| Joined: Oct 2018 Posts: 1 Member | OP Member Joined: Oct 2018 Posts: 1 | I've been reviewing all of the threads to find someone else who experiences nausea, not from food or eating, but from the PEG. I'm sure I'm not the first!! Having the long tube on my stomach tube, I returned to the GI doctor because it was extremely painful. He loosened the connection between the inside of my stomach & my outside skin by about an inch and started me on 2000 mg/day've been on Keflex for an infection. Maybe I'm just sensitive but I find any movement of the tube inside my stomach to be quite nauseating. I was told that I'd be able to return to regular activities but doing anything that requires movement is miserable. Sometimes I feel like a crybaby which is totally not me. Anyone have any suggestions?? | | | | Joined: Oct 2012 Posts: 1,275 Likes: 7 Assistant Admin Patient Advocate (1000+ posts) | Assistant Admin Patient Advocate (1000+ posts) Joined: Oct 2012 Posts: 1,275 Likes: 7 | Hi Deb, Welcome to the forum. I think your best bet is to return to the GI specialist and ask him to take a look at your PEG. You shouldn’t b in so much discomfort with the tube. It soundsike somehing is not right with the placement.
Gloria She stood in the storm, and when the wind did not blow her way, she adjusted her sails... Elizabeth Edwards
Wife to John,dx 10/2012, BOT, HPV+, T3N2MO, RAD 70 gy,Cisplatinx2 , PEG in Dec 6, 2012, dx dvt in both legs after second chemo session, Apr 03/13 NED, July 2013 met to lungs, Phase 1 immunotherapy trial Jan 18/14 to July/14. Taxol/carboplatin July/14. Esophagus re-opened Oct 14. PEG out April 8, 2015. Phase 2 trial of Selinexor April to July 2015. At peace Jan 15, 2016. | | | | Joined: Aug 2018 Posts: 345 Likes: 8 Platinum Member (300+ posts) | Platinum Member (300+ posts) Joined: Aug 2018 Posts: 345 Likes: 8 | my husband has dealt with PEG issues from clear back in August. The last time he was hospitalized, they put in a new one. He's been fine with the pain since but nausea is still an issue. He was told to take the nausea stuff before eating, at least 20 minutes. Of course, he takes them then and immediately adds formula to feeding tube and throws up. The things I've been told about nausea is that once it starts, it's hard to stop so you need to be on top of it. The feeding tube was truly the hardest part of this whole treatment plan for my husband besides his stubbornness to listen and do what he's been told to do.
Best wishes....
Spouse of 58 yr old with BOT cancer Stage 4a HPV16 positive 3 chemo treatments cisplantin 35 radiation treatments 7000 cGy former smoker/chewed tobacco for 38 yrs. 1/2020 diagnosed with cancer near TMJ 4/2020 chemo 5 days every 2 weeks 6/2020 proton therapy 9/21/2020 cancer free
| | | | Joined: Jun 2017 Posts: 30 Contributing Member (25+ posts) | Contributing Member (25+ posts) Joined: Jun 2017 Posts: 30 | Hi Deb,
When did you have the tube placed? I've had mine since Feb 2018 and was told it needs to be replaced every 3 months (which I do religiously). I've had problems with nausea (from the chemo) so I take anti-nausea pills every morning and every afternoon to keep it at bay. I've also had problems with granulation (tissue and blood vessels that form around the feeding tube) which is extremely painful. The only way to get rid of it once it appears is to use silver nitrate (prescription) which is also extremely painful but once it calms down it does get rid of the granulation. Keeping the area dry around the tube combats the granulation. If movement of the tube bothers you, have you tried taping the tube to your body so it doesn't move (swing back and forth while you walk, etc)? That works for me.
I hope this helps you!
Susan Susan 04.12.16 1st surgery; rt partial glossectomy; neck dissection; 2/38 lymph nodes positive 05.12.16 Resected T2, N2b, M0 05.24.16 Rad, Cisplatin 10.03.16 Clear PET 04.11.17 Clear PET 06.09.17 1st recur 06.21.17 2nd Surg: rt partial glossectomy; forearm free flap; rt thigh skin graft 11.09.17 2nd recur 11.30.17 Nivolumab 02.06-16.18 Brachytherapy 06.12.18 3rd recur 06.12.18 Lt axillary lymph node SCC 07.05.18 Pain pump placd 08.23.18 Pump removd 10.29.18 PET-CT responds to treatmnt
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