#46052 10-10-2005 03:58 PM | Joined: Jun 2005 Posts: 349 Likes: 2 Platinum Member (300+ posts) | OP Platinum Member (300+ posts) Joined: Jun 2005 Posts: 349 Likes: 2 | Thank you Dani, I'll search for the shake recipe on here since I've heard more than a few people suggest it.
I appreciate your insight in this and the other replies you've made to my posts!
Thanks again!
Michael | 53 | SCC | Right Tonsil | Dx'd: 06-10-05 | STAGE IV, T3N2bM0 | 3 Nodes R Side | MRND & Tonsillectomy 06/29/05 Dr Fee/Stanford | 8 wks Rad/Chemo startd August 15th @ MSKCC, NY | Tx Ended: 09-27-05 | Cancer free at 16+ Yrs | After-Effects of Tx: Thyroid function is 0, ok salivary function, tinnitus, some scars, neck/face asymmetry, gastric reflux. 2017 dysphagia, L Carotid stent / 2019, R Carotid occluded not eligible for stent.2022 dental issues, possible ORN, memory/recall challenges.
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#46053 10-11-2005 07:44 AM | Joined: Jun 2005 Posts: 349 Likes: 2 Platinum Member (300+ posts) | OP Platinum Member (300+ posts) Joined: Jun 2005 Posts: 349 Likes: 2 | I've searched for the shake, but haven't had any luck. If anyone has a link or knows the recipe, let me know Thanks! - Michael
Michael | 53 | SCC | Right Tonsil | Dx'd: 06-10-05 | STAGE IV, T3N2bM0 | 3 Nodes R Side | MRND & Tonsillectomy 06/29/05 Dr Fee/Stanford | 8 wks Rad/Chemo startd August 15th @ MSKCC, NY | Tx Ended: 09-27-05 | Cancer free at 16+ Yrs | After-Effects of Tx: Thyroid function is 0, ok salivary function, tinnitus, some scars, neck/face asymmetry, gastric reflux. 2017 dysphagia, L Carotid stent / 2019, R Carotid occluded not eligible for stent.2022 dental issues, possible ORN, memory/recall challenges.
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#46054 10-11-2005 02:55 PM | Joined: Oct 2016 Posts: 284 Gold Member (200+ posts) | Gold Member (200+ posts) Joined: Oct 2016 Posts: 284 | Michael,
2 cups ice cream 1 cup whole milk 1/2 cup half-and-half 1 package instant breakfast 1 tablespoon malted milk 2 tablespoons Ovaltine
Blend well.
This shake provides 1300 calories per serving.
I finally found it. I searched last night with no luck but here it is...
Dani
PS. I was reading some of my posts back in Feb - March of 2004 and It brough back many memories of what it was like back when my mom was where you are. My screen name was DaniJams back then but the computer crashed so I created a new user name.
Originally joined OCF on 12/12/03 as DaniO or Danijams Dani-Mom SCC BOT & floor of mouth surgery-recur then surgery/rads & chemo completed 3/04 surgery 11/06 to remove dead bone & replace jaw w/ leg bone & titanium plate
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#46055 10-11-2005 03:26 PM | Joined: Apr 2005 Posts: 2,676 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Apr 2005 Posts: 2,676 | Come on Michael, you were tough enough to get through the last few months- you can get through this-one day at a time. Amy
CGtoJohn:SCC Flr of Mouth.Dx 3\05. Surg.4\05.T3NOMO.IMRTx30. Recur Dx 1\06.Surg 2\06. Chemo: 4 Cycles of Carbo\Taxol:on Erbitux for 7 mo. Lost our battle 2-23-07- But not the will to fight this disease
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#46056 10-12-2005 07:01 AM | Joined: May 2002 Posts: 2,152 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: May 2002 Posts: 2,152 | Hi Michael, I have had this disease twice and am still around 8 years later so a reoccurence doesn't have to be a death sentence. There are several people on this board who are survivors of a lot longer than that.
Try some apple juice, flat ginger ale, Frasca and apple sauce. You really need to swallow stuff or you may lose the ability altogether. Try some scambled eggs, cream of wheat made with water with hot milk, honey and butter over it, yogurt, rare lamb chops with mint jelly, rare steak, prime rib, lobster, veggies that contain lots of water. Avoid anything with vinegar. I don't remember when I could handle citrus. I think it burned.
Once you get a little energy, you need to take short walks to keep the muscles going. You do not want to lose muscle mass through lack of exercise.
Attitude is very important in recovering from this so try to get control of this despression you seem to have. Take meds if that is what you need. You need to channel all your energy towards getting better and the sooner you start getting some real food and liquids down your throat regardless of how crappy (how do you know what dog crap tastes like anyway or did you ask Zack?) it tastes, the quicker you may feel better. Did they put you on Zinc or other supplements when they sent you home? They gave me Zinc, Vit C, and a multivitiman after rads.
Guiafenex really helped with the mucous. Tablets were huge and difficult to swallow. Maybe comes in a liquid.
