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ConnieT Offline OP
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radiologist ordered a CT scan to be done. Not sure what to expect when we go to hear results on Thursday. I know they were waiting for the swelling to go down to see how things look. I'm more nervous about this than I was in the beginning as we already knew it was cancer.

Any thoughts or experience appreciated.


Spouse of 58 yr old with BOT cancer
Stage 4a HPV16 positive
3 chemo treatments cisplantin
35 radiation treatments 7000 cGy
former smoker/chewed tobacco for 38 yrs.
1/2020 diagnosed with cancer near TMJ
4/2020 chemo 5 days every 2 weeks
6/2020 proton therapy
9/21/2020 cancer free
Joined: Jun 2013
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((hugs)) Not sure what to say to make you feel better, but lots of hugs. I hope the scan is clear and this will all be over for you soon.


Surgery 5/31/13
Tongue lesion, right side
SCC, HPV+, poorly differentiated
T1N0 based on biopsy and scan
Selective neck dissection 8/27/13, clear nodes
12/2/13 follow-up with concerns
12/3/13 biopsy, surgery, cancer returned
1/8/14 Port installed
PEG installed
Chemo and rads
2/14/14 halfway through carboplatin/taxotere and rads
March '14, Tx done, port out w/ complications, PEG out in June
2017: probable trigeminal neuralgia
Fall 2017: HBOT
Jan 18: oral surgery
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ConnieT Offline OP
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thank you. I guess some realty might hit the fan. I don't know if he messed up his health with 3 months of starvation or not. It's just scary.


Spouse of 58 yr old with BOT cancer
Stage 4a HPV16 positive
3 chemo treatments cisplantin
35 radiation treatments 7000 cGy
former smoker/chewed tobacco for 38 yrs.
1/2020 diagnosed with cancer near TMJ
4/2020 chemo 5 days every 2 weeks
6/2020 proton therapy
9/21/2020 cancer free
Joined: Jun 2017
Posts: 30
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Joined: Jun 2017
Posts: 30
Lots and lots of {{{Hugs}}} - I'll say a prayer for you tonight that the scan gives you good news!


Susan
04.12.16 1st surgery; rt partial glossectomy; neck dissection; 2/38 lymph nodes positive
05.12.16 Resected T2, N2b, M0
05.24.16 Rad, Cisplatin
10.03.16 Clear PET
04.11.17 Clear PET
06.09.17 1st recur
06.21.17 2nd Surg: rt partial glossectomy; forearm free flap; rt thigh skin graft
11.09.17 2nd recur
11.30.17 Nivolumab
02.06-16.18 Brachytherapy
06.12.18 3rd recur
06.12.18 Lt axillary lymph node SCC
07.05.18 Pain pump placd
08.23.18 Pump removd
10.29.18 PET-CT responds to treatmnt


Joined: Aug 2018
Posts: 345
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ConnieT Offline OP
Platinum Member (300+ posts)
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Joined: Aug 2018
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thank you! I posted somewhere here? that the tumor was great reduced. air way is open again. It was pretty much closed before treatment. Dec 18th is the PET scan and results on Dec 20.

He got the usual lecture about lack of nutrition and probably tired because of lack of minerals and vitamins....now let's see if he feeds himself. They told him that he is capable of doing tube feedings by himself.


Spouse of 58 yr old with BOT cancer
Stage 4a HPV16 positive
3 chemo treatments cisplantin
35 radiation treatments 7000 cGy
former smoker/chewed tobacco for 38 yrs.
1/2020 diagnosed with cancer near TMJ
4/2020 chemo 5 days every 2 weeks
6/2020 proton therapy
9/21/2020 cancer free

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