#38385 04-10-2005 01:00 AM | Joined: Feb 2004 Posts: 9 Member | OP Member Joined: Feb 2004 Posts: 9 | Hi all,
I have not posted for quite some time, but I do follow the board and check on what is going on. This morning a news headline caught my eye and I thought I would pass it along as it is pertinent to this site. "Scientists to Study Berries, Oral Cancer" was the headline from the Associated Press. I found it on adelphia.net under general news if anyone is interested in reading the article. It seems a trial is being started using a gel made of black raspberries that seems to slow the growth of oral lesions. My prayers are with each of you that are struggling this disease. Hope this may be of some use to someone. plk71 | | |
#38386 04-10-2005 05:13 AM | Joined: Feb 2005 Posts: 663 "Above & Beyond" Member (300+ posts) | "Above & Beyond" Member (300+ posts) Joined: Feb 2005 Posts: 663 | fascinating article. Wouldn't it be something if the prevention is as simple as eating a rasberry?
The only thing I wonder is why the test group and the control group are so small? Oh well, I will be interested to see what they com up with.
Thanks for sharing the article.
Cindy
Caregiver to ex-husband Harry. Dx 12/10/04 SCC stg 3, BOT with 2 nodes left side. No surg/chemo x4 /rad.x37(rad comp. 03/29/05)Cisplatin/5FU(comp. 05/07/05)-T1N2M0-(cancer free 06/14/05)-(12/10/06) 2 yr. Survivor!!!
| | |
#38387 04-10-2005 12:23 PM | Joined: May 2003 Posts: 928 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: May 2003 Posts: 928 | Hello PLK Thanks for taking the time to post. I am always interested in any new trials going on. Cheers Marica
Caregiver to husband Pete, Dx 4/03 SCC Base of Tongue Stage IV. Chemo /Rad no surgery. Treatment finished 8/03. Doing great!
| | |
#38388 04-10-2005 03:31 PM | Joined: Mar 2002 Posts: 4,912 Likes: 52 OCF Founder Patient Advocate (old timer, 2000 posts) | OCF Founder Patient Advocate (old timer, 2000 posts) Joined: Mar 2002 Posts: 4,912 Likes: 52 | You know if you check the oral cancer in the news link on the main OCF website, you would have found this article there.... Sheldon and I do a pretty good job of scanning the world of news from thousands of sources, to see that our news section is the most comprehensive one for oral caner related information out there.
Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant. | | |
#38389 04-10-2005 08:20 PM | Joined: Nov 2002 Posts: 3,552 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Nov 2002 Posts: 3,552 | Brian makes an excellent point. Many of the questions I frequently answer here have the information readliy available in even greater detail in the information pages in the OCF home and main pages.
Gary Allsebrook *********************************** Dx 11/22/02, SCC, 6 x 3 cm Polypoid tumor, rt tonsil, Stage III/IVA, T3N0M0 G1/2 Tx 1/28/03 - 3/19/03, Cisplatin ct x2, IMRT, bilateral, with boost, x35(69.96Gy) ________________________________________________________ "You are a mist that appears for a little while and then vanishes" (James 4:14 NIV)
| | |
#38390 04-11-2005 12:54 AM | Joined: Feb 2004 Posts: 9 Member | OP Member Joined: Feb 2004 Posts: 9 | Brian and Sheldon: To be quite honest, I did not know that there is a news link on the site. It was just something that caught my eye, and made me think of this website. I'm sure it is quite frustrating for you to go to all the work of sorting through news stories and posting them and then have someone like myself come along and post it again. I apologize for my ignorance and thank you so much for all that you do. Hopefully my faux pas, as it was, will lead more people to search the site more in depth and make use of the wealth of information you have made available. | | |
#38391 04-11-2005 03:13 AM | Joined: Aug 2003 Posts: 1,627 Patient Advocate (1000+ posts) | Patient Advocate (1000+ posts) Joined: Aug 2003 Posts: 1,627 | PLK71, I don't think Brian or anyone meant to make you feel bad about posting to tell us about the article. Shoot, it took me months to find the wealth of knowledge this website has. No error on your part. Minnie
SCC Left Mandible. Jaw replaced with bone from leg. Neck disection, 37 radiation treatments. Recurrence 8-28-07, stage 2, tongue. One third of tongue removed 10-4-07. 5-23-08 chemo started for tumor behind swallowing passage, Our good friend and much loved OCF member Minnie has been lost to the disease (RIP 10-29-08). We will all miss her greatly.
