#29444 10-22-2007 04:07 PM | Joined: Sep 2007 Posts: 148 Senior Member (100+ posts) | OP  Senior Member (100+ posts)
Joined: Sep 2007 Posts: 148 | I am sorry but what is a peg tube? I had my 8th rad treatment today I am losing my voice. Taste is gone but salty things are a little better. The nutritionalist said that 8 out of 10 people have to have a feeding tube is that what you are referring to?
49 years young 9/2007 Squamous Cell Carcinoma 33 rad treatments. One year later, 9/17/2008 50 years old through the Grace of God. last check up all clear. Living life as it comes to me.
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#29445 10-22-2007 05:04 PM | Joined: May 2006 Posts: 720 Likes: 1 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: May 2006 Posts: 720 Likes: 1 | Yes, a PEG (percutaneous endoscopic gastrostomy) tube is a feeding tube. See here for additional information. All the best, Leslie
Leslie
April 2006: Husband dx by dentist with leukoplakia on tongue. Oral surgeon's biopsy 4/28/06: Moderate dysplasia; pathology report warned of possible "skip effect." ENT's excisional biopsy (got it all) 5/31/06: SCC in situ/small bit superficially invasive. Early detection saves lives.
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#29446 10-22-2007 05:51 PM | Joined: Sep 2007 Posts: 148 Senior Member (100+ posts) | | OP Senior Member (100+ posts)
Joined: Sep 2007 Posts: 148 | Thank you I needed to know. I guess I need to suck it up and ask my Dr huh? I am afraid of him because he told me I am not allowed to complain. LOL any way thanks. I go for my 9th treatment in the morning. they are scarry though.
49 years young 9/2007 Squamous Cell Carcinoma 33 rad treatments. One year later, 9/17/2008 50 years old through the Grace of God. last check up all clear. Living life as it comes to me.
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#29447 10-22-2007 06:29 PM | Joined: Feb 2007 Posts: 1,940 "OCF across the pond" Patient Advocate (1000+ posts) | | "OCF across the pond" Patient Advocate (1000+ posts)
Joined: Feb 2007 Posts: 1,940 | Look on a PEG tube as a friend it could turn out to be the best one you could have over the next few weeks .
love liz
Liz in the UK
Husband Robin aged 44 years Dx 8th Dec 2006 poorly differentiated SCC tongue with met to neck T1N2cM0 Surgery and Radiation.Finished TX April 2007
Recurrence June/07 died July 29th/07.
Never take your eye off the ball, it may just smack you in the mouth.
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#29448 10-22-2007 11:22 PM | Joined: May 2007 Posts: 632 "Above & Beyond" Member (300+ posts) | | "Above & Beyond" Member (300+ posts)
Joined: May 2007 Posts: 632 | I wish you had more sympathetic doctors!
You are being incredibly strong and going through so much.
Come on here if you need to cry or complain, we're here for you!
Brenda
Brenda in UK--Diagnosis 30/5/07--undifferentiated carcinoma in right jawbone and muscles. Stage 4
6/7/07--new diagnosis primary is in lung. Finished 4cycles of palliative carboplatin/gemcitabine
therapy September 07
Now dying to live!
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#29449 10-23-2007 02:19 AM | Joined: May 2007 Posts: 666 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: May 2007 Posts: 666 | A peg tube is a good thing.
Talk with your physician, if you need one it is better to do this sooner than later. (when everything in your mouth is sore and you are more miserable)
Where in GA are you?
Markus
Partial glossectomy (25%) anterior tongue. 4/6/07/. IMRT start @5/24/07 (3x) Erbitux start/end@ 5/24/07. IMRT wider field (30x) start 6/5/07. Weekly cisplatin (2x30mg/m2), then weekly carbo- (5x180mg/m2). End of Tx 19 July 07.
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#29450 10-23-2007 08:43 AM | Joined: Sep 2007 Posts: 61 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Sep 2007 Posts: 61 | Please! A doctor that told you not to complain??Tell him to walk in your shoes for a week!!Please don't be afraid to relay any concerns or problems that you are having with your doctor-he is there to help you through this and is being well-paid to do so! If he seems unapproachable then try talking with his nurse, they could probably help you and could relay your concerns to the doctor.
I think that you will find this site very helpful. Doctors and nurses can give you a lot of valuable information, but many have not walked the path themselves. The practical advice given here can be very helpful, just remember that everyone reacts differently to treatment. The PEG tube should be very helpful, having the proper nutrition is so important, it will help your body to heal quicker.
I wish you all the best,
Liz
CG to friend Mary. SCC Stage IV-A of rt. tonsil, mets. to lymph node on rt. DX 06/07,tonsillectomy 08/07, Chemo Cisplatin, Taxotere and 5FU X3 cycles; RAD completed 1/20/08 RND scheduled for 3/08. 54yr.old, NS, social drinker.
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#29451 10-23-2007 10:48 AM | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | I got my PEG tube a week before my treatments started. I am now almost 1 month post chemo and tx and am so glad I have it. If you get the choice to get one, I would recommend it. Its what got me thru this whole thing. Best of luck.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | |
#29452 10-23-2007 11:54 AM | Joined: Sep 2007 Posts: 148 Senior Member (100+ posts) | | OP Senior Member (100+ posts)
Joined: Sep 2007 Posts: 148 | Liz26!!! My Dr is a very good Dr and he was playing, He is very passionate about what he does and I am happy to have him. My daddy told me all my life not to cry guess what I hae had surgery on my eye to make me cry, so when the Dr told me not to complain I knew he was kidding. Thanks though.
49 years young 9/2007 Squamous Cell Carcinoma 33 rad treatments. One year later, 9/17/2008 50 years old through the Grace of God. last check up all clear. Living life as it comes to me.
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#29453 10-23-2007 11:59 AM | Joined: Sep 2007 Posts: 148 Senior Member (100+ posts) | | OP Senior Member (100+ posts)
Joined: Sep 2007 Posts: 148 | one more question I am only taking radiation not chemo so does that have a factor? I get to see Dr on Mondays and next monday I will have a list of questions for him to answer, Had my 9th treatment today. yeah.
49 years young 9/2007 Squamous Cell Carcinoma 33 rad treatments. One year later, 9/17/2008 50 years old through the Grace of God. last check up all clear. Living life as it comes to me.
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