#2089 03-25-2004 05:51 PM | Joined: Mar 2003 Posts: 189 Gold Member (100+ posts) |  Gold Member (100+ posts)
Joined: Mar 2003 Posts: 189 | Phew....Mark, you look wonderful!!!!
I may need some help, but I would love to get Dennis' picture up.
You are kicking this beast right where it needs it!
Love,
Mandi
Husband diagnosed with stage III tonsil and floor of mouth cancer in August 2002. Three rounds of chemo/42 RAD treatments. Upper right lung lobectomy in March 2003. (Benign)
| | |
#2090 03-26-2004 09:07 AM | Joined: Dec 2003 Posts: 116 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: Dec 2003 Posts: 116 | Mark
Nice seeing a face with the name. You look great and in good shape! Thanks again for all your support. It's been 3 weeks from my radiation and I'm feeling better but still a lot of pain eating, hope that quites shortly. Still a little fatigued which I guess it cought up with me, I wasn't fatigued until the 5th week of treatment. I'll see if I can follow your instruction to get my picture up.
SCC R-Tonsil T2 NO MO Dec 2003. Completed IMRT Radiation only to tonsils(72Gy) and neck(55Gy)March 04. Detected at age 50.
| | |
#2091 03-26-2004 09:32 AM | Joined: Mar 2003 Posts: 1,384 Likes: 1 Patient Advocate (1000+ posts) | | OP Patient Advocate (1000+ posts)
Joined: Mar 2003 Posts: 1,384 Likes: 1 | Sherrie, Judy, Carol, Minnie, Helen, Flo, Lynn, Mandi, and John! Thank you ALL! Lynn, I didn't get chemo so I didn't loose any hair. For those early on in their recovery, our new pastor (base of tongue full radiation) is running marathon races 1 year out of treatment! There is some inspiration!!!! John, good to hear from you. P.S. I am not the first to have their picture up either Brian and Glenn (GRE1) and perhaps others can be seen too. P.P.S. I was waiting to see if anyone noticed the picture in the backround of my photo. (not the tugboat either) It's me at age 11 holding a Smelt (fish from Lake Superior) It was published in the Duluth paper front page 1972. 
Mark, 21 Year survivor, SCC right tonsil, 3 nodes positive, one with extra-capsular spread. I never asked what stage (would have scared me anyway) Right side tonsillectomy, radical neck dissection right side, maximum radiation to both sides, no chemo, no PEG, age 40 when diagnosed.
| | |
#2092 06-07-2004 06:18 PM | Joined: Mar 2003 Posts: 1,384 Likes: 1 Patient Advocate (1000+ posts) | | OP Patient Advocate (1000+ posts)
Joined: Mar 2003 Posts: 1,384 Likes: 1 | I am reviving this thread because Brian has announced that OCF will help with posting pictures QUOTE BRIAN: "By the way, if anyone wants to add a picture of themselves to their profile, just send a jpeg of it to [email protected] with a note and Chester can see that it is added to your profile. There is a way to do this yourself, but if you are not a computer savvy techno nut, it may seem a little complicated. I think I will ask Chester to post the instructions on how to do it the next opportunity he gets, but his time doesn't cost us much and if anyone wants help doing this, so don
Mark, 21 Year survivor, SCC right tonsil, 3 nodes positive, one with extra-capsular spread. I never asked what stage (would have scared me anyway) Right side tonsillectomy, radical neck dissection right side, maximum radiation to both sides, no chemo, no PEG, age 40 when diagnosed.
| | |
#2093 06-07-2004 11:25 PM | Joined: Apr 2004 Posts: 146 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: Apr 2004 Posts: 146 | Hey Mark - nice picture of the fish! Oh, and, of course, what a great picture of you! You look great and it's nice to put a name with a face. I take horrible pictures (and I'm not kidding) but if I come across or have a decent one taken, I'd be happy to post it. Thanks Brian and Chester for your offer of help in posting pictures. Nancy
Stage IV oral cancer (tongue), T3N2, total glossectomy with right and left modified neck dissection 7/03, rad /chemo ended 11/03
| | |
#2094 06-08-2004 05:20 AM | Joined: Mar 2002 Posts: 4,912 Likes: 52 OCF Founder Patient Advocate (old timer, 2000 posts) | | OCF Founder Patient Advocate (old timer, 2000 posts)
Joined: Mar 2002 Posts: 4,912 Likes: 52 | Just send them as .jpeg files. If they need cropping etc. I can do that for you in Photoshop before sending them on to Chester. Please do not snail mail any real pictures to the foundation, they will get lost in the shuffle. It may take a week or more, as Chester is swamped with real full- price paying customers work, and I am doing my usual....feeling like a one-legged man in a butt kicking contest...but we'll get to them.
Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
| | |
#2095 06-08-2004 01:05 PM | Joined: Nov 2002 Posts: 541 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Nov 2002 Posts: 541 | I am thinking actively of uploading my photo on the forum but since I am a computer idiot, I have to seek help from experts first. By the way, how do we know which member has already included their photo in the profile so that we can take a look?
Karen
Karen stage 4B (T3N3M0)tonsil cancer diagnosed in 9/2001.Concurrent chemo-radiation treatment ( XRT x 48 /Cisplatin x 4) ended in 12/01. Have been in remission ever since.
| | |
#2096 06-08-2004 05:30 PM | Joined: Mar 2002 Posts: 4,912 Likes: 52 OCF Founder Patient Advocate (old timer, 2000 posts) | | OCF Founder Patient Advocate (old timer, 2000 posts)
Joined: Mar 2002 Posts: 4,912 Likes: 52 | Photos, email addresses etc. are all found when you click the first icon next to the date of someone's posting
Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
| | |
#2097 07-05-2005 06:28 PM | Joined: Mar 2003 Posts: 1,384 Likes: 1 Patient Advocate (1000+ posts) | | OP Patient Advocate (1000+ posts)
Joined: Mar 2003 Posts: 1,384 Likes: 1 | Just reviving this post thread because I would like to see more people post their pictures.
Mark, 21 Year survivor, SCC right tonsil, 3 nodes positive, one with extra-capsular spread. I never asked what stage (would have scared me anyway) Right side tonsillectomy, radical neck dissection right side, maximum radiation to both sides, no chemo, no PEG, age 40 when diagnosed.
| | |
#2098 07-06-2005 03:18 AM | Joined: Apr 2005 Posts: 80 Senior Member (75+ posts) | | Senior Member (75+ posts)
Joined: Apr 2005 Posts: 80 | I don't have any pictures "post-surgery" yet. I will get on that and get one posted, as it's really nice to put a face with the posts. Thanks for reviving this Mark!
Jennifer
Jennifer
Stage II (T2N0M0) SCC diag 4/21/05; partial glossectomy & selective neck dissection (good margins and lymyph nodes negative), jaw split, 1/3 of tongue removed, free flap from left forearm - 5/23/05; 42 years old at diagnosis
| | |
| Forums23 Topics18,168 Posts196,927 Members13,104 | | Most Online458
Jan 16th, 2020 | | |
|
