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| Joined: Jun 2019 Posts: 244 Likes: 2 "OCF across the pond" Gold Member (200+ posts) | "OCF across the pond" Gold Member (200+ posts) Joined: Jun 2019 Posts: 244 Likes: 2 | Hey Mokie,
When I was diagnosed I felt so sick. I'd just had a biopsy done the week before so I couldn't eat much. The stress and anxiety plus little nutrition made me feel even more awful. Hopefully it'll pass.
Good luck with your appointments.
F 39 x-smoker no alcohol 05/20/19 T4aN1/N2bM0 SCC a whopper of a tumour at 8cm long & 4cm wide Pembro pre & post surgery RIG Glossectomy ND RFFR 08/13/19 RT x33 2x cispltin So far, no evidence of disease Now an author of a recipe book for mouth cancer patients
| | | | Joined: Jun 2019 Posts: 62 Supporting Member (50+ posts) | OP Supporting Member (50+ posts) Joined: Jun 2019 Posts: 62 | Thank you for the encouragement Dizz_zzey. Finally the first doctors appointment with a Head and neck Surgeon Oncologist was completed on 2 July who tells me he no longer does surgery since 2015 due to a cardiac arrest where he needed a pacemaker placed. Just great! But, after he completed my oral exam he gave me a primary diagnosis of Stage 1 tongue cancer and ordered a PET Scan. Since he no longer does his own surgeries he forwarded my health record to another Head and Neck Surgeon who trained at MD Anderson in Houston, Texas and with 30 years of experience under his belt. I am feeling so much more relaxed now, but am now being treated for a gastric ulcer from the Celebrex (NSAID) I took for pain post biopsy. And the anxiety that went along with the waiting to be seen didn’t help the stomach problem to say the least. PET Scan was completed on 6Jul and on 12 Jul I got to see my other surgeon. He said the Pet Scan was clear and even the tongue biopsy site did not light up, but due to the path report that showed neoplastic cells at the base of the biopsy a larger resection would be recommended to obtain clearer boarders. He said I have the option to wait and see if anything manifests since the PET Scan was clean, but if I were his daughter he would proceed with the resection to make sure. Needless to say I chose the resection and scheduled to be done on 22Jul as Same Day Surgery case. There are areas of dysplasia around the initial biopsy site that will be left alone and to be monitored every 3 months. This scares me! What do you think??
Last edited by Mokie; 07-13-2019 01:38 AM.
SSC Lt sublingual tongue; Age 62 Positive biopsy 20June2019 Staging done 2 Jul : Stage 1 Quit smoking 15 years ago; not a drinker; no HPV Pet/ CT 6Jul2019 : Negative. Not even the Lt tongue lit up. Partial Glossectomy 22Jul2019
| | | | Joined: Jun 2019 Posts: 244 Likes: 2 "OCF across the pond" Gold Member (200+ posts) | "OCF across the pond" Gold Member (200+ posts) Joined: Jun 2019 Posts: 244 Likes: 2 | I'd be scared too but regular checks sound good. It sounds like your surgeon is really thorough. Good luck on the 22nd, I'll keep a look out for your posts later
F 39 x-smoker no alcohol 05/20/19 T4aN1/N2bM0 SCC a whopper of a tumour at 8cm long & 4cm wide Pembro pre & post surgery RIG Glossectomy ND RFFR 08/13/19 RT x33 2x cispltin So far, no evidence of disease Now an author of a recipe book for mouth cancer patients
| | | | Joined: Jun 2019 Posts: 62 Supporting Member (50+ posts) | OP Supporting Member (50+ posts) Joined: Jun 2019 Posts: 62 |
SSC Lt sublingual tongue; Age 62 Positive biopsy 20June2019 Staging done 2 Jul : Stage 1 Quit smoking 15 years ago; not a drinker; no HPV Pet/ CT 6Jul2019 : Negative. Not even the Lt tongue lit up. Partial Glossectomy 22Jul2019
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