#26971 11-21-2004 02:41 PM | Joined: Apr 2004 Posts: 482 "Above & Beyond" Member (300+ posts) |  "Above & Beyond" Member (300+ posts)
Joined: Apr 2004 Posts: 482 | Brett, Your doing good partner, keep up the good work. Remember, planning for the good and living in the good is as easy as planning for the bad and living there, its just that the good side is more fun. So stay in the good side.
Ed, decolores, brother. Hope the Kairos experience was meaningful.
Regards, Kirk Georgia
Stage IV, T1N2aM0, right tonsil primary, Tonsilectomy 11/03, 35 rad/3cisplatin chemo, right neck dissection 1/04 - 5/04.
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#26972 11-22-2004 07:29 AM | Joined: Dec 2003 Posts: 2,606 Likes: 2 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | Decolores to you, too, Kirk.
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
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#26973 11-22-2004 10:39 AM | Joined: Aug 2004 Posts: 217 Platinum Member (200+ posts) | | Platinum Member (200+ posts)
Joined: Aug 2004 Posts: 217 | Brett,
I'm just now catching up with all of you, and will redouble my prayer efforts. Tom's post-chemo/radiation scan showed suspicious nodes on the LEFT side, and now he will be facing 2 dissections. He hasn't said too much - other than 'let's get it all out of me' - but his actions/emotions show that he is concerned, and scared. We are keeping busy until surgery date - - - the surgeon offered to have Tom come back in to discuss the new findings, but Tom said 'No," as nothing will change the outlook. We'll pray your 'fullness' is nothing more than that - and that Tom's 'suspicious' nodes are nothing more than that!
Nicki
Nicki, wife of Thomas
dx July 2004, SCC, Stage 4 Tonsil. Tx begun 8/4/04. Cisplatin/Xeloda x 4; IMRT 7 wks, 8/7 - 10/25/04 Modified Radical Dissection (right), Selective Dissection (Left) 12/10/04.
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#26974 11-24-2004 01:27 AM | Joined: Apr 2004 Posts: 482 "Above & Beyond" Member (300+ posts) | | "Above & Beyond" Member (300+ posts)
Joined: Apr 2004 Posts: 482 | Nicki, my prayers are with you and Tom. I was told I had suspicious nodes, also, and that's why they wanted to do the neck dissection. I would have done it anyway, but it turned out all of the cancer had been destroyed by the rad/chemo, so don't worry too much, it may just be the dead cells or swelling causing the scan to see something suspicious.
Regards, Kirk Georgia
Stage IV, T1N2aM0, right tonsil primary, Tonsilectomy 11/03, 35 rad/3cisplatin chemo, right neck dissection 1/04 - 5/04.
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#26975 11-24-2004 06:47 AM | Joined: Aug 2004 Posts: 217 Platinum Member (200+ posts) | | Platinum Member (200+ posts)
Joined: Aug 2004 Posts: 217 | Thanks, Kirk! I wanted to hear things like that! I will admit that the docs said they nodes could be dead, and we could 'wait and see,' but none of us liked that idea. Hope you are able to enjoy lots of your favorite things this holiday  I see your journey began a year ago - - God bless you - - Hugs from Virginia! Nicki
Nicki, wife of Thomas
dx July 2004, SCC, Stage 4 Tonsil. Tx begun 8/4/04. Cisplatin/Xeloda x 4; IMRT 7 wks, 8/7 - 10/25/04 Modified Radical Dissection (right), Selective Dissection (Left) 12/10/04.
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