#2266 04-12-2004 06:55 PM | Joined: Mar 2003 Posts: 1,384 Likes: 1 Patient Advocate (1000+ posts) | OP  Patient Advocate (1000+ posts)
Joined: Mar 2003 Posts: 1,384 Likes: 1 | Hi everyone, Just a note that I will not be able to post for the next several weeks starting Wednesday. I didn't want you to worry. It is nothing serious except a TRIP TO EUROPE! Sue and I have put off our honeymoon for over 20 years and it is about to happen. Sweden, Denmark, Germany and ending the last week in Belgium, floating on a canal boat. Grandma's got the kids and we are going to have a ball! Just got back from the ENT for an unschedualed check (just so I could relax a little better) He still thinks I am fine, so relax I will! I think the Vegas in January trip sounds fine and when you live as far north as we do a little warm is good. It also looks like an OCF band is starting to form in some of the other threads? I believe there is a mandolin out there somewhere too. Take care and keep on keeping on. (hows that for hippie speak?) 
Mark, 21 Year survivor, SCC right tonsil, 3 nodes positive, one with extra-capsular spread. I never asked what stage (would have scared me anyway) Right side tonsillectomy, radical neck dissection right side, maximum radiation to both sides, no chemo, no PEG, age 40 when diagnosed.
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#2267 04-12-2004 09:05 PM | Joined: Sep 2003 Posts: 1,244 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Sep 2003 Posts: 1,244 | Hi Mark
Great to have you visit Europe... Bring warm clothes... Spring is late... ENJOY.. Am saving for flights in January...
Love and Hugs
Helen
SCC Base of tongue, (TISN0M0) laser surgery, 10/01 and 05/03 no clear margins. Radial free flap graft to tonsil pillar, partial glossectomy, left neck dissection 08/04
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#2268 04-13-2004 01:30 AM | Joined: Jan 2004 Posts: 1,116 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jan 2004 Posts: 1,116 | Allll right, Mark!!!!!!!!!!! Have a wonderful trip!!!!!!!!!!!!!!!! God Bless! Carol
Diagnosed May 2002 with Stage IV tongue cancer, two lymph nodes positive. Surgery to remove 1/2 tongue, neck dissection, 35 radiation treatments. 11/2007, diagnosed with cancer of soft palate, surgery 12/14/07, jaw split. 3/24/10, cancer on tongue behind flap, need petscan, surgery scheduled 4/16/10
---update passed away 8-27-11---
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#2269 04-13-2004 01:44 AM | Joined: Mar 2004 Posts: 417 "Above & Beyond" Member (300+ posts) | | "Above & Beyond" Member (300+ posts)
Joined: Mar 2004 Posts: 417 | Mark:
Sounds like an excellent trip you guys have scheduled. The three European countries you mentioned are very good choices.. You will remember this for the remainder of your life...
Darrell
Stage 3, T3,N1,M0,SCC, Base of Tongue. No Surgery, Radiationx39, Chemo, Taxol & Carboplatin Weekly 8 Treatments 2004. Age 60. Recurrence 2/06, SCC, Chest & Neck (Sub clavean), Remission 8/06. Recurrence SCC 12/10/06 Chest.
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#2270 04-13-2004 02:22 AM | Joined: Apr 2004 Posts: 143 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: Apr 2004 Posts: 143 | Hey, Mark, have a great trip..........and Keep On Truck`in..............How`s that for Hippie Speak ?????? Hugs and have Fun.......Dee | | |
#2271 04-13-2004 04:34 AM | Joined: Nov 2002 Posts: 458 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Nov 2002 Posts: 458 | Far out Dude! Have a great trip. Off to Australia in a couple of weeks myself. 2 weeks up the east coast in a motorhome, trying to learn to drive on the left side of the road.
Have fun, you deserve it.
Bob
SCC Tongue, stage IV diagnosed Sept, 2002, 1st radical neck dissection left side in Sept, followed by RAD/Chemo. Discovered spread to right side nodes March 2003, second radical neck dissection April, followed by more RAD/Chemo.
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#2272 04-13-2004 05:02 AM | Joined: Sep 2003 Posts: 139 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: Sep 2003 Posts: 139 | Mark,
Have a GREAT time!!!!!!!! Will miss you but don't give us a thought! LOL
Love and God bless
Judy U
Judy U
Stage I SCC floor of mouth, left radical neck dissection 8/03
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#2273 04-13-2004 05:05 AM | Joined: Dec 2003 Posts: 2,606 Likes: 2 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | Hip, hip hooray! I am so excited that you are planning such a fun trip, Mark! Don't forget to carry the wife across the threshold(s) since it is your honeymoon! I hope it is all you want it to be.
Bob, I am curious how you "practice" to drive on the wrong side. I went to Japan year before last and we rented a car. We had to upgrade to a Camry because my wife and sister had such large suitcases that we couldn't get them in the trunk. The rental guy was quite alarmed that we were renting such a large car. We were driving down a side street and I told my wife to avoid the gasping and hollering if I was to close because it was somewhat nerve-racking getting used to the driving anyway. As we passed a family with a baby buggy on one side and a bus on the other, the sudden "THWACK" of the left side rear view mirror woke me up. My wife then remarked calmly, "honey, I believe you are a bit close on my side". As I praised her for her serene warning, I asked that she give me just a bit more warning the next time!
Ed
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
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#2274 04-13-2004 04:51 PM | Joined: Mar 2003 Posts: 1,384 Likes: 1 Patient Advocate (1000+ posts) | | OP Patient Advocate (1000+ posts)
Joined: Mar 2003 Posts: 1,384 Likes: 1 | Thank You all,
Carry over the threshold eh?
I'll give it a try. :p
Mark, 21 Year survivor, SCC right tonsil, 3 nodes positive, one with extra-capsular spread. I never asked what stage (would have scared me anyway) Right side tonsillectomy, radical neck dissection right side, maximum radiation to both sides, no chemo, no PEG, age 40 when diagnosed.
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#2275 04-14-2004 08:56 AM | Joined: May 2003 Posts: 928 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: May 2003 Posts: 928 | Mark as an ex Brit who goes back a lot..just remember..the steering wheel stays in the middle !
Works for me..have a great trip.
Marica
Caregiver to husband Pete, Dx 4/03 SCC Base of Tongue Stage IV. Chemo /Rad no surgery. Treatment finished 8/03. Doing great!
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