#34596 05-04-2006 06:06 AM | Joined: Mar 2004 Posts: 417 "Above & Beyond" Member (300+ posts) | OP  "Above & Beyond" Member (300+ posts)
Joined: Mar 2004 Posts: 417 | Yesterday a CT revealed that my TUMOR has shrunk 40 to 50% and the nodes/tumors in my chest are not showing up at all.... I was given little or no hope of this chemo working, shrinkage, wow.. who knows I might even see another remission... I have 3 more month of treatments, then hopefully the chokin and pukin will be over....
Darrell
Stage 3, T3,N1,M0,SCC, Base of Tongue. No Surgery, Radiationx39, Chemo, Taxol & Carboplatin Weekly 8 Treatments 2004. Age 60. Recurrence 2/06, SCC, Chest & Neck (Sub clavean), Remission 8/06. Recurrence SCC 12/10/06 Chest.
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#34597 05-04-2006 07:42 AM | Joined: Feb 2005 Posts: 2,019 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Feb 2005 Posts: 2,019 | Darrell, That's just great news! Congratulations.......
Nelie
SCC(T2N0M0) part.glossectomy & neck dissect 2/9/05 & 2/25/05.33 IMRT(66 Gy),2 Cisplatin ended 06/03/05.Stage I breast cancer treated 2/05-11/05.Surgery to remove esophageal stricture 07/06, still having dilatations to keep esophagus open.Dysphagia. "When you're going through hell, keep going"
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#34598 05-04-2006 08:01 AM | Joined: Mar 2006 Posts: 90 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Mar 2006 Posts: 90 | Darrell
Congrats, that is great news - what magic chemo combinations are you currently taking?
Caregiver to Father:Stage III unknown primary; modified left side neck dissection 2/2006; 8 wk trmts of Erbitux 3/2006 with-37 radition treatments; 11.2010; biopsy of base of tongue results questionable. 9.2013 tumor on left side of tongue; squamous cell cancer. 10.2.2013 Hemiglossectomy(1/2 tongue removed) with reconstruct tongue using left thigh tissue;surgery included IORT.
25 additional IMRT radiation trtmts & 5 wks/chemo. Carbo & Taxol combo.NPO;100% PEG depend;aspiration pneumonia 3/2014
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#34599 05-04-2006 01:20 PM | Joined: Mar 2004 Posts: 417 "Above & Beyond" Member (300+ posts) | | OP "Above & Beyond" Member (300+ posts)
Joined: Mar 2004 Posts: 417 | taxotere and cistplatin. I don't know the amount of each infusion, but they are 28 days apart and my Oncologist says he wants at least 6 infusions, i've had three so we will look at the tumor again in July....... I give the credit to God and prayer. My church family has been behind me 100% ever since the original cancer diagnosis. and now since I have been back in treatment for metestatic disease, I think every church in this county has me on a prayer list not to mention family and extended family....
Darrell
Stage 3, T3,N1,M0,SCC, Base of Tongue. No Surgery, Radiationx39, Chemo, Taxol & Carboplatin Weekly 8 Treatments 2004. Age 60. Recurrence 2/06, SCC, Chest & Neck (Sub clavean), Remission 8/06. Recurrence SCC 12/10/06 Chest.
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#34600 05-04-2006 05:34 PM | Joined: Jan 2006 Posts: 43 Contributing Member (25+ posts) | | Contributing Member (25+ posts)
Joined: Jan 2006 Posts: 43 | Well you cant have enough prayer that is for sure, I will make sure you are on our prayer list here in Spokane too.
Jennie
Type and stage of cancer:1st - SCC left base of oral tongue non HPV, T3N1M0 hemi-glossectomy 60 node rem, radX35 carboplatnum &Erbitux X6, Peg tube, lost 55 lbs
2nd - SCC right base oral tongue, surgery, Cisplatin & Erbitux x 16
3rd - SCC right base oral tongue, surgery, hope.
