#26572 09-25-2004 08:12 AM | Joined: Sep 2003 Posts: 1,244 Patient Advocate (1000+ posts) |  Patient Advocate (1000+ posts)
Joined: Sep 2003 Posts: 1,244 | Hi Margie
Well done GIRL I hate biopsies, but they have to be done, so we'll be with you waiting for the results. Try and get some soluble pain relief, I'm sure your drug store could help...
Sunshine... love and hugs
Helen
SCC Base of tongue, (TISN0M0) laser surgery, 10/01 and 05/03 no clear margins. Radial free flap graft to tonsil pillar, partial glossectomy, left neck dissection 08/04
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#26573 09-28-2004 05:02 PM | Joined: Dec 2003 Posts: 2,606 Likes: 2 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | Hi Margie!
I am hoping for the best news for you for sure. My sister-in-law had leukoplakia on her tongue and the dentist lasered it off. It came back after about 2 months and she had a biopsy last Friday, expecting results tomorrow. I will be hoping and praying for good news for both of you.
Take care,
Ed
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
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#26574 09-29-2004 10:41 AM | Joined: Apr 2004 Posts: 26 Contributing Member (25+ posts) | | OP Contributing Member (25+ posts)
Joined: Apr 2004 Posts: 26 | Hi Everybody,
Thanks from the bottom of my heart for your prayers and encouragement. Just went back to the ENT and got my biopsy results. NEGATIVE FOR CANCER. I am thrilled. He explained to me that there is dysplasia which is mild and is not cancerous. The doctor explained it this way. There is mild, then moderate, then severe, then cancer. I am on the long end of the stick with "mild" and will be scoped every 3 months for the first year. If there is no change for the worse (he said it even could get better) then I will be scoped 2 times a year. I don't want to get ahead of myself, but that sounds good to me. My voice is coming back little by little and the doctor was pleased. He said it should take about a month before it's back to normal.
Again, thanks for all your prayers and kindness. I will keep all of you in my prayers.
Ed, please let me know how your sister-in-law makes out with her biopsy. I will be praying for her to receive good news.
Hugs to All,
Margie | | |
#26575 09-29-2004 11:16 AM | Joined: May 2003 Posts: 928 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: May 2003 Posts: 928 | Woohooo Marjorie...what great news , what a big old relief. I am so happy for you and your family.
Take care
marica
Caregiver to husband Pete, Dx 4/03 SCC Base of Tongue Stage IV. Chemo /Rad no surgery. Treatment finished 8/03. Doing great!
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#26576 09-29-2004 01:36 PM | Joined: Dec 2003 Posts: 2,606 Likes: 2 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | Margie,
I am so happy and relieved for you! I will be praying for this pest to go away from you for good.
Ed
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
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#26577 09-30-2004 12:50 AM | Joined: Apr 2004 Posts: 482 "Above & Beyond" Member (300+ posts) | | "Above & Beyond" Member (300+ posts)
Joined: Apr 2004 Posts: 482 | Margie, what wonderful news! No cancer! Great. Will join Ed in prayer for continued improvement and better and better reports in the future.
Regards, Kirk Georgia
Stage IV, T1N2aM0, right tonsil primary, Tonsilectomy 11/03, 35 rad/3cisplatin chemo, right neck dissection 1/04 - 5/04.
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#26578 09-30-2004 03:31 AM | Joined: Dec 2003 Posts: 2,606 Likes: 2 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | Margie (and all),
My sister-in-law received the ALL CLEAR pathology report and only had a small chunk of her tongue removed. It sounds like she will be right behind you on those regular visits for a while. I am so happy for both of you.
Ed
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
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#26579 09-30-2004 08:29 AM | Joined: Oct 2003 Posts: 89 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Oct 2003 Posts: 89 | Hello Marjorie,
So glad to hear of your, & others, negative biopsy results. Waiting and worrying for those results can be SO difficult.
I had recurring leukoplakia, and several biopsies, on my tongue.
The odds of leukoplakia becoming cancer are small but it does put you at greater risk than usual. It's very imprtant to remember those follow up appointments and notify the doctor of any changes. As you found, a biopsy is a good tool to give you added information.
I find it interesting that your mother had oral cancer (sorry to hear that). There does not seem to be imformation about this type of cancer running in families - although there is so much about this type of cancer that is not yet known. I think her cancer would be something the drs would want to knowon follow-up visits.
Good luck and take a good deep breath!
michelle
History of leukoplakia <2001-2004. SCC lateral tongue 9/03; left radical neck dissection & hemiglosectomy 10/03, T2-3,N0M0; 28 IMRT radiation completed 12/03. 30 HBO dives Oct-Nov 04 for infections and bone necrosis -mandible.
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