#3943 10-03-2004 12:41 AM | | Anonymous Unregistered | | Anonymous Unregistered
| I haven't met any of you personally but I've talked on the phone to several of you. I'm Dinah's husband, Mike.
We lost Dinah early yesterday and my world is crashing in.
Dinah so loved this organization and cherished the friendships that she developed through this group.
Thank you for the friendship and love that you shared with Dinah and please don't ever let this wonderful support group stop.
Help Brian to maintain whatever is needed to keep this foundation working for the many people that so desperately seek help in this dread disease with your support ond friendship.
God Bless each of you.
Mike Warren | | |
#3944 10-03-2004 02:06 AM | Joined: Nov 2002 Posts: 458 Platinum Member (300+ posts) |  Platinum Member (300+ posts)
Joined: Nov 2002 Posts: 458 | Mike, although this news wasn't totally unexpected, it doesn't prepare us for the final news at all. Seems not that long ago Dinah and I were e-mailing back and forth about the get together in Vegas, and she was telling me she was heading to Bentonville for another visit with WM.
I hope she knew the success of the Vegas get together she helped plan, and with the sucess of that you can be rest assure that things will continue strong as ever. Dinah was really the person that found the venue, made the room arrangements, I was just the "money guy" and took over planning after she couldn't.
Dinah will be sorely missed by all of us, she was part of our "family."
Mike, you have our deepest sympathies, know that we're praying for you during this time.
Bob S
SCC Tongue, stage IV diagnosed Sept, 2002, 1st radical neck dissection left side in Sept, followed by RAD/Chemo. Discovered spread to right side nodes March 2003, second radical neck dissection April, followed by more RAD/Chemo.
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#3945 10-03-2004 02:51 AM | Joined: Jul 2003 Posts: 1,163 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jul 2003 Posts: 1,163 | Dear Mike,
You and your family have my deepest sympathies over the loss of Dianh. She touched many members in such a loving and caring way. It's diffucult to measure her contributions to this forum and it's members. She offered help and support to so many. My prayers are with you and your family.
Danny Boy
Daniel Bogan DX 7/16/03 Right tonsil,SCC T4NOMO. right side neck disection, IMRT Radiation x 33.
Recurrance in June 05 in right tonsil area. Now receiving palliative chemo (Erbitux) starting 3/9/06
Our good friend and loved member of the forum has passed away RIP Dannyboy 7-16-2006
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#3946 10-03-2004 04:29 AM | Joined: May 2003 Posts: 928 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: May 2003 Posts: 928 | Dear Mike
We are so sorry to hear this heartbreaking news.
Our deepest sympathies to you and your family.
Take Care
Marica
Caregiver to husband Pete, Dx 4/03 SCC Base of Tongue Stage IV. Chemo /Rad no surgery. Treatment finished 8/03. Doing great!
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#3947 10-03-2004 05:01 AM | Joined: Oct 2002 Posts: 546 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Oct 2002 Posts: 546 | Dear Mike,
I am so very sorry to hear such sad news. Dinah was one-of-a-kind, a true gem. Please know her memory will live on in the hearts of many. My sincerest sympathies to you and your family.
Rosie
Was primary caregiver to my daughter Heather who had stage IV base of tongue SCC w/ primary recurrence. Original diagnosis August 21st, 2002. Primary recurrence March 18th, 2003. Died October 6th, 2003.
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#3948 10-03-2004 05:28 AM | Joined: Apr 2004 Posts: 837 "Above & Beyond" Member (300+ posts) | | "Above & Beyond" Member (300+ posts)
Joined: Apr 2004 Posts: 837 | Mike,
I'm so sorry to hear this news, and my thoughts go out to you and your family. I've only been on this forum for a few months, but it became clear to me early on that Dinah was really part of the core of this group, even when she was going through difficult times.
Please know that we all wish you comfort and peace.
Cathy
Tongue SCC (T2M0N0), poorly differentiated, diagnosed 3/89, partial glossectomy and neck dissection 4/89, radiation from early June to late August 1989
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#3949 10-03-2004 09:27 AM | Joined: Sep 2003 Posts: 1,244 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Sep 2003 Posts: 1,244 | Mike
Everyone on this forum has become part of a global family, we have have lost a good friend, you have lost your world.
God Bless you Mike, you are in my prayers
Helen
SCC Base of tongue, (TISN0M0) laser surgery, 10/01 and 05/03 no clear margins. Radial free flap graft to tonsil pillar, partial glossectomy, left neck dissection 08/04
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#3950 10-03-2004 09:35 AM | Joined: May 2003 Posts: 39 Contributing Member (25+ posts) | | Contributing Member (25+ posts)
Joined: May 2003 Posts: 39 | Mike,
I am so sorry for your loss. Dinah gave me lots of encouragement in taking care of my friend. I am eternally grateful for the time she took to help me. She made a difference and I will never forget her.
