#4657 01-06-2005 03:58 PM | Joined: Jan 2005 Posts: 191 Gold Member (100+ posts) | OP Gold Member (100+ posts) Joined: Jan 2005 Posts: 191 | Well, I have a bunch of weird questions, that it will probably help to just put out there to see if anyone answers. Doctors usually don't have the time for the piddly stuff.
I'm planning on that exploratory 2 hour surgery with a possible two day stay in the hospital. Today, for practical matters, I sat in a salon to get my long blonde hair bobbed.I figured eventually, I might have problems dealing with long hair care and might lose it so might as well try a new look. As I told the stylist, a bad hair day would be the least of my problems.
Since I have lost weight and have problems with chills and sweats, I bought myself a new bathrobe, and some warm pajamas that have snap tops so I can get into them easily. My question is... based on your experience, do the hospitals usually allow you to wear your own lounge wear and be comfortable? I can't bear the thought of shivering in one of those butt bearing gowns full time.
On another issue of the intolerance of cold and chills, they will get me more blankets if needed?
Boy am I anal retentive. I'm even concerned about being bored to death in the hospital and not having access to cable TV. Then again, I don't even know if I'll feel up to concentrating on anything. Whether or not I'll be able and willing to read or occupy my mind with something that I have the energy for. It seems like such a stupid question to ask the hospital.... call them up like they are a hotel and say "what sort of TV channels do you have there?"
Sometimes I think I might actually be getting my sense of humor back.
Jen | | |
#4658 01-06-2005 04:37 PM | Joined: Apr 2004 Posts: 837 "Above & Beyond" Member (300+ posts) | "Above & Beyond" Member (300+ posts) Joined: Apr 2004 Posts: 837 | Jen,
Generally when I've gone into the hospital for a procedure, I've had to wear the standard issue gown for the surgery (or other procedure) but have been able to use my own pajamas once I got back to my hospital room. Also, the nurses have usually been careful to ask if I'm warm enough and to offer blankets just in case -- if they don't do that, by all means ask.
I remember being surprised that within a couple of days after my neck dissection and glossectomy I could talk reasonably well, even with a mouth full of stitches, so to pass the time I picked up the phone and talked to anyone I knew who would answer -- just a way to pass the time besides watching whatever was on the tube.
Hang onto that sense of humor -- as many people here will tell you, it's a great thing to have around when you're going through this experience.
Cathy
Tongue SCC (T2M0N0), poorly differentiated, diagnosed 3/89, partial glossectomy and neck dissection 4/89, radiation from early June to late August 1989
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#4659 01-06-2005 05:27 PM | Joined: Mar 2002 Posts: 1,140 Likes: 1 Patient Advocate (1000+ posts) | Patient Advocate (1000+ posts) Joined: Mar 2002 Posts: 1,140 Likes: 1 | Jen, take thick, fuzzy, soft socks to wear in bed. That helps a lot. If it won't make you feel stupid, take a knit hat too, as so much heat is lost through your head. In the winter, I often wear a knit hat around the house, and forget it when I answer the door. I get some strange looks, but hey, I'm warm. Anyway, you can always get extra blankets by asking. Pack a good book, which will beat daytime tv hands down in most cases. Two days will pass very quickly. Good luck! | | |
#4660 01-06-2005 05:34 PM | Joined: Jan 2005 Posts: 191 Gold Member (100+ posts) | OP Gold Member (100+ posts) Joined: Jan 2005 Posts: 191 | Good advice is usually given here. Man, I'm so glad I found this place. I planned on the warm socks and hope to at least get back some of my sense of humor. (of course, I'm probably going to be posting continuously)
Weird, but I was thinking about bringing my nice knit cotton blanket from home. Smells bother me lately, and the hospital smell depresses me. I thought it might be worthwile to take my favorite blanket with the smells of my house (anything other than the foreign sterile smell of the environment I'll be in) to keep me company and hopefully soothe me. Then again, this makes me think I really AM being a baby since I haven't been that attached to a specific blanket since I was three years old.
thanks again | | |
#4661 01-07-2005 04:34 AM | Joined: May 2002 Posts: 2,152 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: May 2002 Posts: 2,152 | I'd leave the blanket home. They will proabably lose it. But definitely get the kids to donate one of their stuffed bears to keep you company. Nothing is nicer to curl up to when you are feeling lousy and lonely tahn a nice stuffed animal. Besides, it is always an intersting conversation piece. My 9 year old niece sent me one of hers when I had my first neck dissection and this guy has been through three more surguries and keeping me company ever since. Bears also are very good at helping to support your arm after a neck dissection. You are allowed to be a baby for a while.
