| | Joined: Mar 2014 Posts: 3 "OCF Canuck" Member | OP  "OCF Canuck" Member
Joined: Mar 2014 Posts: 3 | Hi there. My name is Dave, I am scheduled for jaw bone replacement at toronto general hosp. I have had my pre-op but as yet have no surgery date. Does anyone have any insight as to how long it takes on average to get in to get it done? Thanks, David L.
Last edited by ChristineB; 03-07-2014 07:23 AM. Reason: removed last name
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | Welcome to OCF, Dave. Im in the US and our medical system works differently here than in Canada. We do have many members from Canada on the forum.
If you have been waiting for a long time to get your surgery, call the doctors office and ask them if they have a date yet. If no, then your next question should be is there anything that is holding this up. Its common for patients and caregivers to advocate for themselves in order to get things accomplished.
Its a big surgery! Ive had it done. Wishing you all the very best with everything!
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | | | | Joined: Mar 2014 Posts: 3 "OCF Canuck" Member | | OP "OCF Canuck" Member
Joined: Mar 2014 Posts: 3 | Thank you Christine. I am already encouraged by this forum. I had throat cancer 4 yrs. ago. 35 radiation treatments, 2 chemo. I am cancer free as many of you are. this recent problem with my jaw has been coming for a while now. I finally broke it about 2 months ago. Thank you for responding, I and my wife are doing very well. she is a uterus cancer survivor. we are doing pretty much all the things we looked forward to when planning our retirement, so we consider ourselves blessed. | | | | | Joined: Oct 2012 Posts: 1,275 Likes: 7 Assistant Admin Patient Advocate (1000+ posts) | | Assistant Admin Patient Advocate (1000+ posts)
Joined: Oct 2012 Posts: 1,275 Likes: 7 | Hi Dave,
My husband has had different procedures done at different departments at TGH, though not surgery. I would suggest you call your surgeon's office to find out the date, or you could call Patient Appointments (you might have to go through the Main Switchboard, but tell them you want to check your appointments) to find out if it has been scheduled. Good luck.
Gloria
She stood in the storm, and when the wind did not blow her way, she adjusted her sails... Elizabeth Edwards
Wife to John,dx 10/2012, BOT, HPV+, T3N2MO, RAD 70 gy,Cisplatinx2 , PEG in Dec 6, 2012, dx dvt in both legs after second chemo session, Apr 03/13 NED, July 2013 met to lungs, Phase 1 immunotherapy trial Jan 18/14 to July/14. Taxol/carboplatin July/14. Esophagus re-opened Oct 14. PEG out April 8, 2015. Phase 2 trial of Selinexor April to July 2015. At peace Jan 15, 2016.
| | | | | Joined: Mar 2014 Posts: 3 "OCF Canuck" Member | | OP "OCF Canuck" Member
Joined: Mar 2014 Posts: 3 | thank you for the reply. I have talked to tgh several times but they say they cannot give me a time yet. they say maybe April. we hope so. the problem seems to be all the emergency surgeries and the shortage of operating theatres. I guess I will just have to be patient. They are managing my pain for now so I am thankful for that. Thanks, Dave. | | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | Dave, is it osteradionecrosis? Thats the when jaw bone deteriorating and dying from the radiation treatments? Unfortunately this happens with OC survivors who have had rads.
Im very glad to hear you are doing well after having OC 4 years ago. Glad to hear it was successfully treated and you are doing well.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | | Joined: Jun 2013 Posts: 262 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: Jun 2013 Posts: 262 | Hi Pastor Dave, just want to say welcome -- I hope your surgery is scheduled soon so you can get on with your happy retirement!
Lynn
53
T3N2aM0 HPV+
5/26/13 discovered painless superball-sized lymph node in neck
6/26/13 DX SCC R palatine tonsil
7/16/13 TORS tonsillectomy & selective ND, mets to 2 nodes
9/3/13 Cisplatin and rads begin, tolerated 1.5 of 3 planned chemo doses
10/16/13 Treatment ends
Dec 13 Ulcer appears at surgery site
Jan 17 Biopsy -- no cancer!
Feb 17 CT/PET Scan lights up tonsil bed & nasal cavity, docs say probably inflammation, don't panic, rescan when ulcer subsides
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