Take care, Eileen
---------------------- Aug 1997 unknown primary, Stage III mets to 1 lymph node in neck; rt ND, 36 XRT rad Aug 2001 tiny tumor on larynx, Stage I total laryngectomy; left ND June 5, 2010 dx early stage breast cancer June 9, 2011 SCC 1.5 cm hypo pharynx, 70% P-16 positive, no mets, Stage I
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#46057 10-14-2005 02:06 PM | Joined: Jun 2005 Posts: 349 Likes: 2 Platinum Member (300+ posts) | OP Platinum Member (300+ posts) Joined: Jun 2005 Posts: 349 Likes: 2 | Today I ate 1/2 of a grilled cheese (with the crust removed:), and a few spoons of cheriors, plus about 16oz of malted shake. So, slowly...S-L-O-W-L-Y...getting better. Phlegm is still overwhelming, and I spent most of the day in bed again. (God, how much Oprah can one possibly watch!!?? Anyway there is light at the end of the tunnel...(Or, maybe it's the headlight on a freight train barrelling towards me:)
Michael | 53 | SCC | Right Tonsil | Dx'd: 06-10-05 | STAGE IV, T3N2bM0 | 3 Nodes R Side | MRND & Tonsillectomy 06/29/05 Dr Fee/Stanford | 8 wks Rad/Chemo startd August 15th @ MSKCC, NY | Tx Ended: 09-27-05 | Cancer free at 16+ Yrs | After-Effects of Tx: Thyroid function is 0, ok salivary function, tinnitus, some scars, neck/face asymmetry, gastric reflux. 2017 dysphagia, L Carotid stent / 2019, R Carotid occluded not eligible for stent.2022 dental issues, possible ORN, memory/recall challenges.
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#46058 10-14-2005 11:12 PM | Joined: Aug 2005 Posts: 44 Contributing Member (25+ posts) | Contributing Member (25+ posts) Joined: Aug 2005 Posts: 44 | LOL Michael,
You are doing so well!!! Keeping the humor is great with the healing. I can understand about the watching!! It can be overwhelming at times but it sounds like you are on the right road.
I bet if you look back a month ago you wouldn't believe how far you have come. It does get better with time. Just continue on posting!! We all like to hear from you!!!
Love Terry
Terry | 42 female| base of tongue w/swollen lymph nodes | Dx'd-Feb 05 | Stage IVA T2N2M0 | radiation/chemo 8 weeks finished 3rd week May/05 | bilateral neck dissection 9/2/05 45 nodes all neg.
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#46059 10-15-2005 01:16 AM | Joined: Jan 2004 Posts: 1,116 Patient Advocate (1000+ posts) | Patient Advocate (1000+ posts) Joined: Jan 2004 Posts: 1,116 | Michael, you are cracking me up! Thank God for a sense of humor! You are doing great, keep up the good work. Take Care and Hi to Seth, Carol
Diagnosed May 2002 with Stage IV tongue cancer, two lymph nodes positive. Surgery to remove 1/2 tongue, neck dissection, 35 radiation treatments. 11/2007, diagnosed with cancer of soft palate, surgery 12/14/07, jaw split. 3/24/10, cancer on tongue behind flap, need petscan, surgery scheduled 4/16/10 ---update passed away 8-27-11---
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#46060 10-15-2005 05:32 AM | Joined: Jul 2005 Posts: 54 Supporting Member (50+ posts) | Supporting Member (50+ posts) Joined: Jul 2005 Posts: 54 | Michael, Nice to hear of your progress. Hope springs eternal! Nice to follow Barry's and your progress as John progresses along the same time frame. I wish he would get on this forum but he tends to go things alone. I think he likes me to update him though on how you are doing. (He's a bit competitive being a basketball coach and I use you guys to motivate him - "Michael's trying this or Barry's trying that!" We are going for almost daily walks and he is starting to eat more. Sounds like your depression is easing up a bit with that humor of yours. I expect it will ebb and flow as you guys and we caregivers process what just happened to our lives. It's hard to go on to the next chapter of a book when we feel we haven't finished the previous one. But I guess life is made up of a lot of chapters. Take care of yourself and Seth, Janet
Caregiver, Husband diagnosed 7/6/05 SCC left tonsil, T2N2bM0, Concurrent chemo/radiation begun 8/2/05 (Cisplatin). Received 2 cycles cisplatin, 38 radiation treatments. Completed course 9/27/05.
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#46061 10-15-2005 03:57 PM | Joined: Apr 2005 Posts: 2,676 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Apr 2005 Posts: 2,676 | Hi,Michael I could send you Elli for a while- We watch Dora the Explorer, the Wiggles, and Winnie the Pooh from 6:00am till 7am breakfast time. Might give you something to look forward to each morning. Also, try putting together a list of all the movies you want to see again, and newer ones that you've missed and go rent them. Fix a big bowl of angel hair pasta soaked in a luscious sauce and settle in. Seth may refuse to plump the pillows at some point, "but what the hey." You need to eat,rest,eat,move around a little,eat,rest. Amy
CGtoJohn:SCC Flr of Mouth.Dx 3\05. Surg.4\05.T3NOMO.IMRTx30. Recur Dx 1\06.Surg 2\06. Chemo: 4 Cycles of Carbo\Taxol:on Erbitux for 7 mo. Lost our battle 2-23-07- But not the will to fight this disease
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