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#40508 11-14-2006 03:00 AM
Joined: Apr 2006
Posts: 10
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Joined: Apr 2006
Posts: 10
Hello,

I was wondering if anyone out there has had SCC that has spread to other parts of their body? I am all clear in my head/neck, but I keep having tumors pop up in my lung(received radiation for that), that is clear, and now I have a tumor in my lymph node in my lat muscle and in my clavicle bone. They can't believe how fast they are spreading and growing. They are recommending more radiation with a combination of chemo. From what I have been reading, SCC is not responsive to the chemo. Has anyone else had this, and what worked for you? I am 36 years young, and not ready to throw in the towel just yet...

Thanks,
Joyce


Diagoned with SCC left lateral tongue 01/05: Partial left neck dissection, partial glossectomy. Lymph glands cleared. Reoccurence in June 05 on tongue base:radiation x33 plus chemo. Started treatment on my 35th birthday! On the road to recovery...
#40509 11-14-2006 06:39 PM
Joined: Apr 2005
Posts: 2,676
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Patient Advocate (old timer, 2000 posts)
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Patient Advocate (old timer, 2000 posts)

Joined: Apr 2005
Posts: 2,676
Joyce, When you are discussing additional therapy with your Doctors-ask about Erbitux and see what they say- it has helped my husband in controling the recurrant tumor growths. And good for you for not "throwing in the towel"! Amy


CGtoJohn:SCC Flr of Mouth.Dx 3\05. Surg.4\05.T3NOMO.IMRTx30. Recur Dx 1\06.Surg 2\06. Chemo: 4 Cycles of Carbo\Taxol:on Erbitux for 7 mo. Lost our battle 2-23-07- But not the will to fight this disease

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