| | Joined: Aug 2013 Posts: 144 Senior Member (100+ posts) | OP  Senior Member (100+ posts)
Joined: Aug 2013 Posts: 144 | I am a roller coaster enthusiast who is wondering if after I have my neck dissection whether or not I will be able to still ride the rough ones. My husband and I are taking a short vacation to Disneyland. I hope it is not my last roller coaster ride.
. Radio/Erbitex:(35/6.) .6/13 RSSC with met.to left neck.9/11/13 MND with left tonsil removal.9/18/13 margins failed, .Dx Terminal. 10/22/13 Dx.StageIII Lymphedema. Carboplatin/Taxol, cancer progression,WECF
3/14/2014 given 2 weeks, 3 maybe. All the veins in my head are slowly leakinging due to Ehlers Danlos syndrome. lucky thing is that my spinal fluid leaking out my nose is slowing the build up of pressure in my huge, huge head. you would not believe.
| | | | | Joined: Dec 2010 Posts: 5,260 Likes: 3 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | | "OCF Canuck" Patient Advocate (old timer, 2000 posts)
Joined: Dec 2010 Posts: 5,260 Likes: 3 | I have no problem with rides!!!  have fun
Last edited by Cheryld; 08-11-2013 08:21 PM.
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | | Joined: Mar 2011 Posts: 1,024 "OCF Kiwi Down Under" Patient Advocate (1000+ posts) | | "OCF Kiwi Down Under" Patient Advocate (1000+ posts)
Joined: Mar 2011 Posts: 1,024 | I can't think of a single reason why you should not be able to continue to enjoy the Roller Coaster rides. Rather you than me.
Have fun,
Tammy
Caregiver/advocate to Husband Kris age 59@ diagnosis
DX Dec '10 SCC BOT T4aN2bM0 HPV+ve.Cisplatin x3 35 IMRT.
PET 6/11 clear.
R) level 2-4 neck dissection 8/1/11 to remove residual node - necrotic with NED
Feb '12 Ca back.. 3/8/12 total glossectomy/laryngectomy/bilat neck dissection/partial pharyngectomy etc. clear margins. All nodes negative for disease. PEG in.
March 2017 - 5 years disease free. Woohoo!
| | | | | Joined: Jan 2006 Posts: 756 Likes: 1 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jan 2006 Posts: 756 Likes: 1 | I would check with your doctor first. I'm not sure where you are in treatment (noted as pending) and when you plan to go. But if it is during treatment or shortly thereafter your doctor may advise you to wait until your are more healed.
I still love roller coasters, my husband doesn't and my kids are too old to go with me, so it has been a while since I've been on one. Enjoy!
Susan
SCC R-Lateral tongue, T1N0M0
Age 47 at Dx, non-smoker, casual drinker, HPV-
Surgery: June 2005
RT: Feb-Apr 2006
HBOT: 45 in 2008; 30 in 2013; 30 in 2022 -> Total 105!
Recurrence/Surgeries: Jan & Apr 2010
Biopsy 2/2011: Moderate dysplasia
Surgery 4/2011: Mild dysplasia
Dental issues: 2013-2022 (ORN)
| | | | | Joined: Mar 2013 Posts: 421 Likes: 1 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Mar 2013 Posts: 421 Likes: 1 | Unless you have extremely negative long term reactions and side effects from treatment, I don't see any reason why you couldn't continue to enjoy a roller coaster after you're completely healed.
Be warned though... treatment will be the scariest and toughest roller coaster ride you've ever been on.
Positive thoughts and prayers,
"T"
57
Cardiac bypass 11/07
Cardiac stents 10/2012
Dx'd 11/30/2012 Tx N2b MO Stage IV HPV+
Palatine Tonsillectomy/Biopsies 12-21-12
Selective Neck Dissection/Lingual Tonsillectomy/biopsies TORS 2/7/13
Emergency Surgery/Bleeding 2/18/13
3/13/2013 30rads/6chemo
Finished Tx 4/24/13
NED Since
| | | | | Joined: Jul 2012 Posts: 3,267 Likes: 1 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jul 2012 Posts: 3,267 Likes: 1 | I wouldn't! It also depends on the type of neck dissection you had. A radical neck dissection, RND, bedsides removing the lymph nodes in levels II-V, also removes the neck muscle, vein and nerve, so there is no stability. Another factor is some have a weaker carotid artery from radiation and or surgery from manipulation or scraping the tumor off the artery, and I had alloderm to put over to protect it, due to no neck muscle, and more recently a pec flap, whereby the alloderm was peeked off.
A few months ago, while going home in car service from the doctor, the driver stopped suddenly, jerking my head forward and backward, and immediately felt a jolt in my neck where I had three neck dissections. It got worse later on, and could not turn my head at all. This lasted well over a month, and was worried of any damage to my neck, and can imagine what a roller coaster ride may do.
Maybe ask your ENT.
Last edited by PaulB; 08-13-2013 06:11 AM.
10/09 T1N2bM0 Tonsil
11/09 Taxo Cisp 5-FU, 6 Months Hosp
01/11 35 IMRT 70Gy 7 Wks
06/11 30 HBO
08/11 RND PNI
06/12 SND PNI LVI
08/12 RND Pec Flap IORT 12 Gy
10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux
10/13 SND
10/13 TBO/Angiograph
10/13 RND Carotid Remove IORT 10Gy PNI
12/13 25 Protons 50Gy 6 Wks Carbo
11/14 All Teeth Extract 30 HBO
03/15 Sequestromy Buccal Flap ORN
09/16 Mandibulectomy Fib Flap Sternotomy
04/17 Regraft hypergranulation Donor Site
06/17 Heart Attack Stent
02/19 Finally Cancer Free Took 10 yrs
| | | | | Joined: Jul 2012 Posts: 50 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Jul 2012 Posts: 50 | [quote=sunderwood1111]I am a roller coaster enthusiast who is wondering if after I have my neck dissection whether or not I will be able to still ride the rough ones. My husband and I are taking a short vacation to Disneyland. I hope it is not my last roller coaster ride.[/quote] I don't see why you couldn't. The only trouble I have is holding my head up for long periods of time like if I'm in the tub.
Large sore on right side tongue. Had for 3 mos. biopsied came back stage 2 well differentiated tongue cancer. Partial tongue removal and neck disect. On feb142012. Rads for 6weeks finished in June. Couldn't speak or eat for 5 months. Clear pet scan dec 2012. Former smoker hpv- 27male. Recent ENT visit said "as far as I can tell you're cured" 💗
| | | | | Joined: Sep 2013 Posts: 17 Member | | Member
Joined: Sep 2013 Posts: 17 | Check with your doctor after you are all healed up but I had a radical neck dissection with a peck flap and was still able to ride the most rigorous roller coaster at Cedar Point.
In 1994 I found a 3cm tumor on my right tonsil. After 3 rounds of chemo, I underwent a radical neck dissection with a peck flap. I had a reoccurance which required twice a day radiation treatments and then had 19 years cancer free. I then found a very small tumor on my right tonsil. It was removed. Then I found a 1 cm mass near the base of my tongue on the left side. I had two partial glossectomys with bad margins and then then underwent Brachytherapy.
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