Good luck tomorrow FRANK !!


As far as How I knew.... I think I just did . I had a sore that didnt heal and try to Ignore it , but in my heart I knew and maybe thats why . although it didnt seem like It could be ..because I met no risk fatcrs . I had my GP, My dentist and Oral surgeon All tell me NO WAY and the biospy comes back ..when they called me 2 days later I knew for sure ..... I will be thinking of you tomorrow !

Shar

Thanks for the encouraging words. The day is here. I hope we get some information today. The unknown is driving me crazy.

I slept well last night. I am at work now trying to get a few things done before my appointment.

Please keep me in your thoughts and prayers today. Thanks!

Well I am back from the ENT and Hospital...

Went in today at 2pm and was seen rather quickly. They did not seem to be busy. I sat in the chair in the exam room waited anxiously. They already had the information from my dermatologist. He looked at my lip and had a hard time finding the location of the original lump that was removed. He gave me a mirror so I could help him find it. He looked in my nose, down my throat, in my mouth, and felt my neck. He said that he did not think that there was anything to be worried about. I smiled and repeated to him the nothing to worry about phrase in the form of a question. He could tell I was confused and concerned.

It appears that the original removal healed so well that he thinks that the growth may have been taken with the original cut. Is that possible that the dermatologist got it all by luck with one fell swoop?

Anyway, tomorrow he is going to do a leison removal? Did I say that right? Basically he explained that he will cut into the area and have it biopsied. If there is cancer, then he cuts again and has that biopsied. He made it sound that he will cut and biopsy until there is no cancer found. He seems to think that the cutting will be minimal.

He also has me scheduled for a PET scan. I am sure you all have heard of this. Something with dye and scanning the area of the head and neck. He warned me that the PET returns a lot of false positives. He said that if there is cancer on the left side of my face and it returns something on the right side of my face then it's probably nothing to worry about. Does this sound right to you?

If any of this sounds wierd, please let me know. I'll ask more questions before the procedure tomorrow at 11am.

After the appointment we drove to the surgical center for EKG, CBC, and urine test. I also pre-admitted for the surgery. I assume as long as these things come out ok, my procedure is a go.

If everything comes out ok with these two procedures, would I be crazy to get at 2nd opinion just to be sure? Maybe a dentist to look and give me an opinion?

I feel a little better now that I made it through today but will be glad once this is over tomorrow!

Thanks for all of your support! I'll update again tomorrow.

For me that is what they did on my tongue they removed the lesion and biopsied it, then called me 2 days later to have me come in , I was supose to come back in 2 weeks , they werent suspecting cancer at ALL ,,they kept saying NO WAY DON"T EVEN THINK IT >>NOT EVEN POSSIBLE . BOY were they WRONG HUH !!

A PET scan reminds me of a CT or an MRI only Not loud like a MRI and it take about 45 min or so in machine I have only had one so I may be mistaken ..someine else may answer better on that subject , But I also had a full body scan . I have heard of false positive , specially after surgery or radiation .

I wish you the Best and WAIT to hear !!! Holding you in thought !!

SHar

Thanks Shar!

I'll keep you posted.

[quote] If everything comes out ok with these two procedures, would I be crazy to get at 2nd opinion just to be sure? Maybe a dentist to look and give me an opinion? [/quote]I do not think anyone would call you crazy for getting a second opinion simply due to the large amount of missed diagnosis. However the PET scan should tell a bigger story.

I sit here tonight with a load off my shoulders. The biopsy of the larger section of my lip showed no cancer. I am now stiched up and in a little discomfort. I go for followup on Tuesday.

I asked him about doing the PET scan today. He said he didn't think I needed one but if I wanted one, he would do it. I told him I'm all for doing it for my peace of mind.

He told me that either the dermatologist got it all when she cut it or the pathologist "over diagnosed" it. Either way, I think that's good news.

I will let you know what happens Tuesday.

God Bless!

Bonne nouvelle Frank

I missed updating Tuesday.

Saw the ENT. Final pathology report says no cancer in tissue he took from my lip. He asked me if I still wanted to do the PET. He seemed to think that it was unnecessary.

I told him, I would feel better if we did it. So I am scheduled for a PET today at 8am.

Now for the million dollar question...

What happens after this test? I am scheduled to get the results the week after Thanksgiving. I know this test gives a lot of false positives. What is the next step if spots show up? How will they rule out a true hot spot and a false positive?

Thanks!

Hey, Frank- just one question- you have seen several different Docs during all of this-but I don't recall reading if they are affiliated with a major cancer center. If PET turns out to have any questionable areas, I would want to go to the nearest CCC for a final evaluation. { and keep getting looked at by someone very good for the next few years]. Amy in the Ozarks