#35428 08-02-2007 01:49 PM | Joined: May 2007 Posts: 24 Member |  Member
Joined: May 2007 Posts: 24 | Hi christine, again
I am only 45 and I am too young to get this If you are in stage one I am surprised you have to go through chemo. I was going to suggest a pic line instead of a port it is a fancy iv in your arm it takes only 15min to put in at the hospital they said i could get that or the port i did not want to go in for surgery so i got the pic line. I had a nurse come in for 2 months thats what my insurance paid for. Are you doing the chemo with a pump you wear for 4 days so you can go home? I went to the hospital after my two chemos because i was dehydrated.
god bless
katrina
SCC T3N1 right side tongue DX7/24/06 44 yrs old
Tx 42 IMRT started 9/01/06 Cysplatin & 5fu 2x treatment ended 10/31/06. Partial neck discection 3/07 on right side.
Had tracheostomy 4/08. Had total Laryngectomy 6/09
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#35429 08-02-2007 03:00 PM | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | OP Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | Katrina:
Im about the same age as you. Im, 44 soon I will be 45 in Oct. Im sorry to hear the hard times you have been thru. It good you have some help, with friends and your parents. At least your son is old enough to be a help to you. My left cheek is really bad and the top of my mouth both have cancer, at this point its spread to almost connect the 2 spots thats why I needed to have 3 teeth removed. I havent been able to smile for a few months, and I cant even laugh anymore or my cheek will split. Yesterday when I had the teeth removed, it was instant relief. I didnt realize thats what most of my pain had been coming from. I did have the PEG tube and port both put in on Monday. Why this is done usually on outpatient is beyond me. I got the port to save my veins, I wasnt offered the pic line. The port is right above my heart, so in cars I must ride with a big bed pillow and pray to god we dont get in an accident and the air bag goes off. My chauffer is my 17 year old son who thinks my little neon is a dragster. Im still sore and have a little bleeding around the PEG tube. Monday is when all the real fun begins. I start my 7 weeks of radiation and chemo 3 times. I get it once every couple weeks, so its a bigger dose of cisplatin. I already had my hearing test and know what Im in for. I know this can cause alot of problems also with hand tremors and dizziness, Ive done alot of research, I also know its what kills this type of cancer the best. I dont wnat to go thru this, but I will and I will win and be better than before because now I can say I have fought the toughest battle and won. You can stand tall and say you are a role model for anyone who has doubts they can succeed. Be proud, I cant wait to be where you are....on the road back !!!!
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | |
#35430 08-03-2007 02:41 AM | Joined: May 2007 Posts: 24 Member | | Member
Joined: May 2007 Posts: 24 | Hi christine,
Write to me on my e-mail. I used cisplatin and 5-fu twice. the radiation and chemo will make you tired. Have you been fitted for a mask?
GOD BLESS YOU
SCC T3N1 right side tongue DX7/24/06 44 yrs old
Tx 42 IMRT started 9/01/06 Cysplatin & 5fu 2x treatment ended 10/31/06. Partial neck discection 3/07 on right side.
Had tracheostomy 4/08. Had total Laryngectomy 6/09
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