#4154 10-25-2004 02:10 AM | Joined: Apr 2002 Posts: 80 Likes: 1 Senior Member (75+ posts) |  Senior Member (75+ posts)
Joined: Apr 2002 Posts: 80 Likes: 1 | Danny
Good decision it's good to know you are getting what you need at home. My prayers are with you and your family.
JOAN
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#4155 10-25-2004 04:15 AM | Joined: Jul 2003 Posts: 382 Likes: 3 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Jul 2003 Posts: 382 Likes: 3 | Dan-
Looks like you made a good decision! Your home town docs have got you on the best possible treatment! And thanks for the information on costs at MDACC. It puts into perspective the reality of cancer care and has helped me know what my limits are in future care possibilities. We are with you and will be praying for you and your lovely family. Kick the beast!!! Love, Kris
SCC Stage IV left tonsil neck disection 3/02 radiation finished 6/02 chemo finished 9/02
Stage 2A left breast cancer 3/09, chemo and radiation, finished treatment 2/7/10 -Stage 2 right beast cancer 10/14 chemo and radiation
Every day is still a gift :-)
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#4156 10-25-2004 06:02 AM | Joined: May 2002 Posts: 2,152 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: May 2002 Posts: 2,152 | Danny,
That is good news. You now know from the 'big boys' that you are getting the correct treatment and the damn thing hasn't spread anyplace else. That alone would be reassuring for me. Let's hope the next MRI shows that it has shrunk some more. You can always go to MD Anderson in the future if things change. And if you went for a consult,you don't necessarily have to have the treatment there, you might be able to have it at a hospital where you are covered.
Good luck on your next round of therapy and hope you are eating well. Think you made a good decision for now.
Take care,
Eileen
----------------------
Aug 1997 unknown primary, Stage III
mets to 1 lymph node in neck; rt ND, 36 XRT rad
Aug 2001 tiny tumor on larynx, Stage I total laryngectomy; left ND
June 5, 2010 dx early stage breast cancer
June 9, 2011 SCC 1.5 cm hypo pharynx, 70% P-16 positive, no mets, Stage I
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#4157 10-25-2004 08:50 AM | Joined: Feb 2004 Posts: 162 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: Feb 2004 Posts: 162 | I was at M. D. Anderson myself last week enduring the ol' scope & choke routine as part of a follow up with my radiation oncologist and thought about you, Danny. First, I'm glad that your current treatment is holding the beast at bay. This is good news. Second, I think your decision to forego your M. D. Anderson appointment was a wise one. There's no sense in throwing that much money at a consultation that will only confirm the correctness of what you are already doing right now.
-Brett
Base of Tongue SCC. Stage IV, T1N2bM0. Diagnosed 25 July 2003.
Treated with 6 weeks induction chemo -- Taxol & Carboplatin once a week followed with 30 fractions IMRT, 10 fields per fraction over 6 more weeks. Recurrence October 2005.
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#4158 10-25-2004 01:06 PM | Joined: Sep 2003 Posts: 153 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: Sep 2003 Posts: 153 | hey Danny,
fine treatment at home is worth its weight in grins.
it's even better when all the advice agrees because it elevates your piece of mind.
be cool dude,
cu,
larryb | | |
#4159 10-26-2004 05:13 AM | Joined: Dec 2003 Posts: 2,606 Likes: 2 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | Danny Boy,
As everyone says, your decision will be supported by all of us here.
Another important thing for all of us to remember, thanks to you, is that we can send all of our stuff to someplace like MDACC and get a second opinion poste haste when needed. Many believe to do this you must go there and be seen but with all your leg work in advance, your second opinion was rendered without a moment away from home. I am praying for miracles in your path above and beyond those that have already happened.
I love you, bro.
Ed
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
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#4160 10-26-2004 02:23 PM | Joined: Jul 2003 Posts: 235 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: Jul 2003 Posts: 235 | Danny,
You're doing the right thing, and the good news is the report showed minimal change. As always, you're in my thoughts. Keep kickin' ass, Dan. I know you will. I'll talk w/you soon.
D
Mom's caregvr. DDS failed to dx 01/03. Dx Stg IV SCC 05/03. Induct. chemo, IMRT, 5FU, H, Iressa, Neck disect, radiation. Dad's caregvr. Dx 01/04 Ext. Stg SCLC. Mets to liver/bone 08/04. Died 11/12/04. Mom tongue CA dx 06/13, hemiglossectomy (80% removed) 08/13. Clean margins and nodes, but PNI. 6/15/15: Tongue CA at base of remnant tongue. Declined further tx; hospice.
Died 10/13/15. What a long and difficult journey.
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#4161 10-26-2004 06:00 PM | Joined: Feb 2004 Posts: 372 "Above & Beyond" Member (300+ posts) | | "Above & Beyond" Member (300+ posts)
Joined: Feb 2004 Posts: 372 | Hey Danny,
Great news about no growth! Praise God and as always my prayers are with you and your family!
Deb
Debbie - Caregiver for husband, Dan, diagnosed with tongue cancer 7/03. Partial gloss., mod. neck dissections, graft. Recurrence neck tumor 12/03. Radical left neck dissection 12/24/03-unable to get all the tumor. 8 weeks chemo/rad beginning 1/12/04.
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