#48243 05-26-2007 01:37 PM | Joined: Apr 2007 Posts: 7 Member | Member Joined: Apr 2007 Posts: 7 | PETEY B It's time to move on to the next step which is your FUTURE LIFE!!
Thank all of the wonderful people who took time from there own nightmires to pray for you, and be your friend without prejudice for your reactions to your situations. (A REAL FRIEND!) Love your immediate family, for they do not know how to react appropriately because they are so full of grief for your plight. Be the sunlight of everyday that God has given you and be kind to all and patient with your family and friends. Live life to the fullest each day and love your wife who grieves for you alone in the darkness. You were always so loving. Come back. | | |
#48244 05-31-2007 10:57 PM | Joined: Mar 2007 Posts: 525 "Above & Beyond" Member (300+ posts) | OP "Above & Beyond" Member (300+ posts) Joined: Mar 2007 Posts: 525 | Dang it! I just wrote an update (20 minutes) and lost it when I posted it. I hate when that happens. Now I will always write in a word document first, then copy and paste. I hate when I spend all that times and it "gets lost". I will update later. I'm going back to bed! WA WA WA WA WA , BIG BABY, LOST YOUR POST, WA WA WA.....
DX 3-21-07 L tongue,SCC Stage IV (T3N2MO) TX Slash/Burn/Poison Method. ***Rapid Aggressive Recurrence 8-4-07 with same DX/TX. Life does not cease to be funny when people die any more than it ceases to be serious when people laugh. Never Give Up! ****UPDATE**** Our dear friend Petey passed away, RIP 9-2-07
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#48245 06-01-2007 01:28 AM | Joined: Mar 2007 Posts: 525 "Above & Beyond" Member (300+ posts) | OP "Above & Beyond" Member (300+ posts) Joined: Mar 2007 Posts: 525 | Just a quick update
It's exactly 2 weeks from surgery & 1 week out of hospital. I have been feeling better each day.
Tongue feels a little swollen but does not look it. I have hardly any pain and good movement. Practicing my speech therapy words two, no, go, key, laryngeal elevation eeee high pitch and then eeee low pitch. Everyone says I'm speaking clearly, but it sounds "to me" a little off.
My neck hurts a little from ear to ear dissection and I have good movement but my left ear is numb. Very little swelling. I go to MO for check-up Monday 6-4-07. I will then set up an appointment with my RO. Only mask fitting and getting zapped and take this for pain has been discussed. I have many questions for him.
I felt like eating yesterday but I have no teeth. My swallowing is good and tongue movement is good and not much pain now. The cancer did not get to the jaw bone thankfully. So they took 1/2 the tongue front to back. I have bottom dentures but they pulled my 4 teeth for my top plate so I need that, but they say to wait until radiation TX. as my jaw & gums might shrink.
I do have questions about what to do to save my saliva glands. Is there anything other than amofostine that I can take for xerostomia?
I hate to say I feel lucky as I have been through so much, but some of the posts I have been reading are overwhelming. I try to encourage when I can but some of them I can not find the right words or just ...no words....
DX 3-21-07 L tongue,SCC Stage IV (T3N2MO) TX Slash/Burn/Poison Method. ***Rapid Aggressive Recurrence 8-4-07 with same DX/TX. Life does not cease to be funny when people die any more than it ceases to be serious when people laugh. Never Give Up! ****UPDATE**** Our dear friend Petey passed away, RIP 9-2-07
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#48246 06-01-2007 04:17 AM | Joined: Feb 2007 Posts: 1,940 "OCF across the pond" Patient Advocate (1000+ posts) | "OCF across the pond" Patient Advocate (1000+ posts) Joined: Feb 2007 Posts: 1,940 | Petey with no words....theres a thought!!!you do yourself an injustice Pete your words are always a tonic.
Liz in the UK
Husband Robin aged 44 years Dx 8th Dec 2006 poorly differentiated SCC tongue with met to neck T1N2cM0 Surgery and Radiation.Finished TX April 2007 Recurrence June/07 died July 29th/07.
Never take your eye off the ball, it may just smack you in the mouth.
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#48247 06-02-2007 05:46 PM | Joined: Apr 2006 Posts: 583 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Apr 2006 Posts: 583 | PeteyB,
Glad to know you made it through OK.
Sometimes there are no words, just a loving understanding.
Take care, Diane
2004 SCC R.tip 1/4 tongue Oct. 2005 R. Neck SCC cancer/Chemo Cisplatin 2x/8wks. Rad. Removed Jugular vein, Lymph gland & some neck muscle. TX finished 1/20/06... B.Cancer 3/29/07 Finished 6/07 Bi-op 7/15/09 SCC in-situ, laser surgery removed from 1st. sight. Right jaw replacement 11/3/14. 9 yrs cancer free as of Jan. 2015
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#48248 06-04-2007 04:01 AM | Joined: Mar 2007 Posts: 525 "Above & Beyond" Member (300+ posts) | OP "Above & Beyond" Member (300+ posts) Joined: Mar 2007 Posts: 525 | Goodmorning! I'm feeling better every day, little by little. I will attempt shaving for the first time. A scary job as I must shave on my neck dissection scar. I have gained back 10 of the 21# I lost in the hospital. I get this "todays word with Joel & Victoria E-mailed to me daily. I felt compelled to share this one with you. I watch Joel Osteen every Sunday morning. His is the only religious program I truly enjoy and he does not sell Prayer Cloths and Holy Water. Here is his link also: www.joelosteen.com Fight the Good Fight Today's Scripture "That is why we never give up. Though our bodies are dying, our inner strength in the Lord is growing every day.
DX 3-21-07 L tongue,SCC Stage IV (T3N2MO) TX Slash/Burn/Poison Method. ***Rapid Aggressive Recurrence 8-4-07 with same DX/TX. Life does not cease to be funny when people die any more than it ceases to be serious when people laugh. Never Give Up! ****UPDATE**** Our dear friend Petey passed away, RIP 9-2-07
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#48249 06-06-2007 12:20 PM | Joined: Mar 2007 Posts: 525 "Above & Beyond" Member (300+ posts) | OP "Above & Beyond" Member (300+ posts) Joined: Mar 2007 Posts: 525 | Hello Everyone The Tv crew just left my house. I will be on the 11:00 (EST) news. So it should be on a vidio on their website by midnight (EST) It will stay on the website for 24 hours. www.wptv.com He promissed that my mentioning the OCF and the www.oralcancer.org would be televised. That made me feel good as this was very important to me that people new where to come for advise. And I also said again about checking anything in your mouth that stays for more than 2 weeks. I recieved my official "Pathology Report and Pathologic Diagnosis". I will post on that later. Wishing You All The Best. Petey
DX 3-21-07 L tongue,SCC Stage IV (T3N2MO) TX Slash/Burn/Poison Method. ***Rapid Aggressive Recurrence 8-4-07 with same DX/TX. Life does not cease to be funny when people die any more than it ceases to be serious when people laugh. Never Give Up! ****UPDATE**** Our dear friend Petey passed away, RIP 9-2-07
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