#35107 05-02-2007 02:34 AM | Joined: Jan 2007 Posts: 108 Gold Member (100+ posts) |  Gold Member (100+ posts)
Joined: Jan 2007 Posts: 108 | I kept mine for a few years. It served as both a reminder and a badge of courage to me. Once I felt I didn't need that reminder anymore I tossed it because the wife and I started cleaning the house and getting rid of unecessary items. Sometimes I wish I still had it, but oh well.
Jim
T3N2aM0 SCC right oral tongue. Partial Glosectomy, Modified Neck disection for 1 Lymph Node. Dec. 2002. 35 IMRT 2003.
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#35108 05-02-2007 04:31 AM | Joined: Apr 2007 Posts: 42 Contributing Member (25+ posts) | | OP Contributing Member (25+ posts)
Joined: Apr 2007 Posts: 42 | I think I'll keep mine after all of this is over. Maybe put a bunch of pins in it and be "Pin Head". Thank you for all of your replies - I'm just glad I don't have to keep that thing on all the time.
Oral Squamous Carcinoma in the right tonsil, Surgery April 5th 2007, Non Smoker, Stage 3. Started IMRT treatment May 30th.
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#35109 05-02-2007 02:27 PM | Joined: Oct 2006 Posts: 383 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Oct 2006 Posts: 383 | Some interesting (and funny, at least to us I guess) stories here. By the way, due to weight loss I have "twins". Well one's a litle smaller than the other. LOL You're correct David, people kind of freak when you start descrbing what they're all about. Think I'll use them some way at Halloween next year.
Steve
SCC right side BOT/FOM; DX 1-25-06; Neck dissection/25% of tongue removed 2-17-06. Stage 2 Recurrence 7-06: IMRTX35 & 3X Cisplatin ended 10-18-06. Tumor found 03/18/13; Partial Glossectomy 03/28/13 left lateral tongue. Nov. 2014; headaches,lump on left side of throat. Radical Neck Dissection 12-17-14; Tumor into nerves/jugular; Surgery successful, IMRTX30 & 7X Erbotux. Scan 06-03-15; NED! 06-02-16; Mets to left Humerus bone and lesion on lungs-here We go again! Never, Ever Give Up!
**** PASSED AWAY 10/8/16 ****
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#35110 05-02-2007 02:30 PM | Joined: Aug 2006 Posts: 294 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: Aug 2006 Posts: 294 | Believe me, you would get some strange looks from folks as you went about your routine day wearing it.
Bill D.
Dx 4/27/06, SCC, BOT, Stage III/IV, Tx 5/25/06 through 7/12/06 - 33 IMRT and 4 chemo, radical right side neck dissection 9/20/06.
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#35111 05-03-2007 09:41 AM | Joined: Nov 2006 Posts: 2,671 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Nov 2006 Posts: 2,671 | David, you really made me chuckle with the plane trip description of your mask. I think my son still has his. Last time I saw it, it was sitting on top of the refrigerator with a bunch of daisies coming out of it. Hey! maybe we couldn't auction them off on eBay and raise money for OCF!
Anne-Marie
CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)
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#35112 05-04-2007 02:39 AM | Joined: Apr 2007 Posts: 42 Contributing Member (25+ posts) | | OP Contributing Member (25+ posts)
Joined: Apr 2007 Posts: 42 | Auctioning them off on eBay for OCF is not a bad idea? We have seen weirder things auctioned off before. (Like a piece of toast)
Oral Squamous Carcinoma in the right tonsil, Surgery April 5th 2007, Non Smoker, Stage 3. Started IMRT treatment May 30th.
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#35113 05-06-2007 04:17 PM | Joined: Jan 2007 Posts: 735 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jan 2007 Posts: 735 | See I am telling you !! If every one did somthing to personalize it or maybe wrote a story to go with it ..you never know ..you would be surprised and if people knew it was to raise money ..like i said or to make them personal and have an art gallery display them to raise money or ebay or anything
Sharlee
35 year old Female Non smoker, very occasional alcohol ..Scc T1N0M0,partial glossectomy and left neck disection ,2/9/07 No rad deemed ness. 4/16 tonsillectomy ..Trimengenial Neuralga due to surgery
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#35114 05-07-2007 09:39 AM | Joined: Nov 2006 Posts: 2,671 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Nov 2006 Posts: 2,671 | Maybe have a "style" contest to decorate the Masks and send pics of them to OCF with an "entrance" fee and a prize for the best one, - put fake eyelashes on them or a wig or something or funny hat. We could put them on a web page and let the newspapers or other organizations know about it so the public could vote - like on American Idol. We could call it "Survivor Idol".
Anne-Marie
CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)
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#35115 05-07-2007 10:02 AM | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Anne Marie,
Are you totally bored or have you gotten into your son's meds?
Just had to ask.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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#35116 05-07-2007 11:33 AM | Joined: Mar 2007 Posts: 7 Member | | Member
Joined: Mar 2007 Posts: 7 | I suggest doing what I did with my mask. I "planted" it in my garden where it produced a terrific Chia Pet made of chives! The symbolism of new and growing life seemed a perfect fit for the mask that helped to save my life. Planting tip: use rocks or stone to keep the mask just above the soil for better aeration.
Dx 2/12/2004 T2N2M0 SCC of right tonsil.Tx 4/13/-6/03/2004. Surgery, IMRT/Bilateral w/boost 35x, Carboplatin + Taxol 6x.
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