#42859 11-02-2003 02:28 PM | Joined: Aug 2002 Posts: 246 Platinum Member (200+ posts) | OP  Platinum Member (200+ posts)
Joined: Aug 2002 Posts: 246 | Hi Everyone:
Okay, so Frank is indeed a hard man to find but after a few attempts, Dave and I found him tonight and had a great visit.
Packer is as Packer always is-witty, upbeat, and giving the thumbs up high sign at the mention of his friends at OCF.
Frank is getting through radiation well and says he has some mouth pain but is mostly feeling tired. He does have some facial and eye swelling but that didn't stop the twinkle I remembered so well from the last time we met. We didn't take it too personally when he started to doze off while we were speaking. I told Dave his nasal British accent must have that effect on people.
I let Frank know that his OCF family is sending him good thoughts and pulling for him and he was very appreciative. He says thanks for the cards and he LOVED the Green Bay Packer book Dan sent so kudos to you for a good choice!
Dee will be joining us here in Boston on Thursday so we hope to get to see her too. In the meantime, please keep the cards for Frank coming. Anyone who missed the address can e-mail me and I will forward. For those that inquired about the zip code, it is 02445.
Today was good-I feel so lucky to be part of this group. Dave has a check-up tomorrow and will be on the receiving end of the ever popular scope. Since I'm not known to be less than an anxious wreck, I feel perfectly comfortable asking you all to send calming thoughts my way and clean scope findings Dave's way.
Kim
kcdc
Wife of Dave,diagnosed with Stage III Tonsillar SCC,August '02
Modified radical neck dissection followed by radiation therapy
'There is glory and radiance in the darkness and to see we have only to look"
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#42860 11-03-2003 06:31 AM | Joined: Jul 2003 Posts: 1,163 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jul 2003 Posts: 1,163 | Hi Kim,
My thoughts are with you and Dave for a great check up. I wanted to thank you for delivering the Ray Nitchkie book to Packer for me. I only hope he enjoys the book as much as I enjoyed sending it to him. You have to let me know what kind of cheese you like so I can send you some of Wisconsin's finest. My email should be up and running by about 3pm today. I have a Road Runner Tech coming over to set it up on the new computer, I an electronicaly challanged when it comes to hooking these new fangled gadgets up, My wife used to put all the kids toys together when they were were little. Take Care and I am sure Dave is going to have a great check-up.
Danny Boy
Daniel Bogan DX 7/16/03 Right tonsil,SCC T4NOMO. right side neck disection, IMRT Radiation x 33.
Recurrance in June 05 in right tonsil area. Now receiving palliative chemo (Erbitux) starting 3/9/06
Our good friend and loved member of the forum has passed away RIP Dannyboy 7-16-2006
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#42861 11-03-2003 09:50 AM | Joined: Oct 2003 Posts: 25 Contributing Member (25+ posts) | | Contributing Member (25+ posts)
Joined: Oct 2003 Posts: 25 | Hey Danny:
Just finished my second chemo treatment and starting my second week of RAD, my mouth hurts like hell because of trush (doc says a little soon for this!) and I go to the site and all I read about are the Packers.Next Monday night my Eagles visit your shrine! Can I get some action - Philadelphia Cheese Steak for a nice wedge of that fine Wisconsin chedder!
SCC base of tongue,T1N1M0, Rad & Chemo, treatment ended 12/11/2003
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#42862 11-03-2003 12:17 PM | Joined: Jul 2003 Posts: 1,163 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jul 2003 Posts: 1,163 | Hi Len,
You have a wager!!!! Did you see the Sunday night game? The Pack played well against the Vikings which no doubt helped your Eagles. I always liked Andy Reid, Kind of a throwback in time kind of guy. We will have our hands full against the Eagels. What is thrush? I sure hope you have few side effects during your treatment. Are you having IMRT?
Also I wanted to thank you for Reggie White.
I'll have to wait for the Philly steak until I can eat again>
Good luck to you Len, Your friend, Dan
Daniel Bogan DX 7/16/03 Right tonsil,SCC T4NOMO. right side neck disection, IMRT Radiation x 33.
Recurrance in June 05 in right tonsil area. Now receiving palliative chemo (Erbitux) starting 3/9/06
Our good friend and loved member of the forum has passed away RIP Dannyboy 7-16-2006
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#42863 11-03-2003 01:50 PM | Joined: Oct 2003 Posts: 25 Contributing Member (25+ posts) | | Contributing Member (25+ posts)
Joined: Oct 2003 Posts: 25 | Dan
I couldn't eat the cheese right now so don't feel bad about the steak. The Pack looked great last night - but I don't expect a letdown on Monday night at home. I can only hope for a big spread! Thrush as I understand it has several names but it is a fungus infection and I am getting meds to treat it. I am not getting IMRT as it is not the standard treatment at this particular cancer center here in Philadelphia. We will figure out an appropiate wager reward. Take care.
SCC base of tongue,T1N1M0, Rad & Chemo, treatment ended 12/11/2003
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#42864 11-09-2003 07:56 AM | Joined: Jun 2002 Posts: 206 Platinum Member (200+ posts) | | Platinum Member (200+ posts)
Joined: Jun 2002 Posts: 206 | Sorry about Packer, How is he doing. What kind of cancer did they find this time and my prayers are with him.
Cathy
Cathy
SCCA Stage IV diagnosed 01/90
base of tongue with 1/2 removed.
With neck resection, radiation and chemo
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#42865 11-11-2003 01:56 AM | | Anonymous Unregistered | | Anonymous Unregistered
| Kim & Dee,
Please give Packer my best...I hope the card I sent folowed him or got there before he switched locations.
This is a drrice by post - I'm hitting the road again after infusion this morning.
Thak you Kim for keeping up the status reports.
Dinah | | | 
#42866 11-17-2003 03:14 AM | Joined: Apr 2002 Posts: 273 Platinum Member (200+ posts) | | Platinum Member (200+ posts)
Joined: Apr 2002 Posts: 273 | OK, I always said I was too evil to get sick, ha, I`ve had the worst throat since probably 6th grade.......then the computer shut down on me......then I couldn`t get any sound on my TV, and just got a2200 dollar cell phone bill, so, I`ved whined enough...Franks doc is pleased with his progress, he should be done this week.......I want to thank each and everyone of you for your cards and support. Frank`s cards that went to Beth Israel. Love and Hugs to All | | |
#42867 11-17-2003 03:46 AM | Joined: Aug 2003 Posts: 1,627 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Aug 2003 Posts: 1,627 | Dee,
What part of Maine do you live in? I spent my first 28 years in Maine, Bangor area. My mother and sister still live in Pembroke and I come every year for the 4th of July celebration in Eastport. Glad to hear that Packer is doing well.
Minnie
SCC Left Mandible. Jaw replaced with bone from leg. Neck disection, 37 radiation treatments. Recurrence 8-28-07, stage 2, tongue. One third of tongue removed 10-4-07. 5-23-08 chemo started for tumor behind swallowing passage, Our good friend and much loved OCF member Minnie has been lost to the disease (RIP 10-29-08). We will all miss her greatly.
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#42868 11-17-2003 06:17 AM | Joined: Sep 2003 Posts: 1,244 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Sep 2003 Posts: 1,244 | Hi Dee
Thanks for your post, nice to hear how things are going, even if they are more crazy than ever, still that's what makes our lives interesting!!
Give my best wishes to Frank, take care of yourself Dee.
Love and hugs Helen
SCC Base of tongue, (TISN0M0) laser surgery, 10/01 and 05/03 no clear margins. Radial free flap graft to tonsil pillar, partial glossectomy, left neck dissection 08/04
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