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#34548 04-14-2006 11:34 AM
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DM32ASA Offline OP
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Hi all,

I am a little nervous about my scan on the 18th,. This will be my first since treatment.

I just want it to be ok, because my husband just can't take to much more. All of this has been real hard on him.

It has been hard on me too. As you all know. I can only hope for the best. I guess I worry because I thought we got it the first time with the tounge 2004. So I know it can come back.

I am getting more up tight as time gets closer.

Yet I want to know too. It is a mixed emotions at this point. confused I am sure this is all normal.

I have one prayer I say to my self all the time it helps. Here it is "Thank You God for what I have and Thank You God for what I don't have"

I started that prayer when I was about 25. Many years ago. It helps on anything.

Ok, I just wanted a place to vent...... sorry
bye for now. DM


2004 SCC R.tip 1/4 tongue Oct. 2005 R. Neck SCC cancer/Chemo Cisplatin 2x/8wks. Rad. Removed Jugular vein, Lymph gland & some neck muscle. TX finished 1/20/06... B.Cancer 3/29/07 Finished 6/07 Bi-op 7/15/09 SCC in-situ, laser surgery removed from 1st. sight. Right jaw replacement 11/3/14. 9 yrs cancer free as of Jan. 2015
#34549 04-14-2006 12:30 PM
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Hang in there DM , all will be well. If some prayer help to comfort so be it, I am not an overtly religious person but I pray when I feel the need. Anything that can bring comfort and peace of mind is a good thing. Because only knows that in our situation there are plenty of times that anxiety raises its ugly head. I pray for strength to handle anything that is thrown my way. This thing that we have hanging over our heads sure can be tough sometimes. Be strong DM all is well.
always lenny

#34550 04-14-2006 01:23 PM
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Hi DM, I have just started my journey and I can only imagine how anxious you are right now. Prayer has helped me so much through all of this, and I know what a strain it can be on your Husband. I go to dailyword.com everyday and pray quietly and it seems to help.
Keep up your strength...better days are ahead!!

Molly

#34551 04-14-2006 01:52 PM
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HI DM,

it is normal to be nervous. I'm sure we all were or are when it comes to the scans. I pray that yours is clear like mine.

During my treatment, I was on several prayer circles from both coasts. I'm sure it helped. I hope you post soon and tell us the results. My thoughts, prayers and concerns are with you.

Steve Daib


SCC, base of tongue, 2 lymph nodes, stage 3/4. 35 X's IMRT radiation, chemo: Cisplatin x 2, 5FU x2, & Taxol x2. Hooray, after 3 years I'm in still in remission.
#34552 04-16-2006 07:11 AM
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DM32ASA Offline OP
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Thank you everyone for your support. I will let you know how it comes out.

I think the reason I am so up tight is that my experience with Chemo & radiation were not good.

When I was in radiation the gal that started me pin me down to tight and I could not breath. This happen for the first 3 days. I started having anxiety attacks. Which I had never had before. Then they switched her out & a different gal took over. She was better, but it still was hard to go through.

My Chemo was fine for the frist one. Then the 2nd one was hard on me. I was in hospital off & on the first week. They could not give me the 3rd cause it would kill me.

So this is why I am a little nervious about it. I just have to learn to face what ever comes. smile

Thanks DM


2004 SCC R.tip 1/4 tongue Oct. 2005 R. Neck SCC cancer/Chemo Cisplatin 2x/8wks. Rad. Removed Jugular vein, Lymph gland & some neck muscle. TX finished 1/20/06... B.Cancer 3/29/07 Finished 6/07 Bi-op 7/15/09 SCC in-situ, laser surgery removed from 1st. sight. Right jaw replacement 11/3/14. 9 yrs cancer free as of Jan. 2015
#34553 04-16-2006 01:22 PM
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DM,
Everybody is nervous during the first scans so you are not alone. It is also VERY common for the scans to be read and interpreted in such a manner that they won't be black and white in their findings (my first scans drove me crazy). Do NOT let this discourage you or add more fear. Scans are only a small part of the total diagnostic package. I didn't have a clean MRI for almost a year.

They should have given you meds for anxiety - most of us got them. It wouldn't hurt you to have them now either. You will have less angst the further you get from this.


