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#26681 09-05-2004 03:55 AM | Joined: Apr 2004 Posts: 156 Gold Member (100+ posts) |  Gold Member (100+ posts)
Joined: Apr 2004 Posts: 156 | Karen,
It is unfair for you and Don to endure this again. You're in my prayers.
Sabrina | | |
#26682 09-05-2004 08:01 AM | Joined: Dec 2003 Posts: 47 Contributing Member (25+ posts) | | OP Contributing Member (25+ posts)
Joined: Dec 2003 Posts: 47 | You are all so wonderful. We need and really appreciate all the prayers and know that you are all in mine. This board has done so much to help me keep my perspective. You each have your own losses, pain, and fears. You all know how I feel. Where else can I get that understanding. When I began to realize this @^%$%#@ disease had taken his ability to eat and drink, probably forever changing his social life, I was heartbroken. But I never imagined for a moment it would also take his beautiful voice. Johnny Cash? No, Donny Nash. For real. It's just so cruel. It was 8 days in the hospital that he was unable to talk. I longed to hear it again. When they finally put the new trach in, he suprised me by calling me on the phone! I was at home totally unexpecting. I'll never forget how I felt that day, and I know how good it made him feel. I had become a first time grama the night before and his first words to me were "Hi Grama!" To loose that voice forever is unimaginable to me right now and to loose him... beyond comprehention. Next Wednesday when we go for the PET, they are FINALLY going to address the depression issues. I don't know what took so long. Just keeping on top of the physical stuff I guess. Please keep him in your prayers. Thank you all sooo much for being here when I need to vent.
Karen
Caretaker/Longtime Girlfriend of Don. Dx 10/31/03 SCC Stage IV T2N3bMO right tonsil/tongue base. 35 IMRT w/8 Chemos,Biopsy 4/5/4 STILL pos. Radical rightside 4/12/4 Reoccurred late August 04 God took his hand from me November 23rd, 2004
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#26683 09-05-2004 08:12 AM | Joined: Oct 2016 Posts: 284 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: Oct 2016 Posts: 284 | Karen,
I will be praying for you both too. I'm so sorry for what you are going through.
Hugs,
Dani
Originally joined OCF on 12/12/03 as DaniO or Danijams
Dani-Mom SCC BOT & floor of mouth surgery-recur then surgery/rads & chemo completed 3/04
surgery 11/06 to remove dead bone & replace jaw w/ leg bone & titanium plate
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#26684 09-07-2004 06:06 AM | Joined: Dec 2003 Posts: 2,606 Likes: 2 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | Karen,
I am back now and I just wanted you and Don to know I have been thinking about both og you all weekend. I am praying for His intervention and divine guidance and widom for the medical team right now.
Ed
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
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#26685 09-12-2004 10:24 AM | Joined: Aug 2004 Posts: 30 Contributing Member (25+ posts) | | Contributing Member (25+ posts)
Joined: Aug 2004 Posts: 30 | Karen,
I feel for you and Don! I can relate and understand what you are going through as my sister lost her voice in July from this horrible disease. I am praying for you both and that you have positive results with the Petscan.
God Bless,
Sister of Kim, a 24 year old cancer fighter diagnosed on 12/5/04, who fought strong and hard and died with dignity and honor on 1/3/05.
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