#29729 12-19-2007 11:10 AM | Joined: May 2007 Posts: 632 "Above & Beyond" Member (300+ posts) | OP  "Above & Beyond" Member (300+ posts)
Joined: May 2007 Posts: 632 | Well, so much for antibiotics!
had a violent reaction to the first lot, vomitting, indigestion, mile-high fever and the shivers. Took me a week to get though that, then began taking new ones. Hospital 3 times in 8 days.
In the meantime, right neck lump still growing, seen by two more different docs, and yet another lump appeared on back of neck, just to left of spine. Had a lot of pain for a week when trying to sleep on that side and laso have pain in left side.
Got a call from the hospital this afternoon to say lump should be biopsied by a dermatologist/soft tissue specialist.
This being England, of course, I should 'have a letter within 2 weeks'--but no guarantees here of course as the country shuts down for 2 weeks over Christmas.
Next bloods and Zometa treatment Jan 2nd, next oncologist appointment Jan 9th---may easily both happen before the 'magic letter' ever arrives!
Just feel down as have pain like I haven't had since April!
Brenda
Brenda in UK--Diagnosis 30/5/07--undifferentiated carcinoma in right jawbone and muscles. Stage 4
6/7/07--new diagnosis primary is in lung. Finished 4cycles of palliative carboplatin/gemcitabine
therapy September 07
Now dying to live!
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#29730 12-19-2007 11:33 AM | Joined: Sep 2003 Posts: 1,244 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Sep 2003 Posts: 1,244 | Bren
Can your GP help sort out the pain.
I know that is not the real issue but one thing at a time.
Can your GP sort things before England stops..
Going to be the harridan from hell to you here..
Have you got a macmillan nurse, don't expect you to need one, but for sorting pain no-one better.
Sh#t to long holidays, they seemed good when I was at work, now 3 weeks to get my results and 2 weeks minimum for you it sucks..
Sunshine.. love and hugs
Helen
SCC Base of tongue, (TISN0M0) laser surgery, 10/01 and 05/03 no clear margins. Radial free flap graft to tonsil pillar, partial glossectomy, left neck dissection 08/04
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#29731 12-19-2007 12:04 PM | Joined: May 2007 Posts: 632 "Above & Beyond" Member (300+ posts) | | OP "Above & Beyond" Member (300+ posts)
Joined: May 2007 Posts: 632 | Oh yes--I have a MacMillan nurse---guess what, another letter coming in January with appointment to see her! And yes, I have spoken to the surgery--there's a 'liaison-worker' there for cancer patients who sees that my pain prescription is renewed when I need it. I guess I try and keep as low a dose as possible, as infrequently as possible til the 'time comes when I shall need..........' Actually, as I have a pre-paid certificate exemption, 'loading up' would halve the red wine bill!! 
Brenda in UK--Diagnosis 30/5/07--undifferentiated carcinoma in right jawbone and muscles. Stage 4
6/7/07--new diagnosis primary is in lung. Finished 4cycles of palliative carboplatin/gemcitabine
therapy September 07
Now dying to live!
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#29732 12-19-2007 04:22 PM | Joined: Jun 2007 Posts: 510 "Above & Beyond" Member (300+ posts) | | "Above & Beyond" Member (300+ posts)
Joined: Jun 2007 Posts: 510 | Bren....so sorry to hear of your ongoing suffering...Wish you weren't SO far away! Sending positive thoughts your way...hope you can feel the warm hugs....
Lois & Buzz
CG to 77 y/o hubby;SCC Alveolar Ridge; Wake Forest Baptist Hosp surgery: 07/19/07; bi mod radical resection/jaw replacement;
T2 N2-B M0 Stage IV-A
28 IMRT +
6 Paclitaxel/Carboplatin
Getting stronger every day!
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#29733 12-22-2007 08:27 PM | Joined: Nov 2007 Posts: 31 Contributing Member (25+ posts) | | Contributing Member (25+ posts)
Joined: Nov 2007 Posts: 31 | You've been in the hospital 3 times???????????????
Mum - sick as a dog, see her sig.
Dad - diagnosed with throat cancer late 2007.
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#29734 12-23-2007 01:58 AM | Joined: May 2007 Posts: 632 "Above & Beyond" Member (300+ posts) | | OP "Above & Beyond" Member (300+ posts)
Joined: May 2007 Posts: 632 | Chill, Suey! Told you Friday night, I'm fine and the lumps will be biopsied soon!
Just had bad reaction to antibiotics and high temp!
Was out shopping yesterday and feel fine today--LOVE Ya!!!!
Brenda in UK--Diagnosis 30/5/07--undifferentiated carcinoma in right jawbone and muscles. Stage 4
6/7/07--new diagnosis primary is in lung. Finished 4cycles of palliative carboplatin/gemcitabine
therapy September 07
Now dying to live!
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#29735 12-23-2007 08:24 AM | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | I am thinking it's much better to be receiving statements from Drs and Hospitals than being put on a shelf for 2 weeks. I wish you all the best and I hope somone in the medical proffession their pulls their head out of their a-- and sees you.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
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#29736 12-23-2007 10:07 AM | Joined: Jun 2007 Posts: 221 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: Jun 2007 Posts: 221 | Hi Brenda,
I'm thinking about you and hoping that you are able to get in and get those lumps checked sooner rather than later.
Glad you are feeling better!
Merry Christmas!
Joy
CG to Father, 75 yo with SCC of the mouth; upper maxillectomy and neck diss. performed on 5/23/07. Father also suffered heart attack during surgery and now has CHF. RT complete on 8/28/07. Cancer back 11/27/07. RT and Chemo to start on 12/17. Cancer back 6/17/08. Finally at rest 08/08/08.
| | | | | Joined: May 2007 Posts: 632 "Above & Beyond" Member (300+ posts) | | OP "Above & Beyond" Member (300+ posts)
Joined: May 2007 Posts: 632 | Well,
Got a call from the hospital yesterday, then 2 letters today plus a text message to my mobile phone--I have an appointment with plastic surgeon on Monday morning!
Do you suppose someone bought me 'MAKEOVER' for Christmas????LOL!
Brenda
Brenda in UK--Diagnosis 30/5/07--undifferentiated carcinoma in right jawbone and muscles. Stage 4
6/7/07--new diagnosis primary is in lung. Finished 4cycles of palliative carboplatin/gemcitabine
therapy September 07
Now dying to live!
| | | | | Joined: Nov 2007 Posts: 681 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Nov 2007 Posts: 681 | Congratulations!!
Getting an appointment is a giant step. One of the hardest things we face is uncertainty. May your appointment bring good news.
Best wishes from "across the pond",
Malka
SCC stage II Partial mandibulectomy w. neck dissection- July 2005. Renal cancer w. partial nephrectomy-Jan 2004. Breast cancer discovered in routine mammogram. Successful lumpectomy, sentinal nodes clear, RT only-2008 Reconstruction of mandible w fibula free flap-Jan 09. TORS removal of begnin pappiloma from esophagus-2010. Masectomy,rt breast 2013.
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