#35678 12-13-2007 05:36 PM | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | OP  Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | Barb and I had a nice day and it made me feel so good. We picked up her Daughter samantha then went to finish Barb getting a new car. We stopped to eat before we went to WalMart and Barb noticed my tongue was white and the front part was red. It hurts like crazy, so when I got home I checked it in the bathrom mirror. It has a lump on the right side, the left is where I had surgery. The lump is fairly large and looks like my tongue has swollen again. This sure has the fear in me right now and tomorrow I'm Calling Dr Ozer to see if he checked the PetScan I mailed him Monday. I hope he will tell me what he saw on it. Anyone have a shoulder I can use? I hope I'm not in the 50% that never see 5 yrs. Luv You All... Jim
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
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#35679 12-13-2007 08:43 PM | Joined: Feb 2007 Posts: 1,940 "OCF across the pond" Patient Advocate (1000+ posts) | | "OCF across the pond" Patient Advocate (1000+ posts)
Joined: Feb 2007 Posts: 1,940 | Hey Jim,fingers crossed and i womt say domt worry because i know you will.My shoulders are so big i got stuck in a small MRI scanner yesterday,so feel free to put them to good use.
love liz
Liz in the UK
Husband Robin aged 44 years Dx 8th Dec 2006 poorly differentiated SCC tongue with met to neck T1N2cM0 Surgery and Radiation.Finished TX April 2007
Recurrence June/07 died July 29th/07.
Never take your eye off the ball, it may just smack you in the mouth.
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#35680 12-14-2007 01:48 PM | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | OP Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | LOL Cookey,, that had to be a weird feeling.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
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#35681 12-14-2007 03:53 PM | Joined: Jun 2007 Posts: 510 "Above & Beyond" Member (300+ posts) | | "Above & Beyond" Member (300+ posts)
Joined: Jun 2007 Posts: 510 | Jim..when you post at 11:36 pm (my time), it's difficult to offer a shoulder!
Hope to hear some GOOD NEWS from you very soon!
Thinking of you and sening positive vibes your way!
STAY WARM!
Lois & Buzz in NC
CG to 77 y/o hubby;SCC Alveolar Ridge; Wake Forest Baptist Hosp surgery: 07/19/07; bi mod radical resection/jaw replacement;
T2 N2-B M0 Stage IV-A
28 IMRT +
6 Paclitaxel/Carboplatin
Getting stronger every day!
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#35682 12-14-2007 06:29 PM | Joined: Sep 2006 Posts: 1,357 Likes: 5 "OCF Canuck" Patient Advocate (1000+ posts) | | "OCF Canuck" Patient Advocate (1000+ posts)
Joined: Sep 2006 Posts: 1,357 Likes: 5 | Two shoulders available here. We know the sense of panic and fear you experienced when you looked in the mirror. It is going to be a tough weekend until you can get some answers so try and keep very busy - keep yourself distracted. Post often and let us know how you are doing.
Big Hug (((((((((((((JIM)))))))))))) from me. Fingers, toes, and eyes crossed here!!!
Donna
Donna,69, SCC L Tongue T2N1MO Stg IV 4/04 w/partial gloss;32 radtx; T2N2M0 Stg IV; R tongue-2nd partial gloss w/graft 10/07; 30 radtx/2 cispl 2/08. 3rd Oral Cancer surgery 1/22 - Stage 1. 2022 surgery eliminated swallowing and bottom left jaw. Now a “Tubie for Life”.no food envy - Thank God! Surviving isn't easy!!!! .Proudly Canadian - YES, UNIVERSAL HEALTH CARE IS WONDERFUL! (Not perfect but definitely WONDERFUL)
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#35683 12-15-2007 02:55 AM | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | OP Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | Buzz, Lois nad Donna, I thank you for the shoulder offers and need them. Being alone with no one to talk to here makes me really appreciate the fantastic support from the people of our Lil Home away from home. Thank you all for the support. My oral parts sure reminded me that I still have them this morning. Felt like there was a war going on in my mouth and throat. LOL. Have a great day all.. Jim
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
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#35684 12-15-2007 04:19 PM | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | OP Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | I called Dr Ozers office testerday afternoon to see if he got the CDs of the Pet. His sec. told me she just got them in the mail and didn't quite have the time to check them. If I don't hear from him Monday, I will call. He sees patients on Monday and should be available. And Lois, sorry for posting so late LOL but that is the time I usually get back out of bed. Had to shovel that blasted white stuff again today . Have a good day all.... jim
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
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#35685 12-16-2007 03:45 AM | Joined: Jan 2007 Posts: 735 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jan 2007 Posts: 735 | Jim
We here in NY are getting your white stuff today !!! But know That I am here too !! I know the feeling all to well just lke the rest of us ... nothing I would wish on anyone !! SO I am here with two shoulders as well !
Shar
Sharlee
35 year old Female Non smoker, very occasional alcohol ..Scc T1N0M0,partial glossectomy and left neck disection ,2/9/07 No rad deemed ness. 4/16 tonsillectomy ..Trimengenial Neuralga due to surgery
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#35686 12-16-2007 06:58 AM | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | OP Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | I always had Barb to lean on and cry with and she was great. But now I get treated like a stranger by her. I miss her terribly and am trying to work thru whatever is wrong.. Thanks for the shoulders to cry on and all have a great day.. Jim
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
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#35687 12-17-2007 06:23 PM | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | OP Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | Well Monday has passed and no call again. I called the office of both Drs.. Ozer had clinicals today and will read the Pet either Tue. or wed. Now that relaxes my nerves LOL The other Drs girl was lost, because she couldn't understand me. I had to use the old J like in jump, I like indian M like in mud. LOL She finally figured out who I was but said the same as Dr Ozers office did. He hasn't had a chance to look at the CD of the pet. I told her she surely knows how to make a guy feel better. Call me and let me know for s--- sake.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
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