#26759 10-18-2004 07:09 AM | Joined: Dec 2003 Posts: 2,606 Likes: 2 Patient Advocate (old timer, 2000 posts) |  Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | Maria,
I am sorry to hear the news. I am hoping for the right words to come when you tell the kids and a speedy recovery for you.
Ed
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
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#26760 10-21-2004 08:09 PM | Joined: Mar 2004 Posts: 76 Supporting Member (50+ posts) | | OP Supporting Member (50+ posts)
Joined: Mar 2004 Posts: 76 | Thanks to you all for responding ...I do apologize I have been off the internet due to cable problems and guess what?..I missed you! I had a wonderful day today-my cable guy turns out to be caregiver for wife of breast cancer(this year) and he will be going to MY SAME H & N surgeon on Monday for thyroidectomy (which I am waiting for!)
Small world isnt it?...had the neighbours curious I will bet !...both of us feeling each others neck lumps!!
Anyway I am glad to be back and feel much more positive with what needs to be faced as it seems I am in good company. (We joked about our soon to be "second smiles" on our necks, ya know.. wrinkles, turtlenecks, etc!
Take care
Maria
01/04 SCC of tongue base, T1N0M0
03/04 Partial glossectomy
04/04 Rad
12/04 Throidectomy(follicular cancer)
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#26761 10-21-2004 10:39 PM | Joined: May 2004 Posts: 137 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: May 2004 Posts: 137 | Tiamaria, I also had thyroid probelms right after my first ORAL CANCER in 1989. It turned out not to be CANCER of the thyroid, however the radiation ended up destroying it. I had to have half of it removed for it was so enlarged it was cutting of my air way. I was told way back in 1989 that it would be better for me if the CANCER was in the thyroid for they can just take the whole thing out and you can take pills to take care of all the things that the thyroid does do for the body, and believe me it does a lot. I am now on synthroid for the rest of my life. I have had hardly any real probelms with all of that...LOOKING back I wish it had of been thyroid CANCER instead of TONGUE. At least maybe I could talk and eat today...WHO KNOWS? I will pray for you that the news will be good...Always Miss Vicki | | |
#26762 10-22-2004 10:50 AM | Joined: May 2003 Posts: 928 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: May 2003 Posts: 928 | TiaMaria
Oh how I wish you did not have to go through this S*** again. On the positive side ... you can live without the thyroid right! Just be a pain to the Docs, get all the info as Helen said..I took a recorder with me to all appointments as my brain was not to be trusted.
Lots of prayers and good wishes coming your way.
Miss Vicki ...you are a trouper, you have had to deal with so much. I dont know if I could have handled everything as well as you have.
Love to all
Marica
Caregiver to husband Pete, Dx 4/03 SCC Base of Tongue Stage IV. Chemo /Rad no surgery. Treatment finished 8/03. Doing great!
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#26763 10-23-2004 09:52 AM | Joined: Sep 2003 Posts: 1,244 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Sep 2003 Posts: 1,244 |
SCC Base of tongue, (TISN0M0) laser surgery, 10/01 and 05/03 no clear margins. Radial free flap graft to tonsil pillar, partial glossectomy, left neck dissection 08/04
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#26764 10-23-2004 09:53 AM | Joined: Sep 2003 Posts: 1,244 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Sep 2003 Posts: 1,244 | Maria
Have you got a date yet? Don't worry about the scar I know someone who had the op 8 years ago, about twice the width of my trachy scar, anyway good excuse for a gorgeous gold choker necklace, keep us up to date, please...
Sunshine... love and hugs
Helen
SCC Base of tongue, (TISN0M0) laser surgery, 10/01 and 05/03 no clear margins. Radial free flap graft to tonsil pillar, partial glossectomy, left neck dissection 08/04
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#26765 10-23-2004 09:53 AM | Joined: Sep 2003 Posts: 1,244 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Sep 2003 Posts: 1,244 | Maria
Have you got a date yet? Don't worry about the scar I know someone who had the op 8 years ago, about twice the width of my trachy scar, anyway good excuse for a gorgeous gold choker necklace, keep us up to date, please...
Sunshine... love and hugs
Helen
SCC Base of tongue, (TISN0M0) laser surgery, 10/01 and 05/03 no clear margins. Radial free flap graft to tonsil pillar, partial glossectomy, left neck dissection 08/04
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