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#200018 04-04-2020 03:48 PM
Joined: Apr 2020
Posts: 1
Aziz A Offline OP
Member
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Member

Joined: Apr 2020
Posts: 1
I'm new member. Recent victim of the dreaded mouth c. Both sides of cheeks are affected but because of lockdown I can't even see a doctor and have treatment as it's cancelled.
I'm worried that I am not going to survive this so I am asking for your help please. Thanks.


aa540316
Aziz A #200020 04-05-2020 03:54 AM
Joined: Jun 2007
Posts: 10,507
Likes: 7
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)
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Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)

Joined: Jun 2007
Posts: 10,507
Likes: 7
Welcome to OCF! Im very sorry about your recent diagnosis!!!

At this time of uncertainly, its not easy knowing what to do next. The pandemic has got to be making a tremendous impact on all cancer patients world-wide! Since you are waiting to get started, might as well make the most use of the time, If you havent yet gone for a second opinion, now might be a good time to look into it. For US patients, a comprehensive cancer center (CCC) is the best place with the top oncology doctors in the country. A team based approach ensures all specialists stay on the same page. Patients are able to attend their tumor board meetings where they can participate and have an opportunity to ask and learn about their treatment plan.

The following links below you should find helpful. The main OCF site is overflowing with important info about anything and everything pertaining to oral cancer (OC).

Best wishes with everything!!!


Main OCF Site, Understanding

NCI list of CCCs

US News Best Hospitals List


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile

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