#26355 05-04-2004 06:25 AM | Joined: May 2004 Posts: 10 Member | OP Member Joined: May 2004 Posts: 10 | The other day I left a post about me going for a biopsy and mentioning HPV. Nobody responded. Well Im leaving for my biopsy now, I hope it all turns out well. I was hoping to hear from somebody before I left but Im guessing you all are a bit busy yourselves trying to stay strong and healthy. I wish nothing but the best for all of you and your families and if I do not hear anything from anybody I will know I am not welcome here and will deal with this, whatever it is, just like I have everything else. Alone... | | |
#26356 05-04-2004 06:40 AM | Joined: Jul 2003 Posts: 382 Likes: 3 Platinum Member (300+ posts) | Platinum Member (300+ posts) Joined: Jul 2003 Posts: 382 Likes: 3 | Maria- Wow, sorry I missed hooking into the computer yesterday. You must have caught a bizzare time when no one was home because the site is usually busting with support! And no, you are not alone!! You have prayers coming your way right now. Don't you dare give up! When you check back in from your biopsy just know that there was someone with you! Hope you hear good negative news and then you won't have to join this club of people that would rather not be here! - Kris
SCC Stage IV left tonsil neck disection 3/02 radiation finished 6/02 chemo finished 9/02 Stage 2A left breast cancer 3/09, chemo and radiation, finished treatment 2/7/10 -Stage 2 right beast cancer 10/14 chemo and radiation Every day is still a gift :-)
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#26357 05-04-2004 07:09 AM | Joined: Sep 2003 Posts: 1,244 Patient Advocate (1000+ posts) | Patient Advocate (1000+ posts) Joined: Sep 2003 Posts: 1,244 | Maria Hey we really messed up on this one.. not like us.. this is the club no one wants to belong to.. but if you have to join you will be welcome here forever... had my biopsies 3 weeks ago.. hope surgery next week... know the next few days will be very long for you... but remember "it aint cancer till they say it is"... a motto we all hang on to.. take care and come back and tell us how it went.. we will be here for you during the wait for the results.... love and hugs Helen
SCC Base of tongue, (TISN0M0) laser surgery, 10/01 and 05/03 no clear margins. Radial free flap graft to tonsil pillar, partial glossectomy, left neck dissection 08/04
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#26358 05-04-2004 07:54 AM | Joined: Apr 2004 Posts: 143 Gold Member (100+ posts) | Gold Member (100+ posts) Joined: Apr 2004 Posts: 143 | Maria, I`m sorry also, sometimes when we don`t have the experience with a certain issue, it`s hard to respond with anything useful.......but stick with us. We will be here for you, you can absolutely count on us.....none of us are quiters, Love and Hugs, Dee | | |
#26359 05-04-2004 10:08 AM | Joined: May 2004 Posts: 10 Member | OP Member Joined: May 2004 Posts: 10 | Thank you so much for the responses, Im sorry if I was so abrupt but to be honest I was scared. The biopsy removal was Not bad at all, it took longer to numb my tongue than to actually remove it. The surgeon said I should have the results back by Friday morning, to give him a call. I wonder if he meant at 12:01am on Thurs. or perhaps 9am on Friday lol While he was looking he did say he saw the lump where my tonsil was suppose to be, but I told him I had them removed when I was three years old. Told me 40 years ago they practically RIPPED them out OUCH... Said they usually leave some behind and in this instance it can very well be the one on the right has always been larger than the one on the left and I just never noticed ituntil I got the growth on my tongue on the RIGHT side and became much more aware of it. But he suggested I go back to my ENT which I already called and have an apt. on May 12th. To all of you, I have read your posts and my heart and prayers go out to you. None of you are QUITTERS and I apologize once again if I gave that impression. I would make the Sad smiley face but I dont know how to do it. DARN DARN DARN lol | | |
#26360 05-04-2004 10:22 AM | Joined: Mar 2003 Posts: 251 Gold Member (200+ posts) | Gold Member (200+ posts) Joined: Mar 2003 Posts: 251 | Maria, I know that waiting for test results is really hard. Hope you have something to keep your mind occupied until Friday.
