#50165 01-18-2007 04:08 PM | Joined: Apr 2006 Posts: 378 "Above & Beyond" Member (300+ posts) |  "Above & Beyond" Member (300+ posts)
Joined: Apr 2006 Posts: 378 | Hi Jerry,
Jack and I have marked the date and will try to walk this year.
It really would be nice to meet people in person.
Regards JoAnne
JoAnne - Caregiver to husband, cancer rt. tonsil, mets to soft palate, BOT, 7 lymph nodes - T3N2BM0, stage 4. Robotic assisted surgery, radical neck dissection 2/06; 30 IMTX treatments and 4 cycles of cisplatin completed June 06.
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#50166 01-19-2007 01:06 AM | Joined: Apr 2005 Posts: 2,219 Patient Advocate (old timer, 2000 posts) | | OP Patient Advocate (old timer, 2000 posts)
Joined: Apr 2005 Posts: 2,219 | Lisa and JoAnne, that's great that you guys and your husbands are planning to go this year, too.
The route is approximately 4 miles and is at whatever pace you are comfortable with.
We will have to pick a meeting place. Maybe a poster on a pole will help us get together. I'll think of something.
Jerry
Jerry
Retired Dentist, 59 years old at diagnosis. SCC of the left lateral border of the tongue (Stage I). Partial glossectomy and 30 nodes removed, 4/6/05. Nodes all clear. No chemo no radiation 18 year survivor.
"Whatever doesn't kill me, makes me stronger"
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#50167 02-23-2007 07:38 PM | Joined: May 2006 Posts: 11 Member | | Member
Joined: May 2006 Posts: 11 | hello all, can someone tell me where in harlem this cancer walk will be this year? it's not like harlem is two block's long. i was born and raised in manhattan, inwood is what my neighborhood was called, a little north of harlem. is there any merchandise for sale; t-shirts, hats, stuff like that? how do i sign up, i didn't know there was one last year, wasn't a larry yet, i dont need a voice box to walk a few miles to raise money. now i can bitch about it all the way, and nobody can hear me, in a way , this is pretty cool. please, can somebody type to me, thank's [email protected] is where i can be found. god bless all of us. when i was a kid, i'd walk a mile for a camel, now i'll walk a life time to find a cure.now that i look at it, that's a good t-shirt. good night all | | |
#50168 02-24-2007 09:14 AM | Joined: Mar 2002 Posts: 4,912 Likes: 52 OCF Founder Patient Advocate (old timer, 2000 posts) | | OCF Founder Patient Advocate (old timer, 2000 posts)
Joined: Mar 2002 Posts: 4,912 Likes: 52 | upstate - go to the main site of the foundation ( link to it at the bottom of the page you are reading). Find the link that says events on the left, when the next page comes up click on current events. What NYU sends us gets up there as things get more formalized. T shirts will be given to the first 500 walkers at the event and have not even been screened yet as they have sponsors logos on them and they are still working to get sponsors. From that page you can also pay for your registration or to sponsor another walker etc. through a link to the NYU event part of our store. Other T shirts like our survior TV show knock off, our mascot dog shirt (survivor) etc., are for sale in the OCF store. Again from the first page go to the link that says store and you will find these things.
Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
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#50169 03-04-2007 03:04 PM | Joined: Apr 2005 Posts: 2,219 Patient Advocate (old timer, 2000 posts) | | OP Patient Advocate (old timer, 2000 posts)
Joined: Apr 2005 Posts: 2,219 | For upstatesteve and anyone else that may be having trouble finding the link, here it is: http://www.oralcancerfoundation.org/events/current_events.htm Hope to meet many members there. Jerry
Jerry
Retired Dentist, 59 years old at diagnosis. SCC of the left lateral border of the tongue (Stage I). Partial glossectomy and 30 nodes removed, 4/6/05. Nodes all clear. No chemo no radiation 18 year survivor.
"Whatever doesn't kill me, makes me stronger"
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#50170 03-04-2007 04:58 PM | Joined: Apr 2006 Posts: 794 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Apr 2006 Posts: 794 | Jerry.....the check is in the mail for my donation through you for the NYC walk. Amy....Your check is in the mail too....sorry to be so tardy, but I haven't forgotten. When is the Chicago walk?
Colleen--T-2N0M0 SCC dx'd 12/28/05...Hemi-maxillectomy, partial palatectomy, neck dissection 1/4/06....clear margins, neg. nodes....no radiation, no chemo....Cancer-free at 4 years!
