| | Joined: Jul 2012 Posts: 3,267 Likes: 1 Patient Advocate (old timer, 2000 posts) |  Patient Advocate (old timer, 2000 posts)
Joined: Jul 2012 Posts: 3,267 Likes: 1 | Three weeks is still early, maybe you see some improvement with the mucus, but most feel better at 3 months, other sides effects longer, up to a year or more. Erbitux side effects can last a few months after treatment, as well as radiation still working just as long as your treatment lasted, which have acute toxicities, less than 3 months, and long term side effects, longer than 3 months. Are you still taking the antibiotics for the rash? Mine was Minocycline. Still follow the same proper oral care you did during treatment. Good luck.
Last edited by PaulB; 12-02-2013 05:23 AM.
10/09 T1N2bM0 Tonsil
11/09 Taxo Cisp 5-FU, 6 Months Hosp
01/11 35 IMRT 70Gy 7 Wks
06/11 30 HBO
08/11 RND PNI
06/12 SND PNI LVI
08/12 RND Pec Flap IORT 12 Gy
10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux
10/13 SND
10/13 TBO/Angiograph
10/13 RND Carotid Remove IORT 10Gy PNI
12/13 25 Protons 50Gy 6 Wks Carbo
11/14 All Teeth Extract 30 HBO
03/15 Sequestromy Buccal Flap ORN
09/16 Mandibulectomy Fib Flap Sternotomy
04/17 Regraft hypergranulation Donor Site
06/17 Heart Attack Stent
02/19 Finally Cancer Free Took 10 yrs
| | | | | Joined: Oct 2013 Posts: 559 Likes: 1 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Oct 2013 Posts: 559 Likes: 1 | Hi Calhoun:
I'm kinda new to the In Treatment forum, so just read your thread to familiarize with all you have gone through. It looks like it's been quite a journey so far, with a few potholes along the way.
But reading yours has given me new reasons to continue choking down the food as best I can even if it is only Ensure and no other food. Likewise maintain the water consumption.
I'm a little jealous you are so close to finishing the rads, I still have 15 more to do.
Take care, looking forward to reading about you in Post Treatment forum.
Tony
Tony, 69, non-smoker, aerobatics pilot, bridge player/teacher, avid dancer (ballroom, latin, swing, country)
09/13 SCC, HPV 16, tonsillectomy, T2N0.
11/13 start rads, no chemo
12/13 taste gone, dry mouth,
02/14 hair slowly returning
05/14 taste the same, dry sinuses, irrigation helps.
01/15 food taste about 60% returned, dry sinuses are worse in winter.
12/20 no more sinus problems, taste pretty good
| | | | | Joined: Sep 2013 Posts: 94 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Sep 2013 Posts: 94 | Congrats on finishing the rads/chemo Calhoun!
I have been following your thread with interest, as I started my Tx a bit after yours. I am afraid I do not have any helpful input on the rash as I am not familiar with chemo at all. However, just wanted to say that I hope things start improving fast. I have bumped into the oncology head nurse in my hospital today who said, which I think can be applied to a lot of us :" It will get worse before it starts getting better once the TX is done. But it will start getting better pretty soon".
Take care and best of luck!
36, female, left tonsil HPV+ SCC, T2N1
8/28/13 SCC in left tonsil
9/12/13 surgery:TORS and selective neck dissection (levels II-IV), 23 nodes removed
9/18/13 post surgery biopsy: 2mm clear margins, a 7mm lymph node positive in level IV, no ECL
10/28/13 rad begins, 30 treatments, tomotherapy
12/09/13 radiation ends!
2/10/14 papillary thyroid cancer
2/26/14 PET shows clear neck other than thyroid cancer, but with high uptake in an ovarian cyst
2/27/14 thyroidectomy
3/5/14 pelvic ultrasound
| | | | | Joined: Sep 2013 Posts: 40 Contributing Member (25+ posts) | | OP Contributing Member (25+ posts)
Joined: Sep 2013 Posts: 40 | Thanks Ambra. When my Tx was done I was feeling fine and thought, ok everything is healing slowly. Not so bad. Well after the first week, the rash returned more sores in my mouth and perhaps the thrush has returned. I even have burns on the back of my neck which came after Tx. I guess it really never ends. Oh well, I'll just take what comes. I hope your doing well with your journey. Hang in there.
Age 54 at DX 06/20/13 Left Neck Mass 07/11/13 DX SCC OC T0N2bM0 Stg IVa p16 neg. 08/09/13 Tonsilectomy and Adnoidectomy, Panendoscopy. Unknown Primary. Begin RAD 09/30/13 Cisplatin 10/01&22/13 PICC 10/21/13. PEG 10/25/13 to 1/24/14. Erbitux x 3. End 35 RAD 11/22/13 Clear PET 02/25/14
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