| Joined: Mar 2014 Posts: 31 Contributing Member (25+ posts) | OP Contributing Member (25+ posts) Joined: Mar 2014 Posts: 31 | Thanks, Bart. I had both a port and a PEG feeding tube installed two weeks ago, which was a week before my chemo and rads started. I was extremely reluctant about the PEG but my RO, HO,ENT, PCP, head and neck oncologist, and all their staffs were unanimous that I should get it. I finally accepted that I am not in the business of ignoring the advice of my doctors and lawyers so I relented. I'm glad I did now although there is nothing about the darn thing I like. I've had an infection around the stoma since day 1 but the cephalexin seems to be getting the upper hand after four days.
I'm not the kind of guy who does things half way so I've made it clear to my doctors that I expect the most effective treatments regardless of discomfort. I'm 58 years old and I feel I'm strong enough to tolerate any treatment. I have a wife and daughter who love and depend on me and whom I love and depend on. l maintain a good standard of living for us. I have good close friends and I'm renowned among them as an expert home cook. Baseball opening day is just around the corner. Earnhardt is already in the NASCAR chase for the championship. The hundreds of crocuses and thousands of daffodils I have planted are poking through the snow. The warblers are beginning their spring migration. I'm not ready to fold my tent. I'm not. I won't.
Last edited by Liam Skye; 03-19-2014 01:27 PM.
2/2014 SCC T4aN2bM0 HPV+ Tonsil/BOT 3/3/2014 PEG and port 3/10/2014 Chemoradiation therapy begins 260 mg Cisplatin x3, 2.12 Gy rads x33 4/23/2014 Final Cisplatin infusion 4/25/2014 Final radiation treatment 7/17/2014 PET scan. Lymph nodes clear. Primary tumor reduced both size and SUV (borderline hypermetabolic) so it's inconclusive. 8/2/2014 PEG tube removed. 11/24/2014 Saw MO, RO, ENT, and Head & Neck Surg. over past 10 days - all agree no recurrence but enhanced surveillance will continue. | | | | Joined: Oct 2012 Posts: 1,275 Likes: 7 Assistant Admin Patient Advocate (1000+ posts) | Assistant Admin Patient Advocate (1000+ posts) Joined: Oct 2012 Posts: 1,275 Likes: 7 | For the infection at the stoma, soaking it with saline and then applying a barrier cream like ProShield then covering it with a gauze pad several times a day helps a lot. My husband has had a feeding tube for over a year now and it has stayed clear of infection because we have been very diligent with the regimen. It will also stop the stoma from growing bigger and start leaking.
Gloria She stood in the storm, and when the wind did not blow her way, she adjusted her sails... Elizabeth Edwards
Wife to John,dx 10/2012, BOT, HPV+, T3N2MO, RAD 70 gy,Cisplatinx2 , PEG in Dec 6, 2012, dx dvt in both legs after second chemo session, Apr 03/13 NED, July 2013 met to lungs, Phase 1 immunotherapy trial Jan 18/14 to July/14. Taxol/carboplatin July/14. Esophagus re-opened Oct 14. PEG out April 8, 2015. Phase 2 trial of Selinexor April to July 2015. At peace Jan 15, 2016. | | |
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