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Joined: Dec 2010
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"OCF Canuck"
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"OCF Canuck"
Patient Advocate (old timer, 2000 posts)

Joined: Dec 2010
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Hey there...
and welcome.

Let me first start by saying the type of scans you've had and the the person reading the results could very well make up for the differences in the size. What you see as a reduction could very well be just a margin of error. There are differences between whether you've had contrast dye or not, whether you've had a PET/CT, CT, or MRI. All give a different kind of picture, some more accurate than the others. The Tesla of the machine also makes a difference - higher tesla, more accurate the scan. Also the fact that some scans (PETs) work on a sugar based dye that shows a higher up take in the tumor - may also have something to do with the fact you area diabetic, the meds you are taking and your blood sugar at the time. Since diabetes medication stimulates the cells to uptake sugar, if you had your meds and your blood sugar was higher you may get more infused area... (normally diet effects uptake too)

My first CT was done with contrast at my local hospital, my second at a cancer hospital. The differences were minimal - mere millimeters but this is why the cancer center wanted their own in house team to look at a scan done by them. It gave them a clear accurate picture by a radiologist they trust and know. Since they design radiation plans around these scans.

There is a minor possibility that the some of what showed up on the initial scan was inflammation (in the surrounding area), and maybe the second scan, was less inflamed and that would make up for the difference in size since it is often hard to determine the differences between inflammation, infection and a tumor. This is why there are always differences and why we leave the reading up to those who are trained to.

Sometimes a small primary will resolve itself (this is how we get some occult findings) but this is rare and as far as I know usually it shows up in the nodes regardless. So basically what the means is they may not find the original primary tumor but they find the cancer elsewhere - usually the neck nodes. Your tumor being a stage three is quite large. I am assuming you've had a biopsy so you know it's cancer. At this point if there is no nodal involvement there's a good chance that despite what the scan says there is likely cancer on a cellular level in at least one of your nodes. So in answer to your question - chances of it resolving itself... likely nil. Chances of it spreading if you wait any longer - VERY HIGH.

Deal with it now before it becomes life threatening. Healthwise you are somewhat compromised - despite the fact that everything is stable right now, you want to do battle when you are at your healthiest, not when you get sicker. And waiting could be deadly.

best of luck.



Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
Joined: Sep 2013
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Posts: 11
Dear All-
Thank you so much in taking the time to explain the possible reasons for the shrinkage. I really appreciate all your support. I cannot take surgey or chemo due to my present health conditions. So that leaves me with radiation. My doctor mentioned to me that I can expect severe complications with that as well. So after seeing the tumor shrinkage I was happy but now I gather that it might not be the case.
Thank you all for your support and prompt responses.
Wish you all good health!

Joined: Aug 2013
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Joined: Aug 2013
Posts: 144
Happyguy I am sorry that what cheryld has told you is probably right on the money.(though we are not Dr.s) It is good advise. that you fight the good fight while you can. I too am in a situation that no further treatment has been recommended from a surgical standpoint or from a radiological standpoint as well. Leaving me with Medical oncology. But a point that has been driven home with me is that I cannot be sure that one Dr. or facility wont do, does not necesarally preclude a different Dr. Or facility from finding that they can and will. So don't give up the ghost! Shawn U.


. Radio/Erbitex:(35/6.) .6/13 RSSC with met.to left neck.9/11/13 MND with left tonsil removal.9/18/13 margins failed, .Dx Terminal. 10/22/13 Dx.StageIII Lymphedema. Carboplatin/Taxol, cancer progression,WECF
3/14/2014 given 2 weeks, 3 maybe. All the veins in my head are slowly leakinging due to Ehlers Danlos syndrome. lucky thing is that my spinal fluid leaking out my nose is slowing the build up of pressure in my huge, huge head. you would not believe.
Joined: Jun 2007
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Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)
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Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)

Joined: Jun 2007
Posts: 10,507
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The best thing you can do to help yourself get thru this as easy as possible is to begin right ow focusing on your intake. Every single day take in a minimum of 2500 calories and 48 oz of water. Get used to this now as you will need to do this for at least the next year to help with recovery after rads is over.

I know it sounds like its alot but really thats the bare minimum you should get. With your health concerns you may need even more like 3500 calories and 64 oz of water daily. Your body burns up calories at an amazing rate while fighting cancer and trying to rebuild itself during and after treatments. Of course try to get the healthiest foods you can but also eat all your favorites now as well. Your sense of taste will change and eating probably will become difficult with your sense of taste being off and swallowing becoming a monumental task. You do not want to go into this craving anything so eat it now, especially any spicy or hard to swallow foods.

Wishing you all the very best with everything.


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
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Posts: 11
Dear Shawn & Christine,
I really appreciate your support and words of encouragement. I wish you good health and speedy recovery. It's very encouraging to see your spirit.
Christine, thanks for your tips on the diet. It's very essential to eat healthy and all my favorite stuff while I can.
My radio therapy starts on 21st. I will keep you informed about my progress.
Good luck and have a great weekend..Take care

Last edited by happyguy; 10-11-2013 12:01 AM.
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