| | |
#38392 04-11-2005 05:58 AM | Joined: Feb 2004 Posts: 9 Member | OP Member Joined: Feb 2004 Posts: 9 | I seem to get better all the time at putting my foot in my mouth. I did not mean to imply that Brian was trying to or making me feel bad. In my zeal to share something that I had learned, I didn't stop to think that the very capable folks who are "in charge" here would have already made this info available. I know how hard Brian works and what a wonderful advocate he is. I hate to think that I have taken for granted anything that he has done/is doing. I do feel bad that he and Sheldon took their time to sort through all that is "out there" and I paid no attention to it. And then more of Brian's time was taken up to point out that this and MUCH more was already available here. As I said, I am sure it is frustrating to spend time and energy gathering all this info, putting it at our fingertips and then have it not be used. I will tell you one good thing that has come from this, I have searched this site much more thoroughly and found tons of info. Maybe others will be prompted to do so as well. | | |
#38393 04-11-2005 06:17 AM | Joined: Nov 2002 Posts: 3,552 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Nov 2002 Posts: 3,552 | Plk71, don't feel bad - I do it all the time myself. And Brian has pointed that out to me also. I do explore other areas of the site a lot more now as there is a wealth of information and it is constantly changing and evolving. That's the reason why we both mentioned it - not to emabarrass you but to draw attention to the information that is out there.
Gary Allsebrook *********************************** Dx 11/22/02, SCC, 6 x 3 cm Polypoid tumor, rt tonsil, Stage III/IVA, T3N0M0 G1/2 Tx 1/28/03 - 3/19/03, Cisplatin ct x2, IMRT, bilateral, with boost, x35(69.96Gy) ________________________________________________________ "You are a mist that appears for a little while and then vanishes" (James 4:14 NIV)
| | |
#38394 04-11-2005 06:39 AM | Joined: Jan 2005 Posts: 56 Supporting Member (50+ posts) | Supporting Member (50+ posts) Joined: Jan 2005 Posts: 56 | plk71: if you feel bad, I guess I better bury my head in the sand for sure! I'm doing better now at pulling info up on the site, but it wasn't an easy site to navigate, especially in the beginning.....I'm sure the same would be true if you hadn't been out here in awhile! Some of us that don't have the time to sit at the computer and search appreciate getting this info quickly from other members, so for that I thank you!
There has also been quite a bit of research done on Muscadine grape extract as a nutritional supplement with substantial anti-oxident properties. The research shows where it has helped current cancer patients. Several of the docs from Bowman-Gray are involved in this and the documentation on it is pretty thorough. I'm sure there is more info on the OCF site re: this research, but if you are pressed for time and would like some more info on it, pls email me and I would be happy to forward it. I'm a huge fan of Western medicine, and am a bit hesitant on alternative treatments, but this one does come with good scientific research results. Thanks, and have a great day!
Michelle
| | |
#38395 04-11-2005 06:17 PM | Joined: Mar 2002 Posts: 4,912 Likes: 52 OCF Founder Patient Advocate (old timer, 2000 posts) | OCF Founder Patient Advocate (old timer, 2000 posts) Joined: Mar 2002 Posts: 4,912 Likes: 52 | Guys.... Please!! Don't walk so delicately! As new members come to the board, they ALWAYS ask first and explore later. They have a sense of urgency, and we all get that. I only put up the post to let people know that the site changes every week. This comment was mostly for the new posters and was said without frustration or any of that
Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant. | | |
#38396 04-11-2005 07:23 PM | Joined: Apr 2005 Posts: 27 Contributing Member (25+ posts) | Contributing Member (25+ posts) Joined: Apr 2005 Posts: 27 | Well done guys. Seeing I'm a newby, hubby just diagnosed in late February, I find this site....well I'm a little lost for words....absolutely wonderful (doesn't seem to say enough)....for people in our position. I searched and searched for info, and then came across this fabulous website where everyone just wants to help others. Just for plain reassurance, I log on about 3 times a day and read a number of posts....it kind of makes one feel a bit humbled after what some of you guys have been through. Good luck to you all, and I wish you all good health....something hubby and I won't take for granted in the future. Cheers
Susie
| | |
#38397 04-15-2005 03:45 AM | Joined: Mar 2003 Posts: 64 Supporting Member (50+ posts) | Supporting Member (50+ posts) Joined: Mar 2003 Posts: 64 | I'm glad when people point out other places in the site that have some new information. I don't have time to get to everything and check it out. My husband saw the blackberry news early one morning on TV and couldn't remember where. I looked for it in the paper, and I didn't even think of trying to find it here. Keep telling us in the forum about other sites to look at.
Lowanne | | |
Forums23 Topics18,168 Posts196,925 Members13,103 | Most Online458 Jan 16th, 2020 | | | |