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#38542 05-16-2005 03:37 AM
Joined: Apr 2005
Posts: 2,219
Patient Advocate (old timer, 2000 posts)
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Patient Advocate (old timer, 2000 posts)

Joined: Apr 2005
Posts: 2,219
JENNIFER,

Good luck on the 23rd, my prayers will be with you.

I didn't have the good fortune of having found this group before my surgery. As you already know the support here is overwhelming. We really want to know how you are doing after the surgery.

Having just gone through this last month, I can tell you that for the first 10 days I didn't even want to go to the computer and for several days after, I only spent a short time checking emails each day. So it would be great if you could introduce a friend or relative to the site, so that they can keep us updated for you.

The waiting end of this is terrible. But, before you know it, the 23rd will be here. You have done everything you can and now it is up to the surgeon do his/her thing.

Good luck and beore you know it, you'll be on the mend.

Jerry


Jerry

Retired Dentist, 59 years old at diagnosis. SCC of the left lateral border of the tongue (Stage I). Partial glossectomy and 30 nodes removed, 4/6/05. Nodes all clear. No chemo no radiation 18 year survivor.

"Whatever doesn't kill me, makes me stronger"
#38543 05-17-2005 01:41 AM
Joined: Jan 2004
Posts: 1,116
Patient Advocate (1000+ posts)
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Patient Advocate (1000+ posts)

Joined: Jan 2004
Posts: 1,116
Jennifer, My thoughts and prayers are with you. You will do fine, you have an amazing attitude about all of this. God Bless you and your family. Love, Carol


Diagnosed May 2002 with Stage IV tongue cancer, two lymph nodes positive. Surgery to remove 1/2 tongue, neck dissection, 35 radiation treatments. 11/2007, diagnosed with cancer of soft palate, surgery 12/14/07, jaw split. 3/24/10, cancer on tongue behind flap, need petscan, surgery scheduled 4/16/10
---update passed away 8-27-11---
#38544 05-17-2005 04:53 AM
Joined: Apr 2005
Posts: 80
gillijl Offline OP
Senior Member (75+ posts)
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Joined: Apr 2005
Posts: 80
I just hope my attitude is good AFTER the surgery! :-) I bought a write/erase board last night. Actually, it's a Fisher Price one that has a little sliding knob to erase the board. I figured my kids could have it after I'm finished with it.

I've introduced a friend to the site since my husband can be website challenged. He has promised to update all of you after my surgery.

Thanks again for the well wishes and support. It really helps my resolve to beat this stuff and come back stronger than ever!! I will not forget how much you have helped me and that my experiences can help someone else get through this in the future.

Jennifer


Jennifer
Stage II (T2N0M0) SCC diag 4/21/05; partial glossectomy & selective neck dissection (good margins and lymyph nodes negative), jaw split, 1/3 of tongue removed, free flap from left forearm - 5/23/05; 42 years old at diagnosis
#38545 05-17-2005 08:46 AM
Joined: Apr 2005
Posts: 80
gillijl Offline OP
Senior Member (75+ posts)
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Senior Member (75+ posts)

Joined: Apr 2005
Posts: 80
Oh, I forgot to say thanks Helen, for the tip on the readplease.com website. I downloaded the free application, and it works GREAT! I think it will be very useful and my daughter will love playing with it. :-)

Jennifer


Jennifer
Stage II (T2N0M0) SCC diag 4/21/05; partial glossectomy & selective neck dissection (good margins and lymyph nodes negative), jaw split, 1/3 of tongue removed, free flap from left forearm - 5/23/05; 42 years old at diagnosis
#38546 05-17-2005 09:30 AM
Joined: Sep 2003
Posts: 1,244
Patient Advocate (1000+ posts)
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Patient Advocate (1000+ posts)

Joined: Sep 2003
Posts: 1,244
Jennifer
Remember when you wake up from your operation, say to yourself IT'S DONE, also remember they will not ask you to do anything that is not DOABLE. Will you be nil by mouth?, I was for 3wks, you have not mentioned a feeding tube.
Don't forget over the next few days, anything you want to ask however silly, please do so.
Email me if you need to..
Sunshine... love and hugs
Helen


SCC Base of tongue, (TISN0M0) laser surgery, 10/01 and 05/03 no clear margins. Radial free flap graft to tonsil pillar, partial glossectomy, left neck dissection 08/04
#38547 05-17-2005 11:58 AM
Joined: Mar 2004
Posts: 117
Gold Member (100+ posts)
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Joined: Mar 2004
Posts: 117
Jennifer,

Good luck with everything on the 23rd. I got my diagnosis on 5/23/01. I can't believe it has been two years already. I will pray for you and your family. You will get through this -- you may look back on it, shake your head and wonder how, but you will get through it. Please let us all know how you are doing.

I'll be thinking of you,

Barb


SCC tongue, stage I (T1N0M0), partial glossectomy and modified neck dissection 7/1/03
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