#47890 03-25-2007 02:54 AM | Joined: Jan 2005 Posts: 156 Gold Member (100+ posts) | Gold Member (100+ posts) Joined: Jan 2005 Posts: 156 | TRT GO WITH IT ,you realy need to complete treatment. may god help you along the way my prayers and thoughts are with you best regards maz | | |
#47891 03-26-2007 10:15 PM | Joined: Sep 2006 Posts: 149 Senior Member (100+ posts) | OP Senior Member (100+ posts) Joined: Sep 2006 Posts: 149 | Thanks everyone. This has given me strength to go back and continue.
Dx 10/06 Adenoid Cystic carcinoma; Stage I. Soft palate/minor salivary glands. Tx surgery 11/06 Tomotherapy (targeted IMRT) 3/07
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#47892 03-26-2007 11:18 PM | Joined: Nov 2006 Posts: 2,671 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Nov 2006 Posts: 2,671 | Good for you, trt! - It's amazing the strength we find when we really have to! Keep thinking about the light at the end of the tunnel and take it one step at a time. My son also stopped tx a couple of times. At the worst point, when I thought he had no more strength left to fight, it did come from someplace and he kept going because he wanted to see the end of it. When it's all over, you will be amazed at how strong you are and you will know that you can handle anything else in life that comes your way. I'm adding my good thoughts and prayers to the others here. Just know that we are with you, and keep up the good fight!
Anne-Marie CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)
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#47893 03-27-2007 02:40 PM | Joined: Apr 2005 Posts: 2,676 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Apr 2005 Posts: 2,676 | To trt and Linda and Todd- If you are going to fight this damned disease- then you have to fight it with every ounce of strenght you have- you guys keep on going and come out smiling at the end of the journey . Amy in the Oz
CGtoJohn:SCC Flr of Mouth.Dx 3\05. Surg.4\05.T3NOMO.IMRTx30. Recur Dx 1\06.Surg 2\06. Chemo: 4 Cycles of Carbo\Taxol:on Erbitux for 7 mo. Lost our battle 2-23-07- But not the will to fight this disease
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#47894 04-01-2007 04:22 PM | Joined: Sep 2006 Posts: 149 Senior Member (100+ posts) | OP Senior Member (100+ posts) Joined: Sep 2006 Posts: 149 | Wow, I am so much worse (3rd weekend). I did not recover, like in the first 2 weeks. Trouble eating and drinking. Everything tastes awful including the nutritional shakes. I wish I could pour them directly into the throat without tasting smelling.
Dx 10/06 Adenoid Cystic carcinoma; Stage I. Soft palate/minor salivary glands. Tx surgery 11/06 Tomotherapy (targeted IMRT) 3/07
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#47895 04-01-2007 05:58 PM | Joined: Sep 2006 Posts: 3 Member | Member Joined: Sep 2006 Posts: 3 | trt, Get a stomach tube. Practically everyone resists the idea at first, but once done, everyone says....RELIEF! It no longer matters how something tastes or smells.....it just goes down the tube and into the stomach, providing all the nutrition you need. No fuss, no muss. And when it is no longer needed, it is removed in the twinkling of an eye (literally). | | |
#47896 04-01-2007 07:02 PM | Joined: Sep 2006 Posts: 149 Senior Member (100+ posts) | OP Senior Member (100+ posts) Joined: Sep 2006 Posts: 149 | Well I read about these. A lot of people mention throwing up and all kinds of difficulties.
Dx 10/06 Adenoid Cystic carcinoma; Stage I. Soft palate/minor salivary glands. Tx surgery 11/06 Tomotherapy (targeted IMRT) 3/07
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#47897 04-02-2007 02:18 AM | Joined: Jul 2003 Posts: 382 Likes: 3 Platinum Member (300+ posts) | Platinum Member (300+ posts) Joined: Jul 2003 Posts: 382 Likes: 3 | trt- I managed to lose 45 pounds WITH a stomach tube! Without it I would have died. Don't worry so much about side effects. You can survive them. Concentrate on being agressive in your treatment. Life is worth the battle! Love, Kris
SCC Stage IV left tonsil neck disection 3/02 radiation finished 6/02 chemo finished 9/02 Stage 2A left breast cancer 3/09, chemo and radiation, finished treatment 2/7/10 -Stage 2 right beast cancer 10/14 chemo and radiation Every day is still a gift :-)
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#47898 04-10-2007 04:37 PM | Anonymous Unregistered | Anonymous Unregistered | My RO gave me two 1 week breaks at 3 and 5 weeks to heal during the IMRT radiation. He told me it would not matter at all. As long as they were no longer than a week. I needed them too. He told me that completion is important. He told me Short breaks do not effect the outcome.
Best of luck to you. I used a lot of Roxanol, percocet, ice chips, and frozen drinks to get through it. (and a lot of whining and complaining to my wife.)
The mouth sores and burns were the worst. i used Kanka to coat them so they would heal and chloroseptic spray, magic mouthwash and lidocain to soothe the pain.
I did not get the PEG tube. I probably should have.
take care and god bless. | | |
#47899 04-10-2007 05:49 PM | Joined: Aug 2003 Posts: 1,627 Patient Advocate (1000+ posts) | Patient Advocate (1000+ posts) Joined: Aug 2003 Posts: 1,627 | Like Gary and David, my doctors told me that the ultimate benefits were found in completing treatment without missing any days. No one ever suggested a weeks break in between, in fact, it was the main goal to stay on schedule. Go for it, get it done, then let the healing begin!
SCC Left Mandible. Jaw replaced with bone from leg. Neck disection, 37 radiation treatments. Recurrence 8-28-07, stage 2, tongue. One third of tongue removed 10-4-07. 5-23-08 chemo started for tumor behind swallowing passage, Our good friend and much loved OCF member Minnie has been lost to the disease (RIP 10-29-08). We will all miss her greatly.
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