Jack
Caregiver to Eric
Squamous Cell Carcinoma, L. Tonsil
Stage 3 (T2-N1-M0)
5 Years Cancer Free Now
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#3951 10-03-2004 11:18 AM | Joined: Dec 2003 Posts: 528 "OCF Down Under" "Above & Beyond" Member (500+ posts) | | "OCF Down Under" "Above & Beyond" Member (500+ posts)
Joined: Dec 2003 Posts: 528 | Dear Mike
Dinah offered so much love and support to this forum. You and your family are in my heart.
With love from Helen
RHTonsil SCC Stage IV tx completed May 03
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#3952 10-03-2004 11:39 AM | Joined: Sep 2003 Posts: 139 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: Sep 2003 Posts: 139 | Dear Mike,
I am so sorry to hear about Dinah's death. We always hope for miracles and she, if anyone, deserved one. Our love and support to you.
God bless
Judy U
Judy U
Stage I SCC floor of mouth, left radical neck dissection 8/03
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#3953 10-03-2004 11:49 AM | Joined: Aug 2004 Posts: 217 Platinum Member (200+ posts) | | Platinum Member (200+ posts)
Joined: Aug 2004 Posts: 217 | Dear Mike,
Dinah's story filled me with hope when this disease hit my family and I was searching for positive thoughts. I am saddened for you and your family - and for all of us - because of her passing.
God loves you - trust him to help you through this.
With deepest sympathies -
Nicki
Nicki, wife of Thomas
dx July 2004, SCC, Stage 4 Tonsil. Tx begun 8/4/04. Cisplatin/Xeloda x 4; IMRT 7 wks, 8/7 - 10/25/04 Modified Radical Dissection (right), Selective Dissection (Left) 12/10/04.
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#3954 10-03-2004 12:20 PM | Joined: Apr 2004 Posts: 482 "Above & Beyond" Member (300+ posts) | | "Above & Beyond" Member (300+ posts)
Joined: Apr 2004 Posts: 482 | Dear Mike, Sorry to hear of your loss. My prayers for Dinah and you and your family. We will miss her.
Regards, Kirk Georgia
Stage IV, T1N2aM0, right tonsil primary, Tonsilectomy 11/03, 35 rad/3cisplatin chemo, right neck dissection 1/04 - 5/04.
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#3955 10-03-2004 01:53 PM | Joined: Feb 2004 Posts: 372 "Above & Beyond" Member (300+ posts) | | "Above & Beyond" Member (300+ posts)
Joined: Feb 2004 Posts: 372 | Dear Mike,
I am so sorry and saddened by Dinah's passing. My prayers are with you as you try and work thru this terrible tragedy. She will be sorely missed especially by all on this board.
God bless,
Debbieb
Debbie - Caregiver for husband, Dan, diagnosed with tongue cancer 7/03. Partial gloss., mod. neck dissections, graft. Recurrence neck tumor 12/03. Radical left neck dissection 12/24/03-unable to get all the tumor. 8 weeks chemo/rad beginning 1/12/04.
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#3956 10-03-2004 02:15 PM | Joined: Apr 2003 Posts: 30 Contributing Member (25+ posts) | | Contributing Member (25+ posts)
Joined: Apr 2003 Posts: 30 | Mike, so sorry for your lost. She had big shoulders when others needed her help. She will be missed.
Take care, Becky | | |
#3957 10-03-2004 03:46 PM | Joined: Dec 2003 Posts: 2,606 Likes: 2 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | Mike,
I am so sorry for the pain you are experiencing right now with Dinah's passing. She was truly a wonderful person and so generous with her time and compassion for others. The magic she worked to get all the Vegas planning underway was so appreciated. I know the road you both traveled has been a rough one and you both are real warriors in your battles with this horrible disease.
I am praying for God to deliver Dinah into His arms and to provide you with comfort and peace. My deepest sympathies to you.
With Love,
Ed
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
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#3958 10-03-2004 11:16 PM | Joined: Sep 2003 Posts: 30 Contributing Member (25+ posts) | | Contributing Member (25+ posts)
Joined: Sep 2003 Posts: 30 | Dear Mike,
I'm so sorry for your loss. My prayers and thoughts are with you and your family. Mary O. | | |
#3959 10-04-2004 02:17 AM | Joined: Aug 2003 Posts: 1,627 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Aug 2003 Posts: 1,627 | Dinah was always so good and kind to me. The world is less bright without her.
Minnie
SCC Left Mandible. Jaw replaced with bone from leg. Neck disection, 37 radiation treatments. Recurrence 8-28-07, stage 2, tongue. One third of tongue removed 10-4-07. 5-23-08 chemo started for tumor behind swallowing passage, Our good friend and much loved OCF member Minnie has been lost to the disease (RIP 10-29-08). We will all miss her greatly.
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#3960 10-04-2004 04:12 AM | Joined: Jul 2003 Posts: 382 Likes: 3 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Jul 2003 Posts: 382 Likes: 3 | Mike-
Words can't express the love everyone felt for Dinah. She had so much compasion and heart to share. My prayers are with you and your family. - Kris
SCC Stage IV left tonsil neck disection 3/02 radiation finished 6/02 chemo finished 9/02
Stage 2A left breast cancer 3/09, chemo and radiation, finished treatment 2/7/10 -Stage 2 right beast cancer 10/14 chemo and radiation
Every day is still a gift :-)
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#3961 10-04-2004 06:24 AM | Joined: Feb 2004 Posts: 162 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: Feb 2004 Posts: 162 | Mike,
I am so sorry for your loss.