Also, sometimes when people post here somebody else comes along and posts to the same area and the previous post gets buried before anybody has a chance to see it. I know that has happened to me once or twice. Be assured no slight was intended to you.
I'll be thinking of you and praying for good news.
Anita
Husband Dx 12/02 Stage 4 Tonsil Cancer T1N2bM0; surgery, radiation, chemo 1/03 - 4/03.
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#26361 05-04-2004 11:47 AM | Joined: Apr 2004 Posts: 156 Gold Member (100+ posts) | Gold Member (100+ posts) Joined: Apr 2004 Posts: 156 | I'm so sorry your posting was missed, too. Something odd must have definitely happend, but glad you're getting responses now. I was given the same spiel about HPV. Harvard Medical is currently studying the connection between HPV and head/neck cancers. Hopefully their findings will result in similar tests to pap smears. We're keeping our fingers crossed for good news, Sabrina | | |
#26362 05-05-2004 12:49 AM | Joined: Mar 2004 Posts: 164 Gold Member (100+ posts) | Gold Member (100+ posts) Joined: Mar 2004 Posts: 164 | Here' hoping that the biospy comes back benign. Sorry about the HPV posting, I just don't know enough about that to post anything. You are not alone! Lynn
Stage 3, N0, M0 oral tongue cancer survivor, 85-90% of tongue removed, neck disection, left tonsil removed, chemo/radiation treatments, surgery 11/03, raditation ended 1/04, lung mets discovered 4/04,
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#26363 05-05-2004 02:19 AM | Joined: Jan 2004 Posts: 1,116 Patient Advocate (1000+ posts) | Patient Advocate (1000+ posts) Joined: Jan 2004 Posts: 1,116 | Hi Maria, praying you get good results from the biopsy!!!!!!!!!God Bless, Carol
Diagnosed May 2002 with Stage IV tongue cancer, two lymph nodes positive. Surgery to remove 1/2 tongue, neck dissection, 35 radiation treatments. 11/2007, diagnosed with cancer of soft palate, surgery 12/14/07, jaw split. 3/24/10, cancer on tongue behind flap, need petscan, surgery scheduled 4/16/10 ---update passed away 8-27-11---
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#26364 05-05-2004 12:19 PM | Joined: May 2004 Posts: 10 Member | OP Member Joined: May 2004 Posts: 10 | Hi everybody, just got home from work and signed right online to read the newest posts. This group is such an inspiration, when I feel fear gripping me I sign right up to this post and somehow I feel better. As Ive said, the biopsy shouldnt be back til Friday, however, since the growth was removed from my tongue, I can see better into my throat, and on the right side I see a new growth. When I went to the surgeon to have the growth on my tongue removed I should it to him, he said it looks like my tonsil is swollen, only thing is, I had them out when I was 3 years old. Can a person get tonsil cancer if tonsils were removed? I dont see it on the left side, only the right. However, I must also say, I only saw this on Saturday when I was looking in my mouth at the growth on my tongue, so dont really know if its always been there or not. I have had a sore throat for the last couple of days, could it be its swollen on one side due to this? My oral surgeon said he doesnt go any further back then where he did, I have to go back to my ENT, which I have a scheduled apt. for on May 12th. Im just so tired of being afraid all of the time. Last May my doctor also did a sonogram of my thyroid and found a 3mm nodule, went to the Endocrinologist and he said to watch it, went back to him in Jan. Thyroid blood tests came out good, and the nodule did NOT increase in size, said come back in a year. A lil over a week ago, had bloodwork done, T3 UPTAKE was low, and now ofcourse you all know what Im thinking, Thyroid, growth on tongue, growth where tonsils used to be-this doesnt sound good to me. I go to the dentist frequently for work, I cant imagine all the times they look in my mouth they havent see some of these things. I dont know if Im now just being paranoid of it is is All somehow related and Nobody has picked up on it. If somebody has had similiar things happen to them or can give me some encouraging news, I would really appreciate it. Thanks to all. And Mark and Dan didnt know you were both awake til I read the earlier posts. Welcome back to you both... | | |
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