04:02 PM | Joined: Dec 2006 Posts: 77 Senior Member (75+ posts) | | Senior Member (75+ posts)
Joined: Dec 2006 Posts: 77 | Hi All. I want to thank you so much for your generosity. I just found out this week that the Chicago walk has been postponed until September. And here I sit, with several checks. What to do? I am hoping that I'll be able to participate in the walk in the fall, but I am not sure. It seems that my comfy job, with all the flexibility in the World will not be my place of employment after May 15. They are closing my location and unless I want to move to Green Bay, I don't have a job with them any longer. No offense to GB, but my family and friends are here in the beautiful Twin Cities and I am not going away. I am not sure what my life will be like in September, so instead, I am going to try and do some fundraising this summer, without actually participating in an event. I have a really great network of people that want to support me in my quest to raise money for the OCF, and walk, or no walk, I know they'll be behind me 100%.
I am working on ideas now. I am hoping/planning to take a little time off this summer to spend with my kids. During this time, I will also be focusing my efforts on the fundraising.
I am sure that those of you that already sent me a check would still like your money to go to the OCF, and that's where it'll go. But if you would prefer to have the check back, please let me know.
I will post here when I decide just what path my efforts are going take.
You guys are awesome!
Amy
Dx 11/30/2006 Stage I SCC of gum/surgery 01/12/07 resection of the right posterior mandible with a right buccal transpositional flap 3 teeth removed/reconstruction to come in 9-12 months
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#50174 03-26-2007 02:57 PM | Joined: Apr 2005 Posts: 2,676 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Apr 2005 Posts: 2,676 | To Mommy Amy from Amy in the Ozarks- Good to see your post, I've been worried about you. [ I'm worried about anyone who chooses to live in Minnesota 12 months a year:D]. Sorry to hear about your job [hope you are not too unhappy and can fnd something you like better] As long as my check gets to OCF one way or the other, I am happy for you to keep it unatil you decide what you are doing. Please keep us up to date on how you are. A in the Oz
CGtoJohn:SCC Flr of Mouth.Dx 3\05. Surg.4\05.T3NOMO.IMRTx30. Recur Dx 1\06.Surg 2\06. Chemo: 4 Cycles of Carbo\Taxol:on Erbitux for 7 mo. Lost our battle 2-23-07- But not the will to fight this disease
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#50175 03-26-2007 03:53 PM | Joined: Apr 2005 Posts: 2,219 Patient Advocate (old timer, 2000 posts) | | OP Patient Advocate (old timer, 2000 posts)
Joined: Apr 2005 Posts: 2,219 | As far as I'm concerned, there can never too many Amys.
Amy G.....hold my check and if the walk doesn't go off, just forward it to OCF. Good luck with the job hunting.
Jerry
Jerry
Retired Dentist, 59 years old at diagnosis. SCC of the left lateral border of the tongue (Stage I). Partial glossectomy and 30 nodes removed, 4/6/05. Nodes all clear. No chemo no radiation 18 year survivor.
"Whatever doesn't kill me, makes me stronger"
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#50176 03-26-2007 05:05 PM | Joined: Apr 2006 Posts: 794 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Apr 2006 Posts: 794 | Same here, Amy......However it gets to the OCF, it's fine with me. The walk, though, is more fun for everybody. I love the idea of you guys representing all of us as you walk. But you can't help it that your walk was canceled. Say a prayer for us, and donate it to OCF in whatever way you prefer.
Good luck with the changes in your life...
Colleen--T-2N0M0 SCC dx'd 12/28/05...Hemi-maxillectomy, partial palatectomy, neck dissection 1/4/06....clear margins, neg. nodes....no radiation, no chemo....Cancer-free at 4 years!
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#50177 03-26-2007 06:04 PM | Joined: Dec 2006 Posts: 77 Senior Member (75+ posts) | | Senior Member (75+ posts)
Joined: Dec 2006 Posts: 77 | Amy, you make me laugh. Yup, I worry about the sanity of all of us die hard Minnesotans too. But I am doing fine. And the job thing, well, it's likely a blessing. At least that's what I am telling myself. I have a couple of opportunities on the line, and one of them doesn't start until the end of July. It that one works out, I'll have a couple of months off of work to spend with my kiddos and raise a little money for the OCF. I am a firm believer that when God closes a door, he opens a window. I think losing my job might be the best thing to happen to me in a while.
God bless.
Amy
Dx 11/30/2006 Stage I SCC of gum/surgery 01/12/07 resection of the right posterior mandible with a right buccal transpositional flap 3 teeth removed/reconstruction to come in 9-12 months
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#50178 03-27-2007 02:45 PM | Joined: Apr 2005 Posts: 2,676 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Apr 2005 Posts: 2,676 | That's good to hear, Mommy Amy! And I've got to say that Jerry sening you a check while he is walking and seeking sponsers at the same time blew me away! But that is waht family is all about and I love this family!! Amy in the Ozarks
CGtoJohn:SCC Flr of Mouth.Dx 3\05. Surg.4\05.T3NOMO.IMRTx30. Recur Dx 1\06.Surg 2\06. Chemo: 4 Cycles of Carbo\Taxol:on Erbitux for 7 mo. Lost our battle 2-23-07- But not the will to fight this disease
:
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#50179 04-18-2007 03:04 PM | Joined: Nov 2006 Posts: 2,671 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Nov 2006 Posts: 2,671 | Hi Amy in Minnesota - I just read your post about the Chicago walk for June being postponed until September. I would love to participate and I think my daughter might go, too. I went to the url that Jerry posted above but didn't see anything about the Chicago walk. We lived in Chicago for 20 years before coming to Tennessee and it would be great to get back there and do something for OCF. If anything further develops I would love to hear about it whenever you get a chance. Thanks!
Anne-Marie
CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)
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#50180 04-18-2007 07:17 PM | Joined: Dec 2006 Posts: 77 Senior Member (75+ posts) | | Senior Member (75+ posts)
Joined: Dec 2006 Posts: 77 | Anne-Marie,
I haven't heard any further details about the walk in September, but I am still hoping to participate. I have to get the updates from here too, but maybe Brian could add something if there are any details at this time.
And I would really love to meet you, so I hope it goes off and we can both be there.
Amy
Dx 11/30/2006 Stage I SCC of gum/surgery 01/12/07 resection of the right posterior mandible with a right buccal transpositional flap 3 teeth removed/reconstruction to come in 9-12 months
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