#26888 10-31-2004 10:37 AM | Joined: Sep 2003 Posts: 1,244 Patient Advocate (1000+ posts) | Patient Advocate (1000+ posts) Joined: Sep 2003 Posts: 1,244 | Hi Chis Hit it with all the surgery you can, when it's gone it's gone, that what I have done, was hard and a lot of people thought it was over the top, but I know from this forum, no good early surgery is ever over the top, when it's gone it gone... end of story.. that road might be hard but it saves a repeat perforance.. good luck.. Sunshine... love and hugs Helen
SCC Base of tongue, (TISN0M0) laser surgery, 10/01 and 05/03 no clear margins. Radial free flap graft to tonsil pillar, partial glossectomy, left neck dissection 08/04
| | |
#26889 11-01-2004 07:08 AM | Joined: Oct 2004 Posts: 3 Member | Member Joined: Oct 2004 Posts: 3 | Hi Chris,
I wanted to say hello to a fellow newbie. I was diagnosed with SCC just over a month ago and am trying to make heads and tails of all this. I have an 18 month old so I think I can imagine some of the things you are feeling. I try and live in the moment. It's hard sometimes, but it helps when I am overwhelmed with it all. As the others have said, become informed and go for a second opinion. We'll get through this!!
Lisa | | |
#26890 11-01-2004 11:57 AM | Joined: May 2003 Posts: 928 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: May 2003 Posts: 928 | Chris I just wanted to say welcome to the site . You have been given good advice ..go get that second opinion please! Don`t mess about with this....Can`t hurt, might save your life .
Take care Marica
Caregiver to husband Pete, Dx 4/03 SCC Base of Tongue Stage IV. Chemo /Rad no surgery. Treatment finished 8/03. Doing great!
| | |
#26891 11-01-2004 01:42 PM | Joined: Nov 2002 Posts: 274 Platinum Member (200+ posts) | Platinum Member (200+ posts) Joined: Nov 2002 Posts: 274 | Chris,
You may, insurance permitting, want to get that second opinion elsewhere. I'm not questioning the integrity or competency of you doctors, but I would assume partners would be on the same, or a similar, page. Are you near NYC? Lots of great places there. You appear to have an early stage cancer and that, aside from no cancer, is the best news you can get. Now, if you were late stages where would you go? Go there for your second opinion. Your first shot is your best shot!
Good luck, Glenn | | |
#26892 11-01-2004 02:01 PM | Joined: Sep 2004 Posts: 7 Member | OP Member Joined: Sep 2004 Posts: 7 | I guess it might be helpful to go elsewhere, when I first thought about my doctors partner I just figured that there is no reason to believe they would concur for the sole reason thet they are in the same practice. From what I have reasearched so far his current plan seems to be what is standard practice. I will have more to go on as soon as I get the PET/CT scan. I am certainly not ruling out going elsewhere...just taling one step at a time. After the Pet results I will take that and the path report to get the second opinion. | | |
#26893 11-02-2004 11:46 AM | Joined: Apr 2004 Posts: 482 "Above & Beyond" Member (300+ posts) | "Above & Beyond" Member (300+ posts) Joined: Apr 2004 Posts: 482 | Lisa, welcome to the site. Sorry you needed to find us. Would suggest you start a new thread of your own. That way we can better help you through this new experience you are entering. Some of the other folks are more skilled than I with how to manipulate this site, perhaps they can move it for you. At any rate, where are you in your treatment? Are you at a comprehensive cancer treatment center with a team of doctors working on your case? What is the stage and size of your cancer? Let us know and we will try to help you anticipate what's coming.
Regards, Kirk Georgia Stage IV, T1N2aM0, right tonsil primary, Tonsilectomy 11/03, 35 rad/3cisplatin chemo, right neck dissection 1/04 - 5/04.
| | |
#26894 11-02-2004 01:57 PM | Joined: Mar 2004 Posts: 117 Gold Member (100+ posts) | Gold Member (100+ posts) Joined: Mar 2004 Posts: 117 | Chris,
I was diagnosed with stage I T1N0M0 tongue SCC at age 41 and I insisted on a modified neck dissection in addition to a wide resection of the tongue for two reasons: 1. there is a 20% chance of occult spread to the lymph nodes that won't show up on any scans; 2. this disease spreads through the lymph nodes and if they aren't present and I have a local recurrence, it will be more difficult for it to metastasize. The modified neck dissection is a relatively low risk surgery but I had to do a lot of talking to persuade my surgeon at the University of Pennsylvania to do it. Personally I have a lot more peace knowing that my lymph nodes were clear and now they are gone.
Barb
SCC tongue, stage I (T1N0M0), partial glossectomy and modified neck dissection 7/1/03
| | |
Forums23 Topics18,168 Posts196,927 Members13,104 | Most Online458 Jan 16th, 2020 | | | |