#43102 04-04-2004 05:23 AM | Joined: Sep 2003 Posts: 1,244 Patient Advocate (1000+ posts) | OP  Patient Advocate (1000+ posts)
Joined: Sep 2003 Posts: 1,244 | Hi all
On Tuesday I go for more biopsies.. should have been this week but our health service works in mysterious ways... BUT thanks to you guys I was not prepared to accept the end of April as was suggested... I have been subjected to the "Watching and Waiting" game with monthly checks but I have had to insist that I'm watching better than they are... So I will be glad when Tuesday is done.. but how I will get through the next 10 days waiting for the results is anyone's guess... so I guess you will be hearing a lot more from me if my nerves give out... Thanks for all your past support and I know you are all there for me should I need you..
Love and Hugs
Helen
SCC Base of tongue, (TISN0M0) laser surgery, 10/01 and 05/03 no clear margins. Radial free flap graft to tonsil pillar, partial glossectomy, left neck dissection 08/04
| | | 
#43103 04-04-2004 01:32 PM | Joined: Dec 2003 Posts: 116 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: Dec 2003 Posts: 116 | Girl, you let out a scream any time you want. I owe you!
Love,
Christine
Wife of Scott: SCC, Stage I retromolar 10/02--33 rad; recurrence 10/03--Docetaxol, 5FU, Cisplatin; 1/04 radical right neck, hard palate, right tonsil; recurrence 2/04--mets to skin and neck; Xeloda and palliative care 3/04-4/04; died 5/01/04.
| | |
#43104 04-04-2004 03:33 PM | Joined: Dec 2003 Posts: 2,606 Likes: 2 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | Helen,
Wishing you the best on your biopsies! I agree it is rough waiting for results of various tests. My otolaryngologist is the bomb. He has me do PET scans in the morning and has me bring the films to the appointments and has the radiologist do his report before the appointment. I don't know how he makes the schedule work but it sure makes the waiting so much easier. The last round my wife asked me if I was staying up all night studying for my tests when she noticed I was not sleeping the night before. She's the greatest!
Ed
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
| | |
#43105 04-05-2004 08:07 AM | Joined: Apr 2004 Posts: 143 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: Apr 2004 Posts: 143 | You know I`am here Girlfriend. have the biopsies, win the lottery and come on over and we`ll do our Thelma and Louise deal..........you may drive, will be more fun on the wrong side of the road. I`ve got the convertible. We do need a hunk, like Brad Pitt.......but my personal choice is Billy Bob Thornton, but I`m not sharing him, you`ll have to get your own..........anyhow, you know i`ll be thinking of you tomorrow......as everyone here knows, waiting makes me crazier than usual.......Love and Hugs, Dee | | |
#43106 04-05-2004 08:24 AM | Joined: Sep 2003 Posts: 1,244 Patient Advocate (1000+ posts) | | OP Patient Advocate (1000+ posts)
Joined: Sep 2003 Posts: 1,244 | Hi All
Many thanks makes the hanging from the ceiling bearable knowing you are all with me... Know I souldn't BUT am hve 3 glasses red wine need some sleep tonight... Hope to be back home tommorrow..
Love and Hugs to you all
Helen
SCC Base of tongue, (TISN0M0) laser surgery, 10/01 and 05/03 no clear margins. Radial free flap graft to tonsil pillar, partial glossectomy, left neck dissection 08/04
| | |
#43107 04-06-2004 07:06 AM | Joined: Sep 2003 Posts: 1,244 Patient Advocate (1000+ posts) | | OP Patient Advocate (1000+ posts)
Joined: Sep 2003 Posts: 1,244 | Hi All
Am just back 12 hours at the hospital... one biopsy base of tongue... one joint of tongue and throat... and they have had a good poke around... sore but just able to talk... So now 13 days to test results... who needs easter holidays...
Thanks all
Helen
SCC Base of tongue, (TISN0M0) laser surgery, 10/01 and 05/03 no clear margins. Radial free flap graft to tonsil pillar, partial glossectomy, left neck dissection 08/04
| | |
| Forums23 Topics18,168 Posts196,925 Members13,104 | | Most Online458
Jan 16th, 2020 | | |
|
