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Joined: Jun 2013
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Platinum Member (300+ posts)

Joined: Jun 2013
Posts: 346
Likes: 3
20 to 30 years seems iffy to me. I was diagnosed at 37, and I nevet even dated till I was 19, did not even kiss till much later than that. The math.for me would not add up.

I am in a monogamous relationship, but till all this surgery and trearment is over, I think my dear husband is probably safe, poor deprived darling.

If this became some sort of legal thing for people, given how little we really know, there would be a tough burden of proof to surmount.

ETA: We do suspect some early childhood abuse in my past, so I guess my math may be suspect. Never mind that. But it does underscore the difficulty of proof.

Last edited by KristenS; 01-16-2014 07:57 PM.

Surgery 5/31/13
Tongue lesion, right side
SCC, HPV+, poorly differentiated
T1N0 based on biopsy and scan
Selective neck dissection 8/27/13, clear nodes
12/2/13 follow-up with concerns
12/3/13 biopsy, surgery, cancer returned
1/8/14 Port installed
PEG installed
Chemo and rads
2/14/14 halfway through carboplatin/taxotere and rads
March '14, Tx done, port out w/ complications, PEG out in June
2017: probable trigeminal neuralgia
Fall 2017: HBOT
Jan 18: oral surgery
Joined: Jul 2012
Posts: 3,267
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Patient Advocate (old timer, 2000 posts)
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Patient Advocate (old timer, 2000 posts)

Joined: Jul 2012
Posts: 3,267
Likes: 1
Maybe it's mumbo jumbo crap to you, but apparently not everyone else. It was on topic to the question(s), which has health, social, moral, ethical, and possibly legal ramifications, and were having a nice discussion. What you say about the Guardasil prophylactic vaccine for persons already infected by HPV-16 may be crap too, and other experts think otherwise, and say it doesn't work.

KirstenS, it's also suspected expected mothers may have passed HPV at childbirth too. Not sure if they test expected mothers these days? As far as burden of proof, it may not be the intention, just a smear or attack campaign. I can see it in some divorce cases, they include everything else anyway.


10/09 T1N2bM0 Tonsil
11/09 Taxo Cisp 5-FU, 6 Months Hosp
01/11 35 IMRT 70Gy 7 Wks
06/11 30 HBO
08/11 RND PNI
06/12 SND PNI LVI
08/12 RND Pec Flap IORT 12 Gy
10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux
10/13 SND
10/13 TBO/Angiograph
10/13 RND Carotid Remove IORT 10Gy PNI
12/13 25 Protons 50Gy 6 Wks Carbo
11/14 All Teeth Extract 30 HBO
03/15 Sequestromy Buccal Flap ORN
09/16 Mandibulectomy Fib Flap Sternotomy
04/17 Regraft hypergranulation Donor Site
06/17 Heart Attack Stent
02/19 Finally Cancer Free Took 10 yrs






Joined: Mar 2011
Posts: 1,024
"OCF Kiwi Down Under"
Patient Advocate (1000+ posts)
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"OCF Kiwi Down Under"
Patient Advocate (1000+ posts)

Joined: Mar 2011
Posts: 1,024
Just to add - Kris and I have been in a monogamous relationship for 35 years.
I do know he enjoyed " sowing wild oats" before he met me.
Tammy


Caregiver/advocate to Husband Kris age 59@ diagnosis
DX Dec '10 SCC BOT T4aN2bM0 HPV+ve.Cisplatin x3 35 IMRT.
PET 6/11 clear.
R) level 2-4 neck dissection 8/1/11 to remove residual node - necrotic with NED
Feb '12 Ca back.. 3/8/12 total glossectomy/laryngectomy/bilat neck dissection/partial pharyngectomy etc. clear margins. All nodes negative for disease. PEG in.
March 2017 - 5 years disease free. Woohoo!
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