| | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) |  Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | A few days away will be your best friend. I like brunettes better than blondes. LOL I think they are sexier and look smarter.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Mar 2007 Posts: 163 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Mar 2007 Posts: 163 | Brenda I would like to offer my hairdressing services whenever you need `em Why choose just one colour... lets do the spectrum!
I am sorry you had such a rotten time today...take care.
Marica
Caregiver to husband (Pete) Stage IV Base of Tongue. Dx 04 2003 Chemo/Radiation no surgery.. doing great!
| | | | | Joined: Jan 2007 Posts: 735 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jan 2007 Posts: 735 | Brenda ..
I know I havent been around much ..but always thinkin of you ! ( an everyone ) Man I hate this disease ..for all of you as much as if not more then for myself...
As for the hair color.. I picture you as a FIETSY red head !! Almost like an auburn ..... Just fits that FEISTY personality of yours !!
Shar
Sharlee
35 year old Female Non smoker, very occasional alcohol ..Scc T1N0M0,partial glossectomy and left neck disection ,2/9/07 No rad deemed ness. 4/16 tonsillectomy ..Trimengenial Neuralga due to surgery
| | | | | Joined: Jun 2007 Posts: 718 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jun 2007 Posts: 718 | Brenda,
Glad you are able to get away. I looked up Cyprus. It sounds very pretty. I hope you get those darn pain meds under control and that you can enjoy your vacation.
Margaret
----------
C/G: Husband, 48 (at time of dx)
Dx 5/18/07 SCC, BOT, lymph node involvement. T1N2BM0. (Stage 4a, G2/3)
Tx 6/18 - 8/3/07, IMRT x 33 Cisplatin x3 (stopped after 1st dose due to hearing issues). Weekly Erbitux started 6/27/07 completed 8/6/07.
| | | | | Joined: Feb 2004 Posts: 598 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Feb 2004 Posts: 598 | Cyprus will be just the ticket. Take the meds, some good books, enjoy some sun. You sure deserve it, and more.
Jeff
SCC Right BOT Dx 3/28/2007
T2N2a M0G1,Stage IVa
Bilateral Neck Dissection 4/11/2007
39 x IMRT, 8 x Cisplatin Ended 7/11/07
Complete response to treatment so far!!
| | | | | Joined: Sep 2003 Posts: 1,244 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Sep 2003 Posts: 1,244 | Cyprus sounds good, especialy after last nights wind and rain and this weekends forcast of snow.
Keep pushing to get the pain meds right, and make sure you have plenty to take with you,,
Sunshine.. love and hugs
Helen
SCC Base of tongue, (TISN0M0) laser surgery, 10/01 and 05/03 no clear margins. Radial free flap graft to tonsil pillar, partial glossectomy, left neck dissection 08/04
| | | | | Joined: Aug 2003 Posts: 1,627 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Aug 2003 Posts: 1,627 | Brenda, if I find myself in your situation in the near future, I only pray I can handle it with the dignity and grace that I watch and observe you displaying. Of course, in my position, death is something I think of more than usual and, I know this sounds kind of macabre, but your are my mentor! Get the pain under control and LIVE.....such every second of life that you can. It's what I'm doing right now and I'm not even in your situation. Go on your vacation and have a blast.
Much love,
Minnie
SCC Left Mandible. Jaw replaced with bone from leg. Neck disection, 37 radiation treatments. Recurrence 8-28-07, stage 2, tongue. One third of tongue removed 10-4-07. 5-23-08 chemo started for tumor behind swallowing passage, Our good friend and much loved OCF member Minnie has been lost to the disease (RIP 10-29-08). We will all miss her greatly.
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | Brenda, I know what we all forgot to tell you to take with you. ME LOL I hope you really have a great time and maybe the sunshine will have some type of healing powers in it. You are my hero as always.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: May 2007 Posts: 632 "Above & Beyond" Member (300+ posts) | | OP "Above & Beyond" Member (300+ posts)
Joined: May 2007 Posts: 632 | The wind and rain really HAVE been evil today--Cyprus isn't going to be exactly red-hot, but should get sunny views and some short walks if I can.
I booked it back in early January when I knew things were taking a turn for the worse--to give me something to focus on. it's not too long a trip.
One thing about it does bother me--my friend Adrian, who lives out there with his new wife, had his wife die of cancer at 49. Will seeing me with discloured lumps etc. remind him? I have seen him a couple of times during treatment and he's always been supportive, but ho would any of you 'ex'(shudder, sorry)caregivers think?
I'm looking forward to the MacMillan nurse tomorrow to tell her the current morphine dose is doing net to nothing for me during the evenings and nights, so that I can get that sorted.
Lump no 13 appeared today, in my back--how many lymph nodes are there in one body to swell????????
Brenda
Brenda in UK--Diagnosis 30/5/07--undifferentiated carcinoma in right jawbone and muscles. Stage 4
6/7/07--new diagnosis primary is in lung. Finished 4cycles of palliative carboplatin/gemcitabine
therapy September 07
Now dying to live!
| | | | | Joined: Feb 2007 Posts: 1,940 "OCF across the pond" Patient Advocate (1000+ posts) | | "OCF across the pond" Patient Advocate (1000+ posts)
Joined: Feb 2007 Posts: 1,940 |
Liz in the UK
Husband Robin aged 44 years Dx 8th Dec 2006 poorly differentiated SCC tongue with met to neck T1N2cM0 Surgery and Radiation.Finished TX April 2007
Recurrence June/07 died July 29th/07.
Never take your eye off the ball, it may just smack you in the mouth.
| | |
| Forums23 Topics18,168 Posts196,925 Members13,103 | | Most Online458
Jan 16th, 2020 | | |
|
