#2545 05-27-2004 06:44 AM | Joined: Sep 2002 Posts: 642 "Above & Beyond" Member (500+ posts) | OP  "Above & Beyond" Member (500+ posts)
Joined: Sep 2002 Posts: 642 | Friends,
Recently I began noticing that when I get out of bed quickly, especially in the middle of the night, I experience a lack of equilibrium. It has become more frequent lately, happening sometimes when I get up from my desk or especially when rising after bending over with my head down.
A good friend of mine is a cardiologist who said that he will check my blood for anemia, etc. when he gets back in town.
Has anyone had an experience with loss of equilibrium?
Danny G.
Stage IV Base of Tongue SCC
Diagnosed July 1, 2002, chemo and radiation treatments completed beginning of Sept/02.
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#2546 05-27-2004 06:52 AM | Joined: Dec 2003 Posts: 2,606 Likes: 2 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | Danny,
I went through that off and on since about 2 months post treatment. Once I actually blacked out and fell. The doctors have checked out the blood and have no explanation. My hematocrit is down a little but they aren't concerned.
Ed
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
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#2547 05-27-2004 07:10 AM | | Anonymous Unregistered | | Anonymous Unregistered
| Danny,
I live with that daily. And it has been worse since treatment. Mine is caused mostly by low blood pressure.
I seem to catch myself before falling, but have had this all my life at certain times. (my daughter does too)
This of course is just me, does your blood pressure run low? (and yes I have been slightly anemic lately)
Laid back in Texas,
Dinah | | |
#2548 05-27-2004 08:16 AM | Joined: Mar 2004 Posts: 164 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: Mar 2004 Posts: 164 | Danny,
Maybe it just us Texas folks that are off balance? ha ha!
I have the same problem. I think mine is low blood pressure too. I've been told I'm not drinking enough water.
I get the exact sensation, when from lying down to standing. I have to let my legs hang down from the bed or sofa for a few seconds then stand up. It does seem to help.
Dizzy in Dallas
Lynn
Stage 3, N0, M0 oral tongue cancer survivor, 85-90% of tongue removed, neck disection, left tonsil removed, chemo/radiation treatments, surgery 11/03, raditation ended 1/04, lung mets discovered 4/04,
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#2549 05-27-2004 09:26 AM | Joined: Jul 2003 Posts: 1,163 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jul 2003 Posts: 1,163 | Lynn & Danny,
Problem might lie in being a Cowboy fan, Packer
fans don't experience equilibrium problems!!!
Got to have a sense of humor now!!!
I have had no problems with it at all.
Dan
Daniel Bogan DX 7/16/03 Right tonsil,SCC T4NOMO. right side neck disection, IMRT Radiation x 33.
Recurrance in June 05 in right tonsil area. Now receiving palliative chemo (Erbitux) starting 3/9/06
Our good friend and loved member of the forum has passed away RIP Dannyboy 7-16-2006
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#2550 05-27-2004 10:54 AM | Joined: Dec 2003 Posts: 528 "OCF Down Under" "Above & Beyond" Member (500+ posts) | | "OCF Down Under" "Above & Beyond" Member (500+ posts)
Joined: Dec 2003 Posts: 528 | Hi Danny I have had that problem. Even had a brain scan to see if I had any small blood clots. My standing blood pressure is much lower than my sitting blood pressure. Still have the problem occasionally but it is improving. Best wishes from Helen, with love 
RHTonsil SCC Stage IV tx completed May 03
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#2551 05-27-2004 10:58 AM | Joined: Sep 2002 Posts: 642 "Above & Beyond" Member (500+ posts) | | OP "Above & Beyond" Member (500+ posts)
Joined: Sep 2002 Posts: 642 | I have been out of treatment since Sept. of 2002, so it would seem that the problem is not related to treatment. But yes, Dinah and Lynn, I too have low blood pressure, and in the past have felt a slight sensation when my head was down. What concerns me is that it is getting more pronounced and happening more frequently.
I assume that it is no big deal, and I will see my Dr. buddy when he gets back in town. Thanks for all of your thoughts. By the way Dan, we in Houston are Texans fans, not Cowboys fans.
Danny G.
Stage IV Base of Tongue SCC
Diagnosed July 1, 2002, chemo and radiation treatments completed beginning of Sept/02.
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#2552 05-27-2004 11:01 AM | Joined: Sep 2003 Posts: 153 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: Sep 2003 Posts: 153 | hi Danny,
my experinece is like that of others who have posted... however during treatment i talked with a lady whose husband had this problem... for him, radiation had caused a problem with his carotid(sp?) artery. he had them bored out... so i had my checked with a sonar scan... they let blood thru like a freight train...
if you feel a need, talk to your doc about a scan. it's simple and not a big deal.
cu,
larryb | | |
#2553 05-27-2004 11:17 AM | | Anonymous Unregistered | | Anonymous Unregistered
| Danny,
Please let us know what you find out. I also had a brain scan when I first told my doctor.
If you find out it is other than low blood pressure please share the info.
How about those Spurs!!!!
Dinah | | |
#2554 05-27-2004 11:20 AM | Joined: Sep 2002 Posts: 642 "Above & Beyond" Member (500+ posts) | | OP "Above & Beyond" Member (500+ posts)
Joined: Sep 2002 Posts: 642 | Larry,
Thanks...actually when I spoke to my cardiologist friend on the phone the first thing that he mentioned that he wanted to do after looking at the blood pressure and lab work on the blood was to check out the carotid arteries.
I appreciate all of the support, as always, and will keep you posted if I learn anything.
Danny G.
Stage IV Base of Tongue SCC
Diagnosed July 1, 2002, chemo and radiation treatments completed beginning of Sept/02.
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