#2972 07-07-2004 04:11 PM | Joined: Jan 2004 Posts: 316 Platinum Member (300+ posts) | OP  Platinum Member (300+ posts)
Joined: Jan 2004 Posts: 316 | Hi all, I'm not sure if this message applies to the Survivor section yet, but I thought I'd start here. I saw my Radio Onc today and he was pleased with me - I don't see him unless the Head & Neck Clinic think so in the future. Head & Neck Clinic are happy with me also - saw them last month. My dentist liked my mouth - he said it doesn't look like a radiation mouth,and the Opthalmic Surgeon was happy with my eyes and head (even though I have noticed a sudden change with my eyes, could be age, dunno). My saliva is slowly returning, even though I didn't have IMRT (too close after surgery), and I can eat things at last! Not very much, but at least I can have vegies and meat! Things still taste strange though. Ulcers occasionally happen, but that's OK, compared to the hell before. The only thing that puzzles me is when I have asked about blood tests, MRI, CT, etc, the docs feel there is no need as yet. Good, I hope. All I can say is "hang in there everybody, it does get better".  My best wishes are always there for you all, and I'm so glad I found this site. Just wanted to share ... Cheers! Tizz (Stage 3/4, mets to lymph node, 41 removed, 1 positive, primary in soft palate near the tonsil, radical neck dissection 17/12/03, radio finished 15/3/04)
End of Radiation - the "Ides of March" 2004 :-)
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#2973 07-08-2004 01:09 AM | Joined: Apr 2004 Posts: 837 "Above & Beyond" Member (300+ posts) | | "Above & Beyond" Member (300+ posts)
Joined: Apr 2004 Posts: 837 | Tizz,
Congratulations on your good news -- I'd say this does belong in the Survivor section!
I agree with you about expecting scheduled follow-up visits with your doctors. I know I had them at least every 2-3 months early on, and I still see my oncologist at least twice a year.
Best wishes for continued great results!
Cathy
Tongue SCC (T2M0N0), poorly differentiated, diagnosed 3/89, partial glossectomy and neck dissection 4/89, radiation from early June to late August 1989
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#2974 07-08-2004 02:44 AM | Joined: Dec 2003 Posts: 2,606 Likes: 2 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | Tizz,
You were officially a survivor the day you got your diagnosis! I am glad things are going well...you certainly earned it! I hope every day gets better than the last.
Ed
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
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#2975 07-08-2004 03:13 AM | Joined: Jan 2004 Posts: 1,116 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jan 2004 Posts: 1,116 | Way to go Tizz, thanks so much for sharing your good news!!!!God Bless!!! Carol
Diagnosed May 2002 with Stage IV tongue cancer, two lymph nodes positive. Surgery to remove 1/2 tongue, neck dissection, 35 radiation treatments. 11/2007, diagnosed with cancer of soft palate, surgery 12/14/07, jaw split. 3/24/10, cancer on tongue behind flap, need petscan, surgery scheduled 4/16/10
---update passed away 8-27-11---
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#2976 07-08-2004 04:20 AM | Joined: Jul 2003 Posts: 382 Likes: 3 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Jul 2003 Posts: 382 Likes: 3 | Tizz,
GREAT NEWS!! Every exam passed is a celebration! I started to give a "toast" everytime I heard on this site that another test/exam has been passed successfully....well, since I read this site at work I've had to use coffee to toast with since I'd be a bit tipsy from the good news I've read lately!! So...I lift my cup to you, Tizz, many more good ones!!! - Kris
SCC Stage IV left tonsil neck disection 3/02 radiation finished 6/02 chemo finished 9/02
Stage 2A left breast cancer 3/09, chemo and radiation, finished treatment 2/7/10 -Stage 2 right beast cancer 10/14 chemo and radiation
Every day is still a gift :-)
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#2977 07-08-2004 06:02 AM | Joined: Feb 2004 Posts: 162 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: Feb 2004 Posts: 162 | Great news, Tizz! Congratulations on "turning the corner."
-Brett
Base of Tongue SCC. Stage IV, T1N2bM0. Diagnosed 25 July 2003.
Treated with 6 weeks induction chemo -- Taxol & Carboplatin once a week followed with 30 fractions IMRT, 10 fields per fraction over 6 more weeks. Recurrence October 2005.
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#2978 07-08-2004 11:15 AM | Joined: Dec 2003 Posts: 528 "OCF Down Under" "Above & Beyond" Member (500+ posts) | | "OCF Down Under" "Above & Beyond" Member (500+ posts)
Joined: Dec 2003 Posts: 528 | Great news, Tizz So pleased that you are now a survivor. I have wondered about scans etc but like you, my oncologists think it is only necessary if a problem arises. I don't know how reliable blood tests are with H&N because I had totally normal blood when I had Stage IV cancer. I love good news, love from Helen 
RHTonsil SCC Stage IV tx completed May 03
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#2979 07-08-2004 05:34 PM | Joined: Jan 2004 Posts: 316 Platinum Member (300+ posts) | | OP Platinum Member (300+ posts)
Joined: Jan 2004 Posts: 316 | Thanks guys... ...may the positive force be with you all. Cheers! Tizz
End of Radiation - the "Ides of March" 2004 :-)
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#2980 07-08-2004 05:52 PM | Joined: Mar 2003 Posts: 1,384 Likes: 1 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Mar 2003 Posts: 1,384 Likes: 1 | Tizz, I think it is great too! Cheers back at you 
Mark, 21 Year survivor, SCC right tonsil, 3 nodes positive, one with extra-capsular spread. I never asked what stage (would have scared me anyway) Right side tonsillectomy, radical neck dissection right side, maximum radiation to both sides, no chemo, no PEG, age 40 when diagnosed.
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#2981 07-09-2004 10:35 AM | Joined: Jun 2004 Posts: 106 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Jun 2004 Posts: 106 | Congratulations, Tizz!
I wonder about the CT scans too, I am not scheduled for one until end of August (end of radiation 6/11). I feel like I should have one every week just to make sure...
Leena
scc right tonsil T1N1M0, right tonsillectomy + modified neck dissection 3/04, radiation IMRT both sides X33 ended 6/04.
Also had renal cell carcinoma, left kidney removed 11/04
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#2982 07-09-2004 11:08 AM | Joined: May 2004 Posts: 218 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: May 2004 Posts: 218 | TIZZ,
Congrats my friend. Keep on fighting brother.
I love to hear good things on this site.
I am getting off now because it's Friday and I want this to be the last thing I read before the weekend.
Thank you for making it better TIZZ!
Peace and Love
Robert Hamilton
SCC 1.6cm Right Tonsil 10/3/03, 1 Node 3cm, T1N2AM0, Tonsil Removed, Selective Neck Disection, 4 Wks Induction Chemo (Taxol,Cisplatin), 8 Weeks Chemo/Radiation (5FU,Hydroxyurea,Iressa), IMRT x 40, Treatment Complete 2/13/04.
41 Years Old At Diagnosis
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