Best wishes,
-Brett
Base of Tongue SCC. Stage IV, T1N2bM0. Diagnosed 25 July 2003.
Treated with 6 weeks induction chemo -- Taxol & Carboplatin once a week followed with 30 fractions IMRT, 10 fields per fraction over 6 more weeks. Recurrence October 2005.
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#3962 10-04-2004 06:53 AM | Joined: May 2002 Posts: 2,152 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: May 2002 Posts: 2,152 | Mike,
Dinah gave so much of herself to anyone who needed help. She will truly be remembered by all whose hearts she touched. My deepest sympathies to you and your family.
Take cate,
Eileen
----------------------
Aug 1997 unknown primary, Stage III
mets to 1 lymph node in neck; rt ND, 36 XRT rad
Aug 2001 tiny tumor on larynx, Stage I total laryngectomy; left ND
June 5, 2010 dx early stage breast cancer
June 9, 2011 SCC 1.5 cm hypo pharynx, 70% P-16 positive, no mets, Stage I
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#3963 10-04-2004 07:31 AM | Joined: Oct 2003 Posts: 49 Contributing Member (25+ posts) | | Contributing Member (25+ posts)
Joined: Oct 2003 Posts: 49 | Please accept my condolences and my prayers for you and your family.
5-02 SCC T1N1M0 Stage 3 Right Tonsil
6-02 Right Radical Neck Disection
9-03 Recurrent SCC Dx Stage 4 unknown prim
12-03 7 Chemo
12-03 36 Rad
5-04 Left Upper Lung Wedge Resection neg
7-04 Right Parotidectomy
9-04 Began IMRT
10-04 Ended IMRT
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#3964 10-04-2004 09:37 AM | Joined: Mar 2002 Posts: 102 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Mar 2002 Posts: 102 | I will keep you and your family in my prayers!
Julie
Wife to Kelly
SSC tonsil Stage IV
July 2000
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#3965 10-04-2004 09:37 AM | Joined: Mar 2002 Posts: 102 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Mar 2002 Posts: 102 | I will keep you and your family in my prayers!
Julie
Wife to Kelly
SSC tonsil Stage IV
July 2000
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#3966 10-04-2004 10:25 PM | Joined: Aug 2003 Posts: 71 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Aug 2003 Posts: 71 | Mike-
I'm very sadden to hear the news about Dinah's passing...the only consolation is that she is now in better hands and out of any pain & suffering. She was a true Angel to everyone on this site. She will be missed by all. You and your family are in my prayers. Remember you are always welcome here...we always send internet hugs.
Lorie
Lorie/wife of Don, DX:8-7-03, Tonsil cancer left side stage III, IMRT x 35, 6 chemo (Cisplatin/Taxol), clear CT Scan 12-26-2003. Mets to both lungs & AML 11-6-05, mets to brain Jan 2006, mets to liver & bones April 2006, passed away July 20, 2006.
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#3967 10-05-2004 09:21 AM | Joined: Sep 2002 Posts: 642 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Sep 2002 Posts: 642 | Mike,
I am so sorry for your loss. Two years ago when I was in need of help and first discovered this forum, Dinah was one of the very first people to befriend me and offer love and support. I am very grateful for knowing her ( although only online and over the telephone ) and profoundly sad for your loss, and the loss to all of us.
Danny G.
Stage IV Base of Tongue SCC
Diagnosed July 1, 2002, chemo and radiation treatments completed beginning of Sept/02.
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#3968 10-05-2004 01:00 PM | Joined: Mar 2003 Posts: 1,384 Likes: 1 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Mar 2003 Posts: 1,384 Likes: 1 | Dear Mike......
Several times I have tried to come up with the words.... and have not been able.
Please know that your loss is deeply felt. I hope you are able to feel the support and love of all.
Mark, 21 Year survivor, SCC right tonsil, 3 nodes positive, one with extra-capsular spread. I never asked what stage (would have scared me anyway) Right side tonsillectomy, radical neck dissection right side, maximum radiation to both sides, no chemo, no PEG, age 40 when diagnosed.
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#3969 10-08-2004 11:49 AM | Joined: Jul 2003 Posts: 235 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: Jul 2003 Posts: 235 | Mike,
I'm so sorry. I had a chill run through me when I read your post. Dina made an impact on my life and I will never forget that. I wish you peace through this very difficult time.
D
Mom's caregvr. DDS failed to dx 01/03. Dx Stg IV SCC 05/03. Induct. chemo, IMRT, 5FU, H, Iressa, Neck disect, radiation. Dad's caregvr. Dx 01/04 Ext. Stg SCLC. Mets to liver/bone 08/04. Died 11/12/04. Mom tongue CA dx 06/13, hemiglossectomy (80% removed) 08/13. Clean margins and nodes, but PNI. 6/15/15: Tongue CA at base of remnant tongue. Declined further tx; hospice.
Died 10/13/15. What a long and difficult journey.
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