| | Joined: Jul 2013 Posts: 33 Contributing Member (25+ posts) | OP  Contributing Member (25+ posts)
Joined: Jul 2013 Posts: 33 | I have not posted a lot but continue to be an avid reader of the information and experiences from others which has been a great help - so a quick thanks to all who frequently share their wisdom, experience and positive thoughts.
i am 10+ weeks out of Tx and have done well physically. Taking a little time to get off the PEG due saliva, taste and finding enough foods to get enough calories but I will get there. I do have one major concern causing some anxiety which is a persistent cough that started 2+ weeks ago.. I had a similar cough prior to my original diagnosis which is the cause of the anxiety - wondering if all was successful or is there a secondary starting. Probably a bit irrational and I know there is not much I can do until my post Tx PET in early October, but was wondering if anyone had any experiences/thoughts to share.
Thanks.
Jasper
Male age 50 SCC BOT Stage IV HPV+ Tx 35xrad 3xchemo (cisplatin).
Tx completed 7/2013
MND 10/2013 (Pathology Negative)
Debridement for minor ORN 7/2014
| | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Your dry mouth could lead to a throat irritation which could cause the cough.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: Aug 2012 Posts: 214 Likes: 1 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: Aug 2012 Posts: 214 Likes: 1 | I had a cough for a couple of days right after treatment. It went away on it's own. But I remember it hurting every time I coughed. However sneezing was far worst.
Good luck with getting off the PEG. For me, that was the first best day of recovery. Except for the one minute of auful pain when the doc yanked it out.
Push yourself to get real food down. You will feel a whole lot better when you get food cals up and corn surup and oil cals down.
Hockey Dad
43, No smoke, Small BOT HPV+16
8/30/12 Biopsy found SCC in Lymph node (removed)
9/19 DX 4a T1N2aM0
10/1 TX 2x Cisplatin 35 IMRT 70 gry (Done 11/15)
PEG tube in 11/7. Out 1/4, Back at work 2/4/13
PET 2/13 Clear, 10/16 all Scopes Clear, 4/14 Chest X-ray Clear, 5/14 Abdominal ultrasound Clear, 8 yrs clean!!!
| | | | | Joined: Jul 2009 Posts: 1,406 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jul 2009 Posts: 1,406 | I've got something of a persistent cough now, been going on for most of this year, and I'm 4+ years out of treatment. My ENT says it's just something I'll have to live with. As my fellow David says, sometimes things just get dry in there. One more wonderful gift. But considering the alternative, I'll take it!
David 2
SCC of occult origin 1/09 (age 55)| Stage III TXN1M0 | HPV 16+, non-smoker, moderate drinker | Modified radical neck dissection 3/09 | 31 days IMRT finished 6/09 | Hit 14 years all clear in 6/23 | Radiation Fibrosis Syndrome kicked in a few years after treatment and has been progressing since | Prostate cancer diagnosis 10/18
| | | | | Joined: Dec 2003 Posts: 2,606 Likes: 2 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | At 10 weeks it could also be thicker phlegm sliding down your throat exacerbated by weakened swallow muscles from radiation damage. Keep well hydrated, add some guafenesin and spit it put often.
Ed
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
| | | | | Joined: Jul 2013 Posts: 33 Contributing Member (25+ posts) | | OP Contributing Member (25+ posts)
Joined: Jul 2013 Posts: 33 | Thanks for the responses all. Your rational input helps as I am understandably hyper sensitive to any potential issue and this is one of those given it as hung around for awhile. I agree David2, I will take it and live with it if it is a by-product of the treatment or dry throat.
Male age 50 SCC BOT Stage IV HPV+ Tx 35xrad 3xchemo (cisplatin).
Tx completed 7/2013
MND 10/2013 (Pathology Negative)
Debridement for minor ORN 7/2014
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