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#48109 05-04-2007 01:10 PM
Joined: Jul 2006
Posts: 75
Senior Member (75+ posts)
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Senior Member (75+ posts)

Joined: Jul 2006
Posts: 75
Hello everyone. I went to see my dad in Atlanta, like five minutes after my last post. I couldn't take it.(last Thursday) I arrived Friday to the VA in Atlanta and found my dad very casually reading his paper in ICU. He had his titanium bar removed the day before. They found out that he's had full blown pneumonia (for weeks) which he got from drinking water and the water going down his lungs instead of his throat. No more swallowing- period.(I swear I saw him sneak some water- old habits die hard) He got a thach that will be permanent.
They found more cancer. Lots more in the roof of his mouth, tonsil, and cheek. They said it is very aggressive and non-operable (the throat part). The doctor suggested maybe another surgery on the roof of the mouth(I doubt my dad will do this) and more chemo. My dad is getting a second opinion. We are not second guessing the doctors- we just need to sleep at night knowing we have weighed all of our options.
My dad has chosen to do the next round of chemo. He will start this in a week. We will see the new doctor in two weeks. Maybe the doctor can incorperate some other kind of treatment into what he is doing now.

Just being around my dad made me feel better. I know he is sick (that didn't make me fell better), but his courage and understanding of what he is going through has made me see things in a new light. It's his thing now, and he is going to ride the wave until it is over. Instead of running up and down the hospital hallway like I'm on fire, I too will ride this wave.

He is blowing my mind daily. That's what parents do. Teach you things. This will be one lesson I'll never forget.
All I can say is EARLY DETECTION/TREATMENT. My dad waited maybe a year or longer to see the dentist-doctor. He had no idea. He thought it was an ulcer.
I'll keep you posted. I hope everyone is well.


karen and dad
#48110 05-04-2007 01:45 PM
Joined: Apr 2006
Posts: 378
"Above & Beyond" Member (300+ posts)
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"Above & Beyond" Member (300+ posts)

Joined: Apr 2006
Posts: 378
Hi Karen,

I'm so glad to read your post today and see that you have come to this conclusion. It sounds like your Dad is making very sound decisions regarding his care. It's also clear that you are close to your Dad and this is hard for you. I hope you will continue to draw on each other for strength. Please keep us posted.

Regards JoAnne


JoAnne - Caregiver to husband, cancer rt. tonsil, mets to soft palate, BOT, 7 lymph nodes - T3N2BM0, stage 4. Robotic assisted surgery, radical neck dissection 2/06; 30 IMTX treatments and 4 cycles of cisplatin completed June 06.
#48111 05-04-2007 10:24 PM
Joined: Nov 2006
Posts: 2,671
Patient Advocate (old timer, 2000 posts)
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Patient Advocate (old timer, 2000 posts)

Joined: Nov 2006
Posts: 2,671
Karen, I'm so glad that you and your Dad have each other and even with all that he is going thru, he was able to make you feel better! I'm sure he so appreciates the love and caring that you've shown him, and that it is giving him the strength and courage to keep going. What an awesome Dad you have! I hope everything goes well with the chemo and that you both continue to find courage and strength in each other. Please let us know how things are going.


Anne-Marie
CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)



#48112 05-05-2007 05:10 PM
Joined: Jul 2006
Posts: 75
Senior Member (75+ posts)
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Senior Member (75+ posts)

Joined: Jul 2006
Posts: 75
Hi. Thank you Jo Anne and Anne Marie. It really is an incredible journey. It has been hell getting to this point, but you do, and when you get there it's somehow ok. Thanks for the support. I know you both have gone through this too. Stay strong and big huge HUGS!


karen and dad
#48113 05-05-2007 05:40 PM
Joined: Apr 2005
Posts: 2,676
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Patient Advocate (old timer, 2000 posts)
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Patient Advocate (old timer, 2000 posts)

Joined: Apr 2005
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Karen, Glad to know that you can ride that wave with him! Make the most of every day. Amy in the Ozarks


CGtoJohn:SCC Flr of Mouth.Dx 3\05. Surg.4\05.T3NOMO.IMRTx30. Recur Dx 1\06.Surg 2\06. Chemo: 4 Cycles of Carbo\Taxol:on Erbitux for 7 mo. Lost our battle 2-23-07- But not the will to fight this disease

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