#28836 11-11-2007 08:40 AM | Joined: Jan 2004 Posts: 1,116 Patient Advocate (1000+ posts) |  Patient Advocate (1000+ posts)
Joined: Jan 2004 Posts: 1,116 | THanks for writing to me all....Colleen, the first oral cancer was my tongue and two lymph nodes 5 years ago, geeeezzzzzzzz, I just bragged a bit too much I suppose this past May when I hit the 5 year mark....my oral surgeon, who I absolutely love, told me this a Second Primary of SCC on the soft palate......I will keep you posted, he is meeting with my oncologist and I am getting a petscan on Tuesday, then will meet with my surgeon and another surgeon at Univ of Md. on Wed......Love to All, Carol
Diagnosed May 2002 with Stage IV tongue cancer, two lymph nodes positive. Surgery to remove 1/2 tongue, neck dissection, 35 radiation treatments. 11/2007, diagnosed with cancer of soft palate, surgery 12/14/07, jaw split. 3/24/10, cancer on tongue behind flap, need petscan, surgery scheduled 4/16/10
---update passed away 8-27-11---
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#28837 11-11-2007 08:43 AM | Joined: Jan 2004 Posts: 1,116 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jan 2004 Posts: 1,116 | Laura, I am praying your lump does go away, I went in for a check of a sore I noticed and my surgeon was immediately suspicious of the lump that he biopsied and turned out to be c, I hope yours goes away and NEVER comes back.....Lois and Buzz, I was told I had the maximum amount of radiation the last go around which was 7 weeks of radiation...but my surgeon is checking with my oncologist....my husband asked about chemo, no answer on that one yet....will find out more Wed.
Thanks everyone....please pray it is contained......Have a wonderful day, you guys are the greatest group of people!
Diagnosed May 2002 with Stage IV tongue cancer, two lymph nodes positive. Surgery to remove 1/2 tongue, neck dissection, 35 radiation treatments. 11/2007, diagnosed with cancer of soft palate, surgery 12/14/07, jaw split. 3/24/10, cancer on tongue behind flap, need petscan, surgery scheduled 4/16/10
---update passed away 8-27-11---
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#28838 11-11-2007 05:42 PM | Joined: Apr 2006 Posts: 794 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Apr 2006 Posts: 794 | Carol, you have a busy week ahead, but at least then you will have answers and a plan. That will help! I hopehopehope that you get good news, but if you don't, I can tell that you are the type who will shift gears and get down to doing what you have to do. I have a routine PET/CT in a few weeks, as part of my two-year checkup.
Colleen--T-2N0M0 SCC dx'd 12/28/05...Hemi-maxillectomy, partial palatectomy, neck dissection 1/4/06....clear margins, neg. nodes....no radiation, no chemo....Cancer-free at 4 years!
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#28839 11-12-2007 03:48 AM | Joined: Jan 2004 Posts: 1,116 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jan 2004 Posts: 1,116 | Thank you Sweetie.....I will be praying for your pet/ct too.......Love, Carol
Diagnosed May 2002 with Stage IV tongue cancer, two lymph nodes positive. Surgery to remove 1/2 tongue, neck dissection, 35 radiation treatments. 11/2007, diagnosed with cancer of soft palate, surgery 12/14/07, jaw split. 3/24/10, cancer on tongue behind flap, need petscan, surgery scheduled 4/16/10
---update passed away 8-27-11---
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#28840 11-12-2007 12:18 PM | Joined: Jan 2004 Posts: 1,116 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jan 2004 Posts: 1,116 | This is probably not the correct place to post this question but here goes, has anyone had radiation twice or two different cancers, same area? Thanks, Carol
Diagnosed May 2002 with Stage IV tongue cancer, two lymph nodes positive. Surgery to remove 1/2 tongue, neck dissection, 35 radiation treatments. 11/2007, diagnosed with cancer of soft palate, surgery 12/14/07, jaw split. 3/24/10, cancer on tongue behind flap, need petscan, surgery scheduled 4/16/10
---update passed away 8-27-11---
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#28841 11-12-2007 05:25 PM | Joined: Apr 2006 Posts: 794 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Apr 2006 Posts: 794 | Carol....You'll get better answers to your question if you'll re-post it under your own subject line. It's getting lost here.
Good luck with your scan tomorrow. I will be waiting to hear!
I will be going to Houston tomorrow for surgery to repair my drooping eyelid, which is a result of nerve damage done in my neck dissection two years ago. The surg. will be Wed. morning, and, presuming that all goes well, we will be back home on Thursday afternoon. This is "small potatoes" compared with what so many have to deal with.
Colleen--T-2N0M0 SCC dx'd 12/28/05...Hemi-maxillectomy, partial palatectomy, neck dissection 1/4/06....clear margins, neg. nodes....no radiation, no chemo....Cancer-free at 4 years!
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