| | Joined: Aug 2013 Posts: 31 Contributing Member (25+ posts) | OP  Contributing Member (25+ posts)
Joined: Aug 2013 Posts: 31 | Hey guys, as some of you know I was diagnosed August 20th, still waiting of course for anything to be done and more info, because I have to hit the 12 week mark. I am happy that tomorrow is my 12 week mark, had an ultrasound at 10 weeks and baby was right on track. I have been a mess these last 3 weeks though, just an anxious, depressed mess of a person. Anyways I am wondering if I am currently creating more symptoms? I have an ulcer inside my bottom lip now and that got me freaking, that I spread it already. Can it spread that fast? I know I sound like a lunatic, but right now I can't say I am exactly sane. I am also wondering if I can get help with questions. I go seen an Oncologist tomorrow, who has viewed my records to date. I am not sure what to ask? Do I ask about possible treatments? This is a second opinion type thing so I want to get it right. Thanks 
DX with MEC salivary gland 8/20/2013 age 27 F 9 weeks pregnant
Jessica, Mother to a 4 and 9 year old
11/18/2013 surgery to removed tumor, including bilateral jaw muscle. 2nd Trimester.
12/2/2013 results came back for clear margins
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | I know this can be so overwhelming when first diagnosed. Try your very best to remain calm and clear thinking. Being upset is NOT healthy for you or the baby. Educate yourself. Read the main OCF pages and learn. You want to go into your appointment and actually understand what is being discussed. Do not go alone. Being upset you will probably not be able to pay attention and retain everything that is being discussed. Im sure you will think of questions as you are on your way home when its too late to ask the doc. That always happens to me if I dont make a long detailed list of things to ask. Take a tape recorder and tape the office visit, ask permission first. Here is a link for the main OCF pages so you can take some time and review the info. It will help you with your appointment. Juts remember radiation oncologists always recommend radiation while surgeons always say surgery is the way to go. At a CCC an entire team of specialists would be treating you and they would all be on the same page. Maybe its worth looking into. I also put you in touch with a good friend who is a valuable resource and local to you. She is there to help you so dont forget about asking her if you need help. Treatment Info from main OCF pages Best of luck with everything!!!
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | |
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