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#34601 05-04-2006 06:03 PM | Joined: Feb 2004 Posts: 261 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: Feb 2004 Posts: 261 | Darrell, I'm not a prayin' man, but I am darn happy for you! Here's to kickin' the crap ouy of this cancer! Erik
dx 2/11/04 scca bot T3 IU 2B MO poorly differentiated, margins ok, 3/16 modest, jaw split, over half of tongue removed, free flap from left forearm - finished chemo & rad treatment 5/20/04
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#34602 05-04-2006 11:09 PM | Joined: Oct 2005 Posts: 122 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: Oct 2005 Posts: 122 | Darrell,
Congrats on your chemo results!
I hope you aren't offended but I have this sick sense of humor... Your "hoping and choking and puking" made me think of an old song "and after you do, you will be his." I know you aren't hoping and choking and puking for a boyfriend... please forgive me if I have offended you but I about spewed my coffee all over the screen when that old song went through my head.
I am very sincerely happy for you!
Lisa
SCC Tongue T1N0M0\Dx 3-10-03
Hemiglossectomy, alloderm graft, modified neck dissectomy 4-14-03
3 Year Survivor!
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#34603 05-05-2006 02:59 PM | Joined: Apr 2005 Posts: 2,676 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Apr 2005 Posts: 2,676 | Great news Darrell  Get that choking an puking stuff overwith- it's fixing to be summertime down in Mississippi and the living is supposed to be easy! Amy
CGtoJohn:SCC Flr of Mouth.Dx 3\05. Surg.4\05.T3NOMO.IMRTx30. Recur Dx 1\06.Surg 2\06. Chemo: 4 Cycles of Carbo\Taxol:on Erbitux for 7 mo. Lost our battle 2-23-07- But not the will to fight this disease
:
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#34604 05-18-2006 03:44 PM | Joined: Dec 2003 Posts: 2,606 Likes: 2 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | Darrell,
Sorry I missed your great news! Praying for more miracles to drop in your path, my friend.
Ed
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
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#34605 05-19-2006 02:56 AM | Joined: Aug 2003 Posts: 1,627 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Aug 2003 Posts: 1,627 | Darrel,
I missed your post also.....................I'M SO HAPPY FOR YOU!! Keep us posted and let us know if we can help.
Love,
Minnie
SCC Left Mandible. Jaw replaced with bone from leg. Neck disection, 37 radiation treatments. Recurrence 8-28-07, stage 2, tongue. One third of tongue removed 10-4-07. 5-23-08 chemo started for tumor behind swallowing passage, Our good friend and much loved OCF member Minnie has been lost to the disease (RIP 10-29-08). We will all miss her greatly.
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#34606 05-19-2006 03:57 PM | Joined: Mar 2006 Posts: 99 Senior Member (75+ posts) | | Senior Member (75+ posts)
Joined: Mar 2006 Posts: 99 | Darrel, Thats such great news! I hope you start feeling better...I was wondering if you or anybody knew if they can remove a tumor after its been shrunk with the chemo/rad TX? My husband has BOT like you(his is a T4) and has just finished TX. Now I'm sweating waiting for the scans in 12 weeks to see if the tumor is gone and just want to be prepared if we are faced with any decisions or options(or maybe there are none). Was your tumor completly gone after your first TX? I feel I can't ask these questions at the MO visits with my husband there because I don't want to sound negative but I also want to be prepared. Thanks...Kerry
Kerry/wife of stephenm
StageIV - Base of Tongue T4N0M0
XRT x42 / Taxol and Carboplatin x4
Tx. Finished 5/08/06
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#34607 06-22-2006 02:07 AM | Joined: May 2006 Posts: 69 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: May 2006 Posts: 69 | That is great news,.. never stop just keep at it!
all the best
H
the world brought me to my knees...
Update: Feb 10/08: Mom passed away on Jan 31,08 - infection (unknown) in her lungs with her weakened immune system resulted in cardiac arrest - T2NO SCC of tongue surgery 6/30/06, SCC left neck and lungs detected Sept 07, 7 weeks rad/3 rounds chemo had no effect.
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