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#50171 03-04-2007 07:48 PM | Joined: Mar 2002 Posts: 4,912 Likes: 52 OCF Founder Patient Advocate (old timer, 2000 posts) | | OCF Founder Patient Advocate (old timer, 2000 posts)
Joined: Mar 2002 Posts: 4,912 Likes: 52 | You can also sponsor someone, register to walk, or donate on the OCF web site here. http://www.wireplanet.com/ecom/stor...e_id=17&categ_id=10&parent_ids=0
Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
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#50172 03-25-2007 05:59 AM | Joined: Mar 2007 Posts: 525 "Above & Beyond" Member (300+ posts) | | "Above & Beyond" Member (300+ posts)
Joined: Mar 2007 Posts: 525 | I will be sending two (2) checks to Jerry and Amy.
I wish it could be much more.
I also want to get a walk for here. I know it will be hard, but with some input, I think I NEED to do this. They have walks here all the time.
I have "VERY POOR" neighbors, since I'm 2 miles from Palm Beach. I drive by Donald Trumps Mara Largo almost daily on my beach drive.
If a 5 mile radius can be considered "my neighborhood". I have 8 BILLIONAIRES, and about 4,500 MILLIONAIRES for neighbors.
I just may kick up some dust here.I'll talk with Brian and see what we can do.
"IT IS BETTER TO HAVE TRIED SOMETHING AND FAILED, THAN TO HAVE DONE NOTHING, AND SUCCEEDED!
I owe this website. Bigtime!
PeteyB from Just Over The Tracks (and the intercoastal)
DX 3-21-07 L tongue,SCC Stage IV (T3N2MO) TX Slash/Burn/Poison Method.
***Rapid Aggressive Recurrence 8-4-07 with same DX/TX. Life does not cease to be funny when people die any more than it ceases to be serious when people laugh. Never Give Up! ****UPDATE**** Our dear friend Petey passed away, RIP 9-2-07
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#50173 03-25-2007 04:02 PM | Joined: Dec 2006 Posts: 77 Senior Member (75+ posts) | | Senior Member (75+ posts)
Joined: Dec 2006 Posts: 77 | Hi All. I want to thank you so much for your generosity. I just found out this week that the Chicago walk has been postponed until September. And here I sit, with several checks. What to do? I am hoping that I'll be able to participate in the walk in the fall, but I am not sure. It seems that my comfy job, with all the flexibility in the World will not be my place of employment after May 15. They are closing my location and unless I want to move to Green Bay, I don't have a job with them any longer. No offense to GB, but my family and friends are here in the beautiful Twin Cities and I am not going away. I am not sure what my life will be like in September, so instead, I am going to try and do some fundraising this summer, without actually participating in an event. I have a really great network of people that want to support me in my quest to raise money for the OCF, and walk, or no walk, I know they'll be behind me 100%.
I am working on ideas now. I am hoping/planning to take a little time off this summer to spend with my kids. During this time, I will also be focusing my efforts on the fundraising.
I am sure that those of you that already sent me a check would still like your money to go to the OCF, and that's where it'll go. But if you would prefer to have the check back, please let me know.
I will post here when I decide just what path my efforts are going take.
You guys are awesome!
Amy
Dx 11/30/2006 Stage I SCC of gum/surgery 01/12/07 resection of the right posterior mandible with a right buccal transpositional flap 3 teeth removed/reconstruction to come in 9-12 months
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#50174 03-26-2007 02:57 PM | Joined: Apr 2005 Posts: 2,676 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Apr 2005 Posts: 2,676 | To Mommy Amy from Amy in the Ozarks- Good to see your post, I've been worried about you. [ I'm worried about anyone who chooses to live in Minnesota 12 months a year:D]. Sorry to hear about your job [hope you are not too unhappy and can fnd something you like better] As long as my check gets to OCF one way or the other, I am happy for you to keep it unatil you decide what you are doing. Please keep us up to date on how you are. A in the Oz
CGtoJohn:SCC Flr of Mouth.Dx 3\05. Surg.4\05.T3NOMO.IMRTx30. Recur Dx 1\06.Surg 2\06. Chemo: 4 Cycles of Carbo\Taxol:on Erbitux for 7 mo. Lost our battle 2-23-07- But not the will to fight this disease
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