My chemo experience was also the same as yours - They had to shorten it by one (I tell myself because I responded SO WELL to treatment). I am three years+ cancer free today and doing great. So will you.

Hang in there.


Gary Allsebrook
***********************************
Dx 11/22/02, SCC, 6 x 3 cm Polypoid tumor, rt tonsil, Stage III/IVA, T3N0M0 G1/2
Tx 1/28/03 - 3/19/03, Cisplatin ct x2, IMRT, bilateral, with boost, x35(69.96Gy)
________________________________________________________
"You are a mist that appears for a little while and then vanishes" (James 4:14 NIV)
#34554 04-17-2006 05:06 AM
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DM-
I wish you the best of luck with your scan- please remember that God will be right by your side.


Delia- Caregiver and fiancee to Charlie ,age 30,(SCC of Larnyx-Stage IV) chemotherapy and radiation- no surgery finished tx:4/7/06 SURVIVIOR!
#34555 04-18-2006 03:52 AM
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It will be a good thing...it will be a good thing
it will be a good thing. You are going to feel so good when you get your results!
Marica


Caregiver to husband Pete, Dx 4/03 SCC Base of Tongue Stage IV. Chemo /Rad no surgery. Treatment finished 8/03. Doing great!
#34556 04-18-2006 03:54 PM
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DM32ASA Offline OP
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Hi All !

Yes, good news it was cancer FREE ! smile
I held my breath as he gaves us the results.
I go back again in 3 months.

Now for the bad news. I had hearing test done. Due to chemo & radiation I have had hearing loss. It may improve some, but the chances I guess are slim. I am going to hope for improvement! I will not know for sure untill another 3 months.(give it a chance to heal some more)If I should have any more Chemo it will wipe it out. Lucky for me I do know sign Language!!!

Gary I never have received any Meds. for Depression or Anxiety. I have always just went through it. Never gave it a thought. I guess I was to busy taking other pills, brushing teeth, getting sick to think about it. Ha ha!

I want to thank all of you who have given me support getting ready for 1st scan. Thank You! Thank YOU! smile smile smile Ps. it was a long day
DM


2004 SCC R.tip 1/4 tongue Oct. 2005 R. Neck SCC cancer/Chemo Cisplatin 2x/8wks. Rad. Removed Jugular vein, Lymph gland & some neck muscle. TX finished 1/20/06... B.Cancer 3/29/07 Finished 6/07 Bi-op 7/15/09 SCC in-situ, laser surgery removed from 1st. sight. Right jaw replacement 11/3/14. 9 yrs cancer free as of Jan. 2015
#34557 04-21-2006 01:37 AM
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DM-
WONDERFUL!!!
I am so happy for you!!!
You should be so proud of yourself for getting thru this!


Delia- Caregiver and fiancee to Charlie ,age 30,(SCC of Larnyx-Stage IV) chemotherapy and radiation- no surgery finished tx:4/7/06 SURVIVIOR!
#34558 04-21-2006 02:10 AM
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Congratulations on the great news! It is a powerful feeling isn't it. Go with it, feel it, cherish it and give thanks! Most importantly, try to remember this when you go for your next one.

Yes, the hearing loss does temper the good news abit. I have read that there can be some hearing loss, hopefully in your case as with some it is minimal.


Norma Steele/Husband, Gordon, dx 1/17/06 w/ SCC secondary, left neck nodes mass, occult primary. Started chemoradiation 2/17/06, completed 4/5/06 (Weekly Cisplatin & 39 IMRT rads tx) In addition, I am a 9 yr breast cancer survivor.
#34559 04-21-2006 05:36 AM
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Congrats on the clean scan and sorry to hear about the hearing loss. Given that the chemo did that to you, it's good they stopped it when they did. I also was only able to have two chemos and so far I'm good......

Nelie


SCC(T2N0M0) part.glossectomy & neck dissect 2/9/05 & 2/25/05.33 IMRT(66 Gy),2 Cisplatin ended 06/03/05.Stage I breast cancer treated 2/05-11/05.Surgery to remove esophageal stricture 07/06, still having dilatations to keep esophagus open.Dysphagia. "When you're going through hell, keep going"
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