|
| Joined: Nov 2018 Posts: 5 Member | OP Member Joined: Nov 2018 Posts: 5 | So... a year will pass next month on the 6th since my father underwent surgery for basal cell carcinoma. It involved removing almost half of the jaw bone and then a skin graft.
The swelling has significantly come down from the outer side. But my father feels that it is not improving from within. He says that the swelling is increasing from within. I did talk to the plastic surgeon who said that "The bulk of the flap is needed to give his face a better shape" and for the swelling on the inside said "That is because the flap does not have any sensation". The doctor gave us a time of 1 and a half years post rad for the swelling to come down completely. The rads were completed mid-February this year.
We do have to go to consult the doctor but my father cannot travel as of now. He is feeling very weak and doesn't eat properly. He also is experiencing severe back and abdominal pain for which we are consulting a doctor in our city. So, to sum up, he cannot travel (the operation took place in a different city).
I want to know about your experiences with the swelling and how long it takes to be normal? Does it feel like the swelling has sometimes increased on the inside or the feeling of stuffiness in the mouth?
Also what exactly is the use of a 'bite guard prosthesis'? Father couldn't get one because the swelling didn't allow to take measurements.
PS: He has no problem in breathing.
Erk
| | | | Joined: Jun 2017 Posts: 30 Contributing Member (25+ posts) | Contributing Member (25+ posts) Joined: Jun 2017 Posts: 30 | I'm sorry Erk, I did not have any of my jaw removed so I'm not able to give you much insight....hopefully another member will be able to help you.
Good Luck!
Susan Susan 04.12.16 1st surgery; rt partial glossectomy; neck dissection; 2/38 lymph nodes positive 05.12.16 Resected T2, N2b, M0 05.24.16 Rad, Cisplatin 10.03.16 Clear PET 04.11.17 Clear PET 06.09.17 1st recur 06.21.17 2nd Surg: rt partial glossectomy; forearm free flap; rt thigh skin graft 11.09.17 2nd recur 11.30.17 Nivolumab 02.06-16.18 Brachytherapy 06.12.18 3rd recur 06.12.18 Lt axillary lymph node SCC 07.05.18 Pain pump placd 08.23.18 Pump removd 10.29.18 PET-CT responds to treatmnt
| | | | Joined: Jun 2013 Posts: 346 Likes: 3 Platinum Member (300+ posts) | Platinum Member (300+ posts) Joined: Jun 2013 Posts: 346 Likes: 3 | Is there any special massage for lymphedema that he can be doing? Even though my surgery was much less invasive, when I went in for speech and OT, they gave me massage techniques for both the scar tissue and the swelling / fluid stoppage. It helps a lot with drainage (who knew our sinuses relied on our necks so much???). It's worth asking.
Surgery 5/31/13 Tongue lesion, right side SCC, HPV+, poorly differentiated T1N0 based on biopsy and scan Selective neck dissection 8/27/13, clear nodes 12/2/13 follow-up with concerns 12/3/13 biopsy, surgery, cancer returned 1/8/14 Port installed PEG installed Chemo and rads 2/14/14 halfway through carboplatin/taxotere and rads March '14, Tx done, port out w/ complications, PEG out in June 2017: probable trigeminal neuralgia Fall 2017: HBOT Jan 18: oral surgery
| | | | Joined: Aug 2018 Posts: 345 Likes: 8 Platinum Member (300+ posts) | Platinum Member (300+ posts) Joined: Aug 2018 Posts: 345 Likes: 8 | I"m going to guess my days in orthodontics and dentistry that they are talking about a prosthesis including teeth? Any kind of mouth piece that one would use 24/7 requires precision to construct. I would guess they want to do an impression of his mouth to do that. Not sure, I never made one for an adult/cancer survivor but for teens/adults and newborn babies with clefts
Spouse of 58 yr old with BOT cancer Stage 4a HPV16 positive 3 chemo treatments cisplantin 35 radiation treatments 7000 cGy former smoker/chewed tobacco for 38 yrs. 1/2020 diagnosed with cancer near TMJ 4/2020 chemo 5 days every 2 weeks 6/2020 proton therapy 9/21/2020 cancer free
| | | | Joined: Nov 2018 Posts: 5 Member | OP Member Joined: Nov 2018 Posts: 5 | [quote=Magnum]I'm sorry Erk, I did not have any of my jaw removed so I'm not able to give you much insight....hopefully another member will be able to help you. Good Luck! Susan[/quote] No problem! Different people, different experiences [quote=KristenS]Is there any special massage for lymphedema that he can be doing? Even though my surgery was much less invasive, when I went in for speech and OT, they gave me massage techniques for both the scar tissue and the swelling / fluid stoppage. It helps a lot with drainage (who knew our sinuses relied on our necks so much???). It's worth asking.[/quote] I will ask the doctor tomorrow itself! She has never mentioned any kind of massage, I will ask her!
Erk
| | | | Joined: Nov 2018 Posts: 5 Member | OP Member Joined: Nov 2018 Posts: 5 | Yes, they called it as 'bite guard prosthesis', the one with teeth. The doctor said that it is to better align the jaw and it will not help in biting or speech 🤔
Last edited by ERK; 11-11-2018 12:04 PM.
Erk
| | |
Forums23 Topics18,170 Posts196,934 Members13,107 | Most Online458 Jan 16th, 2020 | | | |
|