Take care, Eileen
---------------------- Aug 1997 unknown primary, Stage III mets to 1 lymph node in neck; rt ND, 36 XRT rad Aug 2001 tiny tumor on larynx, Stage I total laryngectomy; left ND June 5, 2010 dx early stage breast cancer June 9, 2011 SCC 1.5 cm hypo pharynx, 70% P-16 positive, no mets, Stage I
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#4662 01-07-2005 11:43 AM | Joined: Sep 2003 Posts: 1,244 Patient Advocate (1000+ posts) | Patient Advocate (1000+ posts) Joined: Sep 2003 Posts: 1,244 | Hi Buy an inexpensive pillow, keep in your house for a while and then take with you, AND of course your favorite perfume. Warm PJ's and socks if you feel the cold, don't forget the nurses are ON YOUR SIDE (THEY ARE THE GOOD GUYS)it will be fine, I did 14 days and survived... Sunshine... love and hugs Helen
SCC Base of tongue, (TISN0M0) laser surgery, 10/01 and 05/03 no clear margins. Radial free flap graft to tonsil pillar, partial glossectomy, left neck dissection 08/04
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#4663 01-07-2005 03:19 PM | Joined: Mar 2004 Posts: 117 Gold Member (100+ posts) | Gold Member (100+ posts) Joined: Mar 2004 Posts: 117 | Jen,
I took a pillow from home with a nice, soft pillow case and after my neck dissection nothing ever felt as nice as my own pillow. I agree on the sock thing and good slippers with rubber soles cause they make you do laps around the halls. You will have TV (but you have to pay for it)but I had too much pain med to concentrate on reading and I'm a huge reader. My sister and I did flip though magazines. The time kind of floats by thanks to the meds. The nurses are great about the blankets. I stayed in the hospital gowns because it was easier for going to the bathroom etc while hooked up to IVs etc. If you have long sleeved PJ's with IVs it might be a pain. You just wear one gown with the openeing in the back and a second gown over it with the opening in the front and everything is covered!
Barb
SCC tongue, stage I (T1N0M0), partial glossectomy and modified neck dissection 7/1/03
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#4664 01-11-2005 09:00 AM | Joined: Dec 2003 Posts: 2,606 Likes: 2 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Dec 2003 Posts: 2,606 Likes: 2 | Jen, I am lucky because every hospital visit around this family elicits a coloring book and/or crossword puzzles from either my wife or her mother ! I didn't have surgery but managed to see the inside of a hospital room a few times through treatment. The roughest part was trying to stay in the lines when I colored because of the morphine, demerol, etc. Ed
SCC Stage IV, BOT, T2N2bM0 Cisplatin/5FU x 3, 40 days radiation Diagnosis 07/21/03 tx completed 10/08/03 Post Radiation Lower Motor Neuron Syndrome 3/08. Cervical Spinal Stenosis 01/11 Cervical Myelitis 09/12 Thoracic Paraplegia 10/12 Dysautonomia 11/12 Hospice care 09/12-01/13. COPD 01/14 Intermittent CHF 6/15 Feeding tube NPO 03/16 VFI 12/2016 ORN 12/2017 Cardiac Event 06/2018 Bilateral VFI 01/2021 Thoracotomy Bilobectomy 01/2022 Bilateral VFI 05/2022 Total Laryngectomy 01/2023
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#4665 01-11-2005 02:13 PM | Joined: Jun 2004 Posts: 106 Senior Member (100+ posts) | Senior Member (100+ posts) Joined: Jun 2004 Posts: 106 | Jen, The nurse at the recovery room said I looked cold (I was) and she brought me a warmed blanket. I asked about it later and was told that they had a heated shelf in the recovery room to keep the blankets warm. It was wonderful! The haircut was a good idea - long hair gets matted during surgery, and you won't feel like combing through it afterwards.
I brought too many books and things to do, was way too tired and foggy to even watch much TV.
Leena
scc right tonsil T1N1M0, right tonsillectomy + modified neck dissection 3/04, radiation IMRT both sides X33 ended 6/04. Also had renal cell carcinoma, left kidney removed 11/04
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#4666 01-11-2005 04:13 PM | Joined: Nov 2002 Posts: 3,552 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Nov 2002 Posts: 3,552 | Sorry Helen but in the US they discourage perfume in hospitals and oncology units in general.
Gary Allsebrook *********************************** Dx 11/22/02, SCC, 6 x 3 cm Polypoid tumor, rt tonsil, Stage III/IVA, T3N0M0 G1/2 Tx 1/28/03 - 3/19/03, Cisplatin ct x2, IMRT, bilateral, with boost, x35(69.96Gy) ________________________________________________________ "You are a mist that appears for a little while and then vanishes" (James 4:14 NIV)
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#4667 01-12-2005 04:10 AM | Joined: Jul 2003 Posts: 382 Likes: 3 Platinum Member (300+ posts) | Platinum Member (300+ posts) Joined: Jul 2003 Posts: 382 Likes: 3 | Jen- I too asked for warmed blankets. They really felt great! You just have to ask for them. I spent 4 one week stays just for the chemo part of treatment in hospital. PJ tops don't work well with pic lines and IVs. Gowns and matching robes brightened up my stay and actually cheered up the radiation techs when they brought me down for the daily treatments with chemo attached. My kids put together a traveling box of games, books and magazines to keep me sane and give everyone something to play with when they came to visit. Also, bring along pictures of your family to hang on the wall. They give you inspiration!! Best wishes - Kris
SCC Stage IV left tonsil neck disection 3/02 radiation finished 6/02 chemo finished 9/02 Stage 2A left breast cancer 3/09, chemo and radiation, finished treatment 2/7/10 -Stage 2 right beast cancer 10/14 chemo and radiation Every day is still